Unusually cold in FL. Get out your sweaters. Blessings Jeanieš Sent from my iPhone
> On Nov 18, 2014, at 3:09 PM, "'Susan Zimmerman' via CMLHope" > <[email protected]> wrote: > > Greenie, we're traveling to Florida to Treasure Island, arriving Saturday the > 22nd. Only be there 4 days, then going to New Orleans for T-giving.. Keep > that warmth going for us for just four days.....please! It's 17 degrees here > right now. Just FYI > > Susan > > > -----Original Message----- > From: Myvety2k via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Nov 18, 2014 11:06 am > Subject: Re: [CMLHope] Great NEWS > > I'm getting out all of my ice fishing clothing, long john's, etc, it's 60 > deg. here in Fort Myers, FL. But then my daughter is visiting friends at the > Wisconsin Dells and they live in Hawaii. It's 12 deg. their. It's going to > get back up in the low 80's by Thursday here. They warm everyone. > > greenie > > In a message dated 11/18/2014 10:23:10 A.M. Eastern Standard Time, > [email protected] writes: > Great day I Florida. Glad everyone is good. > Happy dance to all. > Jeanie > > Sent from my iPhone > > On Nov 18, 2014, at 9:04 AM, "'Susan Zimmerman' via CMLHope" > <[email protected]> wrote: > >> Thanks Marty and everyone for your kind words. I'm also gaining back energy >> daily. >> >> Hey there, as a wrestler that Marty claims for me, I'm wrestling for all of >> YOU to steadily move forward in your own healings or remissions, which means >> I am praying for you to our precious heavenly Father, who knows your >> hearts. Marty, we expect news soon of a kidney transplant happening for >> you!!! Meanwhile all of our wishes are for you to feel well and have no >> problems with dialysis and energy. >> >> Love and 18's, >> >> Susan F. Zimmerman >> >> >> -----Original Message----- >> From: Marty Gartenberg <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Mon, Nov 17, 2014 10:38 pm >> Subject: Re: [CMLHope] Great NEWS >> >> Susan, >> >> Are you sure that in your former life you weren't a boxer or wrestler? You >> beat the crap out of CML! Good for you! We are all doing the "happy dance" >> for you. >> >> So now you really know the meaning of 18's. >> >> Marty >> >>> On Fri, Nov 14, 2014 at 12:18 AM, 'Susan Zimmerman' via CMLHope >>> <[email protected]> wrote: >>> Hello All, >>> >>> Great e-mail to the new "Sue", Marty!!! You are adorable and I love you. >>> Welcome Sue from one to another....I have GREAT NEWS: >>> You guessed it, I am MMR!!!!! My numbers are .04% after 8 months on lowest >>> dose of bosulif. YAY, doing the happy dance for all He has done for me. I >>> went 7 yrs and 2 mos. without any medication after being on gleevec 400 mg. >>> for 2 yrs and 3 mos....had a brain hemmorhage, then another, so stopped >>> gleevec for 7 yrs. Tried every other one and had some adverse bleeding >>> effect that kept me from taking it. In 2010 had a major stroke, but doing >>> fine now. Their only reasoning is I have cavernous malformations in my >>> brain. Do you think this is any indication of the fact that I pride myself >>> on being a little wacko??? Wanted to share how my numbers have plummeted: >>> >>> March 2014 - 23.5 Int'l. Scale BCR/ABL >>> April 2014 - 9.0 Int'l Scale WITHOUT any meds >>> May 2014 - 5.85 on bosulif 100 mg for only 30 days >>> June 2014 - 3.7, 60 days on bosulif >>> Oct. 2014 - .11% >>> Nov. 2014 .04%, achieved MMR - hooray!!! >>> >>> Please continue praying that I have no bleeding side effects from 100 mg. >>> They keep encouraging me to take 200 mg, but I say why rock the boat when >>> this is working just fine? I am a rare bird, so don't try to copy what I >>> do, anyone.....(about meds) >>> >>> Y'all are always in my prayers. I thank God for being able to know you and >>> have the privilege of calling all of you my friends. Greenie and I met a >>> few months ago, and it was wonderful! Try to enjoy every day as if it were >>> your last, because we never know when He'll call us home! Just lost two >>> good friends, and know they are in a better place. >>> >>> Love and 18's, >>> Susan F. Zimmerman >>> >>> >>> -----Original Message----- >>> From: Richard H <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Thu, Nov 13, 2014 11:45 pm >>> Subject: Re: [CMLHope] newly diagnosed >>> >>> Safe Travels my Friend. >>> >>> Richard H. >>> >>>> On Wednesday, November 12, 2014 11:16:26 PM UTC-6, wa2yyx wrote: >>>> Hi Marcie, >>>> >>>> We are all captains of our own ships because we steer our own ships in a >>>> positive direction. Do you remember me saying that Leukemia is not only a >>>> disease of one's body but their mind as well. It is how you handle >>>> yourself that makes a big difference. If someone goes around with a >>>> terrible attitude then that is what they will get. If someone goes around >>>> with a good attitude then that is what they will have. >>>> >>>> Anyway, I have an appointment at Tampa Hospital for an annual exam for a >>>> kidney transplant. It's just that I have to be current with everything >>>> just in case it happens. >>>> >>>> The hospital is more then four hours away so I have to get some sleep now. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>>> On Wed, Nov 12, 2014 at 8:53 PM, 'Marcie Goodman' via CMLHope >>>>> <[email protected]> wrote: >>>>> Marty, >>>>> >>>>> What a lovely email to Sue. We are traveling together and I feel like you >>>>> are the Captain of our ship! >>>>> >>>>> Thinking about you and keeping you in my prayers >>>>> >>>>> Love and 18s, >>>>> >>>>> Marcie >>>>> >>>>> Sent from my iPhone >>>>> >>>>> On Nov 12, 2014, at 8:34 PM, Marty Gartenberg <[email protected]> wrote: >>>>> >>>>>> Oh yes Sue, family. Well you know what they say? You can pick your >>>>>> friends but your family is here to stay good or bad. No matter what you >>>>>> can't change them. >>>>>> >>>>>> As my father used to say, "never argue with a moron, fool, idiot or liar >>>>>> or someone that won't listen to what you have to say because no matter >>>>>> what you try to tell them they will never change. >>>>>> >>>>>> But your focus shouldn't be on them but people that are willing to help >>>>>> you. That is what this site is all about as you can see. >>>>>> >>>>>> When you travel on your journey all of us will be traveling along with >>>>>> you. I really mean that, and you will see that your not alone but with >>>>>> some very nice people that will be supporting you along. >>>>>> >>>>>> 18's, >>>>>> >>>>>> Marty >>>>>> >>>>>>> On Wed, Nov 12, 2014 at 4:25 PM, smgedit <[email protected]> wrote: >>>>>>> Hi, >>>>>>> First off, I love your terminology! (I'm a writer and editor by trade). >>>>>>> Secondly, thanks for your support. I'm limiting who knows and who >>>>>>> doesn't know what is going on for now but unfortunately one of the >>>>>>> ignorant statements was by a family member. Oh well. I'm happy to have >>>>>>> found this site and to be meeting nice people like you on it. Sue >>>>>>> >>>>>>>> Hi Sue, >>>>>>>> >>>>>>>> I read your post and just wanted to make some comments. Personally I >>>>>>>> think that your hanging around with some people that I would classify >>>>>>>> as Anal Orifices. And I only say that to be polite. Or even more >>>>>>>> possible they suffer from Rectal Cranial Inversion (their head is up >>>>>>>> their Azz. >>>>>>>> >>>>>>>> I have to tell you that if one of them had CML or any other type of >>>>>>>> cancer then they would certainly have a different attitude. >>>>>>>> >>>>>>>> I hate to say this but sometimes you should keep some things to >>>>>>>> yourself because of people like that. The less they know about you >>>>>>>> then the better it will be for you. >>>>>>>> >>>>>>>> Anyway, now that is off my chest let me go into something more >>>>>>>> important. First, you have come to right place. All of those that are >>>>>>>> here are very compassionate and really care about each other. They >>>>>>>> have already gone through this and will be very happy to help you out >>>>>>>> with any questions and anything else they can and will help you with >>>>>>>> this. >>>>>>>> >>>>>>>> CML is not what it used to be because it is not a "death sentence" >>>>>>>> anymore. There have been so many improvements in it's treatment, not >>>>>>>> like in my day. I don't know what you may know about me but I am here >>>>>>>> to help you out in any way that I can. >>>>>>>> >>>>>>>> If you have read any of my posts you will see what I mean. >>>>>>>> Remember any time that you would like to post anything please >>>>>>>> feel free to do so. I would like to welcome you to this site. >>>>>>>> >>>>>>>> Sue, whenever I end any of my posts I end it with two numbers 18 which >>>>>>>> is the symbol for life. >>>>>>>> >>>>>>>> 18's to you Sue. >>>>>>>> >>>>>>>> Marty >>>>>>>> >>>>>>>>> On Wed, Nov 12, 2014 at 10:23 AM, smgedit <[email protected]> wrote: >>>>>>>>> I was diagnosed with CML a little over a month ago and had a bone >>>>>>>>> marrow biopsy and started taking Gleevec last week. I'm trying to >>>>>>>>> learn as much as I can about CML and my oncologist is great about >>>>>>>>> giving detailed explanations and answering questions. But I was >>>>>>>>> wondering if anyone else ever got what I consider a strange reaction >>>>>>>>> from others about my news. In the past week, I've had people say the >>>>>>>>> following things to me which upset me a lot. >>>>>>>>> >>>>>>>>> "So what's the big deal? So you have to take a pill...I have to take >>>>>>>>> this antibiotic for my tooth infection this week too." >>>>>>>>> >>>>>>>>> "There is so a cure for leukemia. Plenty of people are cancer free. >>>>>>>>> You don't know what you are talking about." >>>>>>>>> (This after explaining about the drugs and "response," vs. >>>>>>>>> "remission." etc.) >>>>>>>>> >>>>>>>>> "Well I hope you have a speedy recovery. Good luck." >>>>>>>>> >>>>>>>>> I know I can't put my energy into dealing with this right now but it >>>>>>>>> is weighing on my mind anyway. It made me happy to find this group >>>>>>>>> online where I know people can at least "get" it and where some of >>>>>>>>> you have been living with CML for quite a while. >>>>>>>>> >>>>>>>>> Anyway, that's my first post. Nice to meet you. >>>>>>>>> >>>>>>>>> Sue >>>>>>>>> -- >>>>>>>>> -- >>>>>>>>> [CMLHope] >>>>>>>>> A support group of http://cmlhope.com >>>>>>>>> ------------------------------------------------- >>>>>>>>> >>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>> Groups "CMLHope" group. >>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>> [email protected] >>>>>>>>> For more options, visit this group at >>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>> --- >>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>> Groups "CMLHope" group. >>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>> send an email to [email protected]. >>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> 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