Hi Marty. I feel so bad today!!! Thinks it's from the hydrea. I will print that out and keep it close. I love psalms also. Keep praying. Jeanie 18's 🐟
Sent from my iPhone > On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <[email protected]> wrote: > > Jeanie, I know that your feeling low right now but things will work out for > you. You must have this in your heart and I know that you do. FOCUS. > > This was something that was given to me by one of my close friends when I had > to live in that plastic bubble for all of those many months. I would read it > all the time and I am now passing it on to you, and it is being sent to you > from my heart because I remember my doubts but then again I also remember my > strengths. > > EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. > TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF > YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER > MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. > > WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF > MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING > INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU > THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. > > EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE > BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE > SUCCESSFUL OUTCOME... > > FOCUS... > > > > Yes Jeanie you just keep on focusing because you are much more powerful then > you think. > > > > Now you know why I keep on sending 18's. > > > > 18's, > > > > Marty > > >> On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> Hi Marty >> Thanks for you uplifting message. >> I am back to square one with my counts-- >> 700 thousand platelets >> 163.28 WBC >> ANC high >> Creatine high >> Potassium high >> Took me off sprycel. >> Allipurinoll 2 pills >> Hydrea 3 twice a day >> Yes I will fight!!! >> Just so tired. >> I think dr will put me on new drug mon. >> Got to see if there is a mutant. >> Prays and love to all. >> 18's. <emoji_u1f41f.png> >> Jeanie >> >> >> Sent from my iPhone >> >>> On Jan 10, 2015, at 4:31 AM, sherri swanson <[email protected]> >>> wrote: >>> >>> Hi Richard, >>> >>> If it's one thing I got, It's Attitude! At least that's what my mom would >>> tell me when I was a teenager. LOL >>> >>> Sorry to hear about the car. This cold weather can be brutal on a car's >>> battery. Glad you were able to get a new and now you’re good to go. >>> >>> Uor wind chills have been bad too. And we have some open fields so there is >>> nothing to block that wind. The other morning it was so cold that the >>> water froze in our community and none of had any water for awhile. It's a >>> good thing I'm an early raiser and I took my shower while we had water. >>> >>> Currently, it is -7 with a wind chill of -25 where I live and it isn't >>> going to be above zero until 9 am. That's cold. >>> >>> Stay warm Richard and think spring! >>> >>> L'chaim, >>> >>> Sherri >>> >>>> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected]> wrote: >>>> Hi Jeanie, >>>> >>>> So many things effect your kidneys. The simple ageing factor is just one >>>> of them. Some medicines will also contribute to kidney function probably >>>> some of these TKI's. Mine finally gave out from all of the chemotherapy >>>> and radiation I had more then 25 years ago. >>>> >>>> I can make a suggestion: If you are not diabetic try drinking cranberry >>>> juice. Not the ones that are mixed up with juices like grape juice. Ocean >>>> Spray has pure cranberry juice so you might want to try it. Even if you >>>> are diabetic they also make a light cranberry juice. >>>> >>>> You know what? You have been through so much that this is only a bump in >>>> the road for you, and so it is for me. >>>> >>>> We have two choices. One, continue to fight and the other is not an option >>>> for me or you. >>>> That is why I always end any of my posts with 18's. You just hang in there >>>> sweetie. >>>> >>>> Marty >>>> >>>>> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope >>>>> <[email protected]> wrote: >>>>> Hi Sherri, >>>>> I think the tki's contribute to kidney disease. I think that I am in the >>>>> beginning of the disease and I have been on tki's for 11 years now. >>>>> Hang in in there; blessings >>>>> Jeanie<3 >>>>> >>>>> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, >>>>> [email protected] writes: >>>>> Hi Marty, >>>>> >>>>> Thanks for the prayers and right back at ya. >>>>> >>>>> I've been struggling with my kidney disease for many years and didn't >>>>> know it, and then one day voilà the doctors found that there was a >>>>> problem and that I'd been fighting it for years hence the diagnoses of >>>>> Chronic Kidney