Yes Susan, I do miss Zavie and let's not forget Mommy Lottie. I know that are both up there doing their happy dance for you.
18's, Marty On Fri, Nov 14, 2014 at 8:53 AM, 'Susan Zimmerman' via CMLHope < [email protected]> wrote: > Hello again Marty, > Yes, of course I remember Zavie Miller! He wrote me several uplifting > e-mails and you are right, he is doing the happy dance for me right now, I > am sure as he looks down on us. He was wonderful and I know you miss him, > too. > > 18's forever, > Susan F. Zimmerman > > > -----Original Message----- > From: Marty Gartenberg <[email protected]> > To: cmlhope <[email protected]> > Sent: Fri, Nov 14, 2014 7:27 am > Subject: Re: [CMLHope] Great NEWS > > Hi Susan, > > First and foremost do you remember Zavie Miller? Well he is doing the > "Yippy Yohoo for you. YEA! Good work and I know your going to do well. No > need to increase your TKI because you know your body better then anyone > else because you live in it and no one else does. As long as your counts > remain as they are then what is your doing is simply your doing. Yea! > > I keep on telling everyone that there will be a cure for CML and you > will see that I will be right. > > Sue now you can see just how much we care for each other, and now your > also included. This group is just like a close family and you will get to > know us as we will you. > > Susan, I see that you have been using the 18's and so you will see > exactly what it means. Why are you still "kicking" after those awful brain > bleeds and the stroke? Well that is those two numbers kicking in. Love ya. > > 18's, > > Marty > > > On Fri, Nov 14, 2014 at 12:18 AM, 'Susan Zimmerman' via CMLHope < > [email protected]> wrote: > >> Hello All, >> >> Great e-mail to the new "Sue", Marty!!! You are adorable and I love >> you. Welcome Sue from one to another....I have GREAT NEWS: >> You guessed it, I am MMR!!!!! My numbers are .04% after 8 months on >> lowest dose of bosulif. YAY, doing the happy dance for all He has done for >> me. I went 7 yrs and 2 mos. without any medication after being on gleevec >> 400 mg. for 2 yrs and 3 mos....had a brain hemmorhage, then another, so >> stopped gleevec for 7 yrs. Tried every other one and had some adverse >> bleeding effect that kept me from taking it. In 2010 had a major stroke, >> but doing fine now. Their only reasoning is I have cavernous malformations >> in my brain. Do you think this is any indication of the fact that I pride >> myself on being a little wacko??? Wanted to share how my numbers have >> plummeted: >> >> March 2014 - 23.5 Int'l. Scale BCR/ABL >> April 2014 - 9.0 Int'l Scale WITHOUT any meds >> May 2014 - 5.85 on bosulif 100 mg for only 30 days >> June 2014 - 3.7, 60 days on bosulif >> Oct. 2014 - .11% >> Nov. 2014 .04%, achieved MMR - hooray!!! >> >> Please continue praying that I have no bleeding side effects from 100 >> mg. They keep encouraging me to take 200 mg, but I say why rock the boat >> when this is working just fine? I am a rare bird, so don't try to copy >> what I do, anyone.....(about meds) >> >> Y'all are always in my prayers. I thank God for being able to know you >> and have the privilege of calling all of you my friends. Greenie and I met >> a few months ago, and it was wonderful! Try to enjoy every day as if it >> were your last, because we never know when He'll call us home! Just lost >> two good friends, and know they are in a better place. >> >> Love and 18's, >> Susan F. Zimmerman >> >> >> -----Original Message----- >> From: Richard H <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Thu, Nov 13, 2014 11:45 pm >> Subject: Re: [CMLHope] newly diagnosed >> >> Safe Travels my Friend. >> >> Richard H. >> >> On Wednesday, November 12, 2014 11:16:26 PM UTC-6, wa2yyx wrote: >> >>> Hi Marcie, >>> >>> We are all captains of our own ships because we steer our own ships in >>> a positive direction. Do you remember me saying that Leukemia is not only a >>> disease of one's body but their mind as well. It is how you handle yourself >>> that makes a big difference. If someone goes around with a terrible >>> attitude then that is what they will get. If someone goes around with a >>> good attitude then that is what they will have. >>> >>> Anyway, I have an appointment at Tampa Hospital for an annual exam for >>> a kidney transplant. It's just that I have to be current with everything >>> just in case it happens. >>> >>> The hospital is more then four hours away so I have to get some sleep >>> now. >>> >>> 18's, >>> >>> Marty >>> >>> On Wed, Nov 12, 2014 at 8:53 PM, 'Marcie Goodman' via CMLHope < >>> [email protected]> wrote: >>> >>>> Marty, >>>> >>>> What a lovely email to Sue. We are traveling together and I feel like >>>> you are the Captain of our ship! >>>> >>>> Thinking about you and keeping you in my prayers >>>> >>>> Love and 18s, >>>> >>>> Marcie >>>> >>>> Sent from my iPhone >>>> >>>> On Nov 12, 2014, at 8:34 PM, Marty Gartenberg <[email protected]> wrote: >>>> >>>> Oh yes Sue, family. Well you know what they say? You can pick your >>>> friends but your family is here to stay good or bad. No matter what you >>>> can't change them. >>>> >>>> As my father used to say, "never argue with a moron, fool, idiot or >>>> liar or someone that won't listen to what you have to say because no matter >>>> what you try to tell them they will never change. >>>> >>>> But your focus shouldn't be on them but people that are willing to >>>> help you. That is what this site is all about as you can see. >>>> >>>> When you travel on your journey all of us will be traveling along >>>> with you. I really mean that, and you will see that your not alone but with >>>> some very nice people that will be supporting you along. