Hi Skip,
I was so touched by your message. Thank you for posting it. My husband (the
CML warrior) does not have that particular problem, but it will give many other
CMLers hope and peace of mind. You have been through so much and yet you, like
the old commercial for Timex watches, take a licking but keep on ticking. So
thankful for you and others on this site. Always in my prayers....
Joyce in IL
On Sep 4, 2014, at 8:10 AM, 'Skip Duffie' via CMLHope wrote:
> Hello all.....
> just wanted to comment on low/high platelets. I have gone through the whole
> range of platelets, from 0(zero) to 380,000. This week last Friday I had 40
> platelets and received a bag. I received my report today 3Sept2014 and I was
> back down to critical ( in my lab critical is below 30\). In all my 36
> almost 37 years, I do not think the high or low platelets bothered me, Thank
> G-d. I have a PCR abl test every three months and yes it it so much better
> than BMA, I lost track of how many I have over this last year or so without
> meds, a log reduction of 0.5, not sure if that is good or bad. My RBC is
> down in the 90's which makes me a bit winded. I go twice a week for
> infusions, once week for RBC if below 100, twice week for platelets, I
> usually lose between 30 to 50 platelets over the weekend. I wanted to share
> this with all of you, it is not the end of the world if you have movement in
> your counts, just remind your ONC if your feeling sick. If anyone is
> interested I would be willing to send one of my lab reports, if it would ease
> your mind. Our bodies are strong and will try to fight this CML, but you
> have to help it, try to get rid of stress, eat healthy, any problems talk it
> over with friends and family, Marty has sound advice, And remember this old
> fellow keep praying for all of us every day.
> Skip D
> 37 years this Dec
>
>
> On Thursday, September 4, 2014 9:31:55 AM, ICANDOALLTTC via CMLHope
> <[email protected]> wrote:
>
>
> Thanks Marty, being positive is one of our healing factors, but sometimes
> when we feel so bad and know we have to take our chemo every day, our mind
> gets bogged down with our illness. Our ability to focus sometimes gets a
> little blurry when we are in pain, but somehow we will get lifted up again
> and be ready to fight one more day. I love the inscription on my g
> grandfather's grave. It says, "He Fought The Brave Fight." So let us all
> fight bravely each day, and uplift each other with words of love and
> encouragement.
> You are one of the bravest warriors I have ever known.
> Blessings,
> Jeanie<3
>
> In a message dated 9/3/2014 8:37:01 A.M. Eastern Daylight Time,
> [email protected] writes:
> Maria, good luck with your blood test.
>
> Here are some words to live by...
>
> EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE.
> TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF
> YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER
> MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.
> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF
> MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING
> INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU
> THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.
> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE
> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE
> SUCCESSFUL OUTCOME...
> FOCUS...
> Please look me up. Google Marty Gartenberg. Open CML hope then go to "The
> Window"
>
> 18's
>
> Marty
>
>
> On Wed, Sep 3, 2014 at 8:22 AM, Maria Cashion <[email protected]> wrote:
> Thanks both of you, Richard and Marty for your concern!!! I am doing OK and
> plan to have a CBC done in an hour or so. I will start back on my Sprycel as
> soon as they draw the blood!!!
>
> Life is beautiful no matter what. As I look back, I know that I am lucky and
> strong, and I wil never give up!!!!!
>
> Love you all!!!
>
> Maria
>
>
> On Wed, Sep 3, 2014 at 6:14 AM, <[email protected]> wrote:
> [email protected] Google Groups
> Topic digest
> View all topics
> Digest for [email protected] - 3 updates in 1 topic - 3 Updates
> Digest for [email protected] - 3 updates in 1 topic
> Maria Cashion <[email protected]>: Sep 02 10:24PM -0400
>
> Hello everyone!!!! God bless you all!!! I have been out of touch for a
> while. My situation is still complicated, but rather uneventfull. I went
> to my appointment and my oncologist for the day told me that I might need
> another bone marrow aspiration and biopsy soon. She was worried because my
> platelets went down. The problem is that I have not been able to take my
> sprycel steadily. I have skipped some days. Sprycel acts really strongly
> on my platelet count, and I know this is what is happenning. Apparently, I
> have an infection also running around my system. To make it more
> interesting, I have been out of medication for a whole week due to
> insurance red tape...
> I will resume my Sprycel 70 mcg dose daily tomorrow after I do another CBC.
> I have an appointment in two weeks...
>
> Well, please take care!!!! Love you!!!!
> Blessings!!! :)
> Maria
>
>
> Richard H <[email protected]>: Sep 02 09:11PM -0700
>
> Hope you receive good news after your CBC. My ONC has a lab in his office
> and I have my results after about a 1/32 hour wait. I have Iron Deficient
> Anemia that was found after I was diagnosised with CML. He doesn't like to
> have a patient do a bone marrow biopsy because it is too painful. I was on
> Gleevec for 5 + years and off for almost 6. In Oct. I will do the mutation
> testing as I have something happening in my medical life. I have several
> things can be causing my blood test to be out of sync, so we must do some
> elinination testing to find what tand who should be the lead Dr. to manage
> treatment.
>
> My favorite response to the question "How are you doing?". "I stood up
> this morning looked around and said "Thank you God. Its going to be a
> great day. I hope you are having one also."
> Richard H.
>
> On Tuesday, September 2, 2014 9:24:59 PM UTC-5, Maria Cashion wrote:
> Marty Gartenberg <[email protected]>: Sep 03 04:47AM -0400
>
> Hi Richard and Maria,
>
> Richard, whenever we can get out of bed then it really is a good day. When
> I was a young child my father taught me that every day is a good day unless
> someone that we love dies.
>
> Maria, isn't it a shame that we all have to be dealing with insurance
> companies that may denigh us some life saving medications? This is simply
> unacceptable. I do hope that all of this will be worked out for you and
> everyone else that this may be happening to.
>
> 18's,
>
> Marty
>
>
>
>
> On Wed, Sep 3, 2014 at 12:11 AM, Richard H <[email protected]>
> wrote:
>
> Back to top
> You received this digest because you're subscribed to updates for this group.
> You can change your settings on the group membership page.
> To unsubscribe from this group and stop receiving emails from it send an
> email to mailto:cmlhope%[email protected].
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com/
> -------------------------------------------------
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to [email protected]
> To unsubscribe from this group, send email to
> [email protected]
> For more options, visit this group at http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to [email protected].
> For more options, visit https://groups.google.com/d/optout.
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com/
> -------------------------------------------------
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to [email protected]
> To unsubscribe from this group, send email to
> [email protected]
> For more options, visit this group at http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to [email protected].
> For more options, visit https://groups.google.com/d/optout.
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com/
> -------------------------------------------------
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to [email protected]
> To unsubscribe from this group, send email to
> [email protected]
> For more options, visit this group at http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to [email protected].
> For more options, visit https://groups.google.com/d/optout.
>
>
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -------------------------------------------------
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to [email protected]
> To unsubscribe from this group, send email to
> [email protected]
> For more options, visit this group at http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to [email protected].
> For more options, visit https://groups.google.com/d/optout.
--
--
[CMLHope]
A support group of http://cmlhope.com
-------------------------------------------------
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post to this group, send email to [email protected]
To unsubscribe from this group, send email to
[email protected]
For more options, visit this group at http://groups.google.com/group/CMLHope
---
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email
to [email protected].
For more options, visit https://groups.google.com/d/optout.