Disease. And the funny thing is, I'm the only one in my >>>>> entire family that has any of these diseases. My family had its share of >>>>> health issues from heart disease to diabetes. But never anything like >>>>> what I have. All my doctors just shake their heads. I tell them that I >>>>> like to keep things interesting. And what they like is that I have a >>>>> sense of humor. And at this point, it is much better to joke and laugh >>>>> than to worry and cry. While I still take what I have seriously, I'm >>>>> just happy to be here. >>>>> >>>>> I would be a lot happier if the weather here would warm up. For crying >>>>> out loud it was -5 here yesterday and I was out in it. Now that is one >>>>> hearty person or a very foolish one. The jury is still out on that one. >>>>> Today it is going to be a balmy 8. Woohoo! A heat wave. And, again I'll >>>>> be out in it as I have to go and get a Rx that I need. >>>>> >>>>> L'chaim, >>>>> >>>>> Sherri >>>>> >>>>>> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <[email protected]> >>>>>> wrote: >>>>>> Dear Sherri, >>>>>> >>>>>> Yes, you are a fighter and it takes one to know one. I pray that >>>>>> everything turns out well for you. >>>>>> >>>>>> And you are correct that all of the radiation and chemotherapy did >>>>>> destroy both of my kidneys. It has been over 25 years that I had my BMT. >>>>>> It took many years for my kidneys to fail and that is probably why most >>>>>> transplant centers will usually not use total body radiation any more >>>>>> unless it is really needed. >>>>>> >>>>>> 18's, >>>>>> >>>>>> Marty >>>>>> >>>>>>> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson >>>>>>> <[email protected]> wrote: >>>>>>> Hi Marty, >>>>>>> >>>>>>> The doctors are trying to treat the different illnesses that are >>>>>>> included in my condition. There are so many and they do so many >>>>>>> different things, that I am happy just to to be here. I agree that as >>>>>>> we get older there are some unusual things that that find us. But in >>>>>>> the long run, we all got something. I'm a survivor. It's what I do. So >>>>>>> when I found out on Monday that I have a large mass on my thyroid, I >>>>>>> told my doctor I guess we're going to be busy this winter. At least I'm >>>>>>> not an alarmist. <35C.png> >>>>>>> >>>>>>> I too have trouble with my kidneys. Not to the extend that you do, I'm >>>>>>> working to keep myself at the current level of stage III Kidney >>>>>>> Disease. Some days, I'm good others, not so much. Lately I've not been >>>>>>> doing so good and I've had to go and buy new shoes as my feet have been >>>>>>> so swollen that my current size no longer fit. I wear compression socks >>>>>>> all the time as well. >>>>>>> >>>>>>> My Nephrologist ran some blood work and found that my sodium was very >>>>>>> low and and so was a bunch of other levels. Now, he is an alarmist. If >>>>>>> I even look like I'm getting a cold he freaks out. I love him dearly, >>>>>>> and I do what he says, but I can't sneeze without him making me go see >>>>>>> my GP or the Oncologist or whatever doctor he thinks I need to see. >>>>>>> >>>>>>> I've heard that when you have a BMT and have to have radiation and >>>>>>> chemo, sometimes kidney failure is possible. How long have you been on >>>>>>> the list for transplant? >>>>>>> >>>>>>> Well, I'm glad that you are here and that you are strong. You're an >>>>>>> inspiration to all of us. Thanks for all you do Marty. >>>>>>> >>>>>>> L'chaim >>>>>>> >>>>>>> Sherri >>>>>>> >>>>>>>> On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg <[email protected]> >>>>>>>> wrote: >>>>>>>> Hi again Sherri, >>>>>>>> >>>>>>>> Hopefully you will be able to be treated for this condition. It >>>>>>>> seems that as most of us get older we start suffering from some very >>>>>>>> unusual things, but that is the price we must pay to remain alive. We >>>>>>>> just have to do whatever we can to keep on going because we have no >>>>>>>> other choice. >>>>>>>> >>>>>>>> My kidneys failed four years ago and I must be on dialysis because it >>>>>>>> is keeping me alive until I can hopefully receive a kidney transplant. >>>>>>>> >>>>>>>> This happened because when I received a bone marrow transplant more >>>>>>>> then 25 years all of the radiation and chemotherapy started to >>>>>>>> destroy my kidneys, but i'm still alive today because of it. We all >>>>>>>> have our own battles in life and that is just the way it is. >>>>>>>> >>>>>>>> I wish you much health and happiness in this New Year. >>>>>>>> >>>>>>>> 18's, >>>>>>>> >>>>>>>> Marty >>>>>>>> >>>>>>>>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson >>>>>>>>> <[email protected]> wrote: >>>>>>>>> Hi