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> On Wed, Nov 12, 2014 at 4:25 PM, smgedit <[email protected]> wrote: >>>> >>>>> Hi, >>>>> First off, I love your terminology! (I'm a writer and editor by >>>>> trade). Secondly, thanks for your support. I'm limiting who knows and who >>>>> doesn't know what is going on for now but unfortunately one of the >>>>> ignorant >>>>> statements was by a family member. Oh well. I'm happy to have found this >>>>> site and to be meeting nice people like you on it. Sue >>>>> >>>>> Hi Sue, >>>>>> >>>>>> I read your post and just wanted to make some comments. Personally >>>>>> I think that your hanging around with some people that I would classify >>>>>> as >>>>>> Anal Orifices. And I only say that to be polite. Or even more possible >>>>>> they >>>>>> suffer from Rectal Cranial Inversion (their head is up their Azz. >>>>>> >>>>>> I have to tell you that if one of them had CML or any other type of >>>>>> cancer then they would certainly have a different attitude. >>>>>> >>>>>> I hate to say this but sometimes you should keep some things to >>>>>> yourself because of people like that. The less they know about you then >>>>>> the >>>>>> better it will be for you. >>>>>> >>>>>> Anyway, now that is off my chest let me go into something more >>>>>> important. First, you have come to right place. All of those that are >>>>>> here >>>>>> are very compassionate and really care about each other. They have >>>>>> already >>>>>> gone through this and will be very happy to help you out with any >>>>>> questions >>>>>> and anything else they can and will help you with this. >>>>>> >>>>>> CML is not what it used to be because it is not a "death sentence" >>>>>> anymore. There have been so many improvements in it's treatment, not >>>>>> like >>>>>> in my day. I don't know what you may know about me but I am here to help >>>>>> you out in any way that I can. >>>>>> >>>>>> If you have read any of my posts you will see what I mean. Remember >>>>>> any time that you would like to post anything please feel free to do so. >>>>>> I >>>>>> would like to welcome you to this site. >>>>>> >>>>>> Sue, whenever I end any of my posts I end it with two numbers 18 >>>>>> which is the symbol for life. >>>>>> >>>>>> 18's to you Sue. >>>>>> >>>>>> Marty >>>>>> >>>>>> On Wed, Nov 12, 2014 at 10:23 AM, smgedit <[email protected]> wrote: >>>>>> >>>>>>> I was diagnosed with CML a little over a month ago and had a bone >>>>>>> marrow biopsy and started taking Gleevec last week. I'm trying to >>>>>>> learn as >>>>>>> much as I can about CML and my oncologist is great about giving detailed >>>>>>> explanations and answering questions. But I was wondering if anyone else >>>>>>> ever got what I consider a strange reaction from others about my news. >>>>>>> In >>>>>>> the past week, I've had people say the following things to me which >>>>>>> upset >>>>>>> me a lot. >>>>>>> >>>>>>> "So what's the big deal? So you have to take a pill...I have to >>>>>>> take this antibiotic for my tooth infection this week too." >>>>>>> >>>>>>> "There is so a cure for leukemia. Plenty of people are cancer >>>>>>> free. You don't know what you are talking about." >>>>>>> (This after explaining about the drugs and "response," vs. >>>>>>> "remission." etc.) >>>>>>> >>>>>>> "Well I hope you have a speedy recovery. Good luck." >>>>>>> >>>>>>> I know I can't put my energy into dealing with this right now but >>>>>>> it is weighing on my mind anyway. It made me happy to find this group >>>>>>> online where I know people can at least "get" it and where some of you >>>>>>> have >>>>>>> been living with CML for quite a while. >>>>>>> >>>>>>> Anyway, that's my first post. Nice to meet you. >>>>>>> >>>>>>> Sue >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to [email protected] >>>>>>> To unsubscribe from this group, send email to CMLHope-u...@ >>>>>>> googlegroups.com >>>>>>> For more options, visit this group at http://groups.google.com/group >>>>>>> /CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>> send an email to [email protected]. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>> >>>>>> >>>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to CMLHope-u...@ >>>>> googlegroups.com >>>>> For more options, visit this group at http://groups.google.com/ >>>>> group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>> an email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] 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