Susan, Have no fear your going to be PCRU before too long.
18's, Marty On Thu, Aug 7, 2014 at 10:01 AM, 'Susan Zimmerman' via CMLHope <[email protected]> wrote: > Hello Marty, Marcie and Skip, along with all the rest, > > So sorry to hear about your car acccident, Marcie! You truly did have your > angel watching over you. > > Marty, still praying for your kidney to be donated....there's one out there > for you, I just know it! > > Skip, good advice to those who might need the infusions about do they know > how to treat shock....guess you can be thankful you are not in the hospital > as it stands! > > Good news on my front - in three months on bosutinib (bosulif) at 100 mg, I > have gone from 9.0 IS for the bcr/abl testing down to 1.70!!! > I truly know this is unheard of in the treatment. I am one blessed person! > I still deal with lack of energy and slight nausea once in a while, so got > some medication for the nausea. My blood pressure was affected so now am on > med for that....trying hard to get a handle on the diabetes numbers to get > and stay as normal as possible. (What is normal for any of us???) > > May you all have a wonderful week as you concentrate on the positive instead > of the negative. Hooray! I am also excited to meet David and Grace > Greenburg, (greenie) coming up this month! > > Here's a thought: "If the people around you were dependent on your WORDS > for nourishment, would they be dying of malnutrition?" > > 18's, > Susan F. Zimmerman > > > > -----Original Message----- > From: margood18 via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Thu, Aug 7, 2014 9:46 am > Subject: Re: [CMLHope] I haven't seen any poste lately > > Skip, so glad you are starting to feel better. You give me hope that I can > keep going a long time with this disease. Are you all settled in your new > apartment? Stay well. > > > Marcie > > > -----Original Message----- > From: 'Skip Duffie' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Thu, Aug 7, 2014 8:47 am > Subject: Re: [CMLHope] I haven't seen any poste lately > > Hello Marty, > I am sorry for not posting much, I am just now starting to recover, I had > that stint in the Hospital and when I got out , I went for my > regular infusions. The red cells went great but then I had a very bad > reaction to the platelets. They had to stop the infusion have an > investigation, before I could receive any more platelets, I ended up with > just 1 platelet yes 1. One platelet is the same as having 10. The > machine cannot tell the difference from 0 or 10. I did not think I was > getting out of this one, but here I am feeling not to darned bad. > My advice to anyone getting regular infusions (platelets, red cells) check > to see if they are prepared for shock. > Marty I know your having a hard time as well, my prayers are for all us who > face this dragon every day. > SkipD (longest survivor in the world as far as we can tell) diag 1977 > They are sure I had it longer but not just diag. > > > On Thursday, August 7, 2014 1:15:18 AM, Marty Gartenberg <[email protected]> > wrote: > > > Is everyone alright? I haven't seen anything poster for nearly two weeks??? > > 18's, > > Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
