Hi Sue:
Welcome to the club that no one really wants to join but fortunately for us, it is here as a wonderful source of support, information and friendship. People often say to me, even after 5 1/2 years of diagnosis, the same insensitive things you are hearing. I recently learned that two people I am close with told others that they thought I was lying about having leukemia and doing daily chemo because that just isn't believable! I've come to tune those people and their ignorance out. We have an unusual disease and I hope in time you will feel like I do and that is while I wish I didn't have to go through this, I am grateful that my CML is being controlled and also that options are available in terms of more than one drug available for treatment. I imagine you will go through some ups and downs and this group is here for you in any way and every way possible. Please feel free to reach out at any time. Good luck to you on your journey. Marcie -----Original Message----- From: Marty Gartenberg <[email protected]> To: cmlhope <[email protected]> Sent: Wed, Nov 12, 2014 3:53 pm Subject: Re: [CMLHope] newly diagnosed Hi Sue, I read your post and just wanted to make some comments. Personally I think that your hanging around with some people that I would classify as Anal Orifices. And I only say that to be polite. Or even more possible they suffer from Rectal Cranial Inversion (their head is up their Azz. I have to tell you that if one of them had CML or any other type of cancer then they would certainly have a different attitude. I hate to say this but sometimes you should keep some things to yourself because of people like that. The less they know about you then the better it will be for you. Anyway, now that is off my chest let me go into something more important. First, you have come to right place. All of those that are here are very compassionate and really care about each other. They have already gone through this and will be very happy to help you out with any questions and anything else they can and will help you with this. CML is not what it used to be because it is not a "death sentence" anymore. There have been so many improvements in it's treatment, not like in my day. I don't know what you may know about me but I am here to help you out in any way that I can. If you have read any of my posts you will see what I mean. Remember any time that you would like to post anything please feel free to do so. I would like to welcome you to this site. Sue, whenever I end any of my posts I end it with two numbers 18 which is the symbol for life. 18's to you Sue. Marty On Wed, Nov 12, 2014 at 10:23 AM, smgedit <[email protected]> wrote: I was diagnosed with CML a little over a month ago and had a bone marrow biopsy and started taking Gleevec last week. I'm trying to learn as much as I can about CML and my oncologist is great about giving detailed explanations and answering questions. But I was wondering if anyone else ever got what I consider a strange reaction from others about my news. In the past week, I've had people say the following things to me which upset me a lot. "So what's the big deal? So you have to take a pill...I have to take this antibiotic for my tooth infection this week too." "There is so a cure for leukemia. Plenty of people are cancer free. You don't know what you are talking about." (This after explaining about the drugs and "response," vs. "remission." etc.) "Well I hope you have a speedy recovery. Good luck." I know I can't put my energy into dealing with this right now but it is weighing on my mind anyway. It made me happy to find this group online where I know people can at least "get" it and where some of you have been living with CML for quite a while. Anyway, that's my first post. Nice to meet you. Sue -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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