Hi Everyone!!!!! I sure hope that you are ALL OK! I have been busy, trying to cling on to Sprycel, but it looks like it will have to go...My nephrologist considers that I must stop using it. I cant use diuretics, last time I did I had an acute kidney malfunction...Everything went back to "normal" We will see what happens... I am also getting involved in an archeological monitoring project...don't know....
There is also lots of rain coming our way tonigh. Looks like a good time to sleep!!!! I DO LOVE ALL OF YOU!!!!! Maria On Sun, Oct 12, 2014 at 6:15 AM, <[email protected]> wrote: > [email protected] > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics> > Google > Groups > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > Topic digest > View all topics > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics> > > - Digest for [email protected] - 8 updates in 2 topics > <#14903daf1ac4f42b_group_thread_0> - 1 Update > - New Results <#14903daf1ac4f42b_group_thread_1> - 7 Updates > > Digest for [email protected] - 8 updates in 2 topics > <http://groups.google.com/group/cmlhope/t/3a05b6ef093fd76a?utm_source=digest&utm_medium=email> > Kristin Lieberman <[email protected]>: Oct 11 09:50AM -0700 > > Beth, > > I will be seeing Dr. Druker on October 23rd. Maybe we could meet for > coffee? > > Kristin > > Sent from my iPad > > Back to top <#14903daf1ac4f42b_digest_top> > New Results > <http://groups.google.com/group/cmlhope/t/9173b5fa636f198b?utm_source=digest&utm_medium=email> > Marty Gartenberg <[email protected]>: Oct 11 06:42AM -0400 > > Hi Marcie, > > I know that your feeling bummed out but you shouldn't worry about it > because most lab results have a certain tolerance in their reports. > > Want some advice? Just sit back and try to enjoy your life because there is > nothing that you can do about it. Just think about something, what would > your blood results be if there were no TKI drugs? > > When I had my CML 25 years ago there were no TKI drugs and there were no > other choices I had but rather go through a bone marrow transplant. > > You do know the meaning of 18's well it means life, and that is exactly > what you have. > > wishing you many 18's, > > Marty > > On Fri, Oct 10, 2014 at 6:25 PM, 'Marcie Goodman' via CMLHope < > Giora <[email protected]>: Oct 11 04:43PM +0300 > > Dear Marcie > Please do not feel bad with this result. I have heard many times from > patients that they move from CMR to week positive and then back to CMR. One > time result is not so indicative and important. What's more important is a > trend of 3-4 tests, and you are not there. > Take care and thanks for your greetings on FB > Hugs > Giora > > -----Original Message----- > From: [email protected] [mailto:[email protected]] > Sent: Saturday, October 11, 2014 1:25 AM > To: [email protected] > Subject: [CMLHope] New Results > > Hi Friends, > > Just got my 3 month bcr-abl results. After 6 months of undetected, this > test > came back as "weak positive." Not much in terms of amount but I'm bummed > that I didn't remain undetected. > So I'm wondering if anyone else has received a "weak positive". I'm not > really worried because I'll be tested again in December but it sure would > be > great to be in complete response again. > > Marcie > > Sent from my iPad. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] To > unsubscribe > from this group, send email to [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > Tracie Camlin <[email protected]>: Oct 11 06:49AM -0700 > > Thanks for your inspirational words Marty! I agree, I had a rough time six > months ago and a short hospital stay. My health turned around and im loving > every day I feel good. Im going to truly live every minute of my life... I > don't know what tomorrow brings but I'm living with faith and much > gratitude. > > Best wishes to all! > Marcie Goodman <[email protected]>: Oct 11 11:14AM -0400 > > Thanks, Susan. Yes, cramping is not gone but better. I've been feeling > somewhat "off" for a couple of months, losing weight, no appetite, so I > thought something was going on. I'm usually so upbeat and I know things > could be much, much worse. Enough about me. How are you and Roy? > > Sent from my iPhone > > Marcie Goodman <[email protected]>: Oct 11 11:18AM -0400 > > Hi Richard, and thanks very much. I think those 2 undetecteds got me > thinking I'd stay that way for a long time. I know that the next test could > be better and thankfully we have so many options today with CML. > > I hope your doctor's visit goes well and please let us know when you get > the results. I'll be thinking about you on Monday. > > Marcie > > > > Sent from my iPhone > > Marcie Goodman <[email protected]>: Oct 11 11:22AM -0400 > > Dear Marty, you always have words of wisdom for us. Of course this is only > a blip and thankfully there is so much available to us CMLers today. > > Now we need to pray for your transplant to come through. Everyone of us > would just love to hear that news because you are very dear to us. > > 18s always. > > Marcie > > Sent from my iPhone > > Marcie Goodman <[email protected]>: Oct 11 11:33AM -0400 > > Shalom and todah rabbah, dearest Giora. Yes, one test isn't a big deal. I > haven't been feeling very well and have lost over 10 pounds in a short > time. Nothing has turned up on any tests so could just be stress. I'm > awaiting the General Election on November 4th because my current boss lost > his primary in June. I work by appointment and my excellent health care > benefits come through my job. I'm pretty certain I'll be staying on but in > politics until it happens, you just can't count on it. > > We love the videos of Michal's wedding. So beautiful and Tzvi's singing is > magical. Your family's love for one another comes through strong and clear. > > May we look forward to many joyous simchas in the future. > > Love to Sigi and Ellis sends warmest regards > > Marcie > > Sent from my iPhone > > Back to top <#14903daf1ac4f42b_digest_top> > You received this digest because you're subscribed to updates for this > group. You can change your settings on the group membership page > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/join> > . > To unsubscribe from this group and stop receiving emails from it send an > email to [email protected]. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
