Susan, you are a sweet heart, that's great news. greenie In a message dated 11/14/2014 12:18:24 A.M. Eastern Standard Time, [email protected] writes:
Hello All, Great e-mail to the new "Sue", Marty!!! You are adorable and I love you. Welcome Sue from one to another....I have GREAT NEWS: You guessed it, I am MMR!!!!! My numbers are .04% after 8 months on lowest dose of bosulif. YAY, doing the happy dance for all He has done for me. I went 7 yrs and 2 mos. without any medication after being on gleevec 400 mg. for 2 yrs and 3 mos....had a brain hemmorhage, then another, so stopped gleevec for 7 yrs. Tried every other one and had some adverse bleeding effect that kept me from taking it. In 2010 had a major stroke, but doing fine now. Their only reasoning is I have cavernous malformations in my brain. Do you think this is any indication of the fact that I pride myself on being a little wacko??? Wanted to share how my numbers have plummeted: March 2014 - 23.5 Int'l. Scale BCR/ABL April 2014 - 9.0 Int'l Scale WITHOUT any meds May 2014 - 5.85 on bosulif 100 mg for only 30 days June 2014 - 3.7, 60 days on bosulif Oct. 2014 - .11% Nov. 2014 .04%, achieved MMR - hooray!!! Please continue praying that I have no bleeding side effects from 100 mg. They keep encouraging me to take 200 mg, but I say why rock the boat when this is working just fine? I am a rare bird, so don't try to copy what I do, anyone.....(about meds) Y'all are always in my prayers. I thank God for being able to know you and have the privilege of calling all of you my friends. Greenie and I met a few months ago, and it was wonderful! Try to enjoy every day as if it were your last, because we never know when He'll call us home! Just lost two good friends, and know they are in a better place. Love and 18's, Susan F. Zimmerman -----Original Message----- From: Richard H <[email protected]> To: cmlhope <[email protected]> Sent: Thu, Nov 13, 2014 11:45 pm Subject: Re: [CMLHope] newly diagnosed Safe Travels my Friend. Richard H. On Wednesday, November 12, 2014 11:16:26 PM UTC-6, wa2yyx wrote: Hi Marcie, We are all captains of our own ships because we steer our own ships in a positive direction. Do you remember me saying that Leukemia is not only a disease of one's body but their mind as well. It is how you handle yourself that makes a big difference. If someone goes around with a terrible attitude then that is what they will get. If someone goes around with a good attitude then that is what they will have. Anyway, I have an appointment at Tampa Hospital for an annual exam for a kidney transplant. It's just that I have to be current with everything just in case it happens. The hospital is more then four hours away so I have to get some sleep now. 18's, Marty On Wed, Nov 12, 2014 at 8:53 PM, 'Marcie Goodman' via CMLHope <[email protected]> wrote: Marty, What a lovely email to Sue. We are traveling together and I feel like you are the Captain of our ship! Thinking about you and keeping you in my prayers Love and 18s, Marcie Sent from my iPhone On Nov 12, 2014, at 8:34 PM, Marty Gartenberg <[email protected]> wrote: Oh yes Sue, family. Well you know what they say? You can pick your friends but your family is here to stay good or bad. No matter what you can't change them. As my father used to say, "never argue with a moron, fool, idiot or liar or someone that won't listen to what you have to say because no matter what you try to tell them they will never change. But your focus shouldn't be on them but people that are willing to help you. That is what this site is all about as you can see. When you travel on your journey all of us will be traveling along with you. I really mean that, and you will see that your not alone but with some very nice people that will be supporting you along. 18's, Marty On Wed, Nov 12, 2014 at 4:25 PM, smgedit <[email protected]> wrote: Hi, First off, I love your terminology! (I'm a writer and editor by trade). Secondly, thanks for your support. I'm limiting who knows and who doesn't know what is going on for now but unfortunately one of the ignorant statements was by a family member. Oh well. I'm happy to have found this site and to be meeting nice people like you on it. Sue Hi Sue, I read your post and just wanted to make some comments. Personally I think that your hanging around with some people that I would classify as Anal Orifices. And I only say that to be polite. Or even more possible they suffer from Rectal Cranial Inversion (their head is up their Azz. I have to tell you that if one of them had CML or any other type of cancer then they would certainly have a different attitude. I hate to say this but sometimes you should keep some things to yourself because of people like that. The less they know about you then the better it will be for you. Anyway, now that is off my chest let me go into something more important. First, you have come to right place. All of those that are here are very compassionate and really care about each other. They have already gone through this and will be very happy to help you out with any questions and anything else they can and will help you with this. CML is not what it used to be because it is not a "death sentence" anymore. There have been so many improvements in it's treatment, not like in my day. I don't know what you may know about me but I am here to help you out in any way that I can. If you have read any of my posts you will see what I mean. Remember any time that you would like to post anything please feel free to do so. I would like to welcome you to this site. Sue, whenever I end any of my posts I end it with two numbers 18 which is the symbol for life. 18's to you Sue. Marty On Wed, Nov 12, 2014 at 10:23 AM, smgedit <[email protected]> wrote: I was diagnosed with CML a little over a month ago and had a bone marrow biopsy and started taking Gleevec last week. I'm trying to learn as much as I can about CML and my oncologist is great about giving detailed explanations and answering questions. But I was wondering if anyone else ever got what I consider a strange reaction from others about my news. In the past week, I've had people say the following things to me which upset me a lot. "So what's the big deal? So you have to take a pill...I have to take this antibiotic for my tooth infection this week too." "There is so a cure for leukemia. Plenty of people are cancer free. You don't know what you are talking about." (This after explaining about the drugs and "response," vs. "remission." etc.) "Well I hope you have a speedy recovery. Good luck." I know I can't put my energy into dealing with this right now but it is weighing on my mind anyway. It made me happy to find this group online where I know people can at least "get" it and where some of you have been living with CML for quite a while. Anyway, that's my first post. Nice to meet you. Sue -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------<WBR>-------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/groupgroup<WB_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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