Marty, >>>>>>>>> >>>>>>>>> Happy New Year. I hope you are well. Thanks for the research I >>>>>>>>> enjoyed article. I could only wish it was as simple as being as side >>>>>>>>> effect of my TKI. In my case, nothing is ever simple LOL. What I >>>>>>>>> have is called Autonomic Neuropathy. Basically, my Autonomic Nervous >>>>>>>>> System has malfunctioned. Here is a link for you to read if you >>>>>>>>> would like to. >>>>>>>>> >>>>>>>>> http://en.wikipedia.org/wiki/Dysautonomia >>>>>>>>> >>>>>>>>> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects >>>>>>>>> involuntary body functions, including heart rate, blood pressure, >>>>>>>>> perspiration and digestion. >>>>>>>>> It isn't a specific disease. Autonomic Neuropathy refers to damage to >>>>>>>>> the autonomic nerves. This damage disrupts signals between the brain >>>>>>>>> and portions of the autonomic nervous system, such as the >>>>>>>>> heart, blood vessels and sweat glands. This can cause decreased or >>>>>>>>> abnormal performance of one or more involuntary body functions. >>>>>>>>> >>>>>>>>> Autonomic Neuropathy can be a complication of a number of diseases >>>>>>>>> and conditions. And some medications can cause autonomic neuropathy >>>>>>>>> as a side effect. Signs, symptoms and treatment of autonomic >>>>>>>>> neuropathy vary depending on the cause, and on which nerves are >>>>>>>>> affected. >>>>>>>>> >>>>>>>>> L'Chaim, >>>>>>>>> >>>>>>>>> Sherri >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <[email protected]> >>>>>>>>>> wrote: >>>>>>>>>> Hi Sherri, >>>>>>>>>> >>>>>>>>>> I did a little research on your no sweating problem, and it is >>>>>>>>>> probably a side effect of your TKI treatment. >>>>>>>>>> >>>>>>>>>> I also ran across an article which you can read here. It does >>>>>>>>>> mention something about the lack of sweating. It probably has >>>>>>>>>> nothing to do with your problem but maybe you should read it >>>>>>>>>> anyway. >>>>>>>>>> >>>>>>>>>> http://en.wikipedia.org/wiki/Fabry_disease >>>>>>>>>> >>>>>>>>>> 18's, >>>>>>>>>> >>>>>>>>>> Marty >>>>>>>>>> >>>>>>>>>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson >>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>> Hello, >>>>>>>>>>> >>>>>>>>>>> I've had CML for 12 years and I've taken Gleevec for those 12 >>>>>>>>>>> years. I've also experienced night sweats for many years. At first >>>>>>>>>>> I was told that it was due to menopause because of my age at the >>>>>>>>>>> time. Go figure. When that was no longer an option, the only thing >>>>>>>>>>> left was the Gleevec. Since being dx'd with the CML in 2003, I've >>>>>>>>>>> been dx'd with other chronic illnesses that are just as serious. >>>>>>>>>>> >>>>>>>>>>> With these new illnesses came a new problem. I no longer sweat at >>>>>>>>>>> all. So now I have the complete opposite problem. No matter how hot >>>>>>>>>>> it is, I never sweat. I a way, it's nice because I'm always cold >>>>>>>>>>> and I long for very hot days so I can go out side in the heat. But >>>>>>>>>>> my oncologist has warned me to not do it for very >>>>>>>>>>> long as I have no way to control my body temperature. >>>>>>>>>>> Unfortunately, it works the same way with the cold. My body >>>>>>>>>>> temperature is a constant 95 degrees. >>>>>>>>>>> >>>>>>>>>>> So, in answer to your question, yes, the Gleevec does cause night >>>>>>>>>>> sweats. It is one of its side effects. Unfortunately, I was not >>>>>>>>>>> able to find a remedy for my night sweats other than going to the >>>>>>>>>>> extreme which I do not recommend. <332.png> >>>>>>>>>>> >>>>>>>>>>> I hope everyone has a good New Year and is healthy. Keep my posted >>>>>>>>>>> as to what you find out. Even thought I no long have this issue, I >>>>>>>>>>> would still like to be kept in the loop. >>>>>>>>>>> >>>>>>>>>>> L'chaim >>>>>>>>>>> >>>>>>>>>>> Sherri >>>>>>>>>>> >>>>>>>>>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope >>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>> Hello, Susan. Gosh, we are just sweating through this it seems. I >>>>>>>>>>>> will see what may be available naturally, as I don't want hormones >>>>>>>>>>>> either. Sorry you are experiencing this same >>>>>>>>>>>> problem which I hope to solve. >>>>>>>>>>>> >>>>>>>>>>>> Best wishes to you, Roy and your beautiful family for a >>>>>>>>>>>> blessed New Year. >>>>>>>>>>>> >>>>>>>>>>>> Marcie >>>>>>>>>>>> >>>>>>>>>>>> Sent from my iPad >>>>>>>>>>>> >>>>>>>>>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" >>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>> >>>>>>>>>>>>> Dear Marcie, >>>>>>>>>>>>> >>>>>>>>>>>>> I have had night sweats for years, intensifying after my dx in >>>>>>>>>>>>> 2005. I have day sweats, too. When I stand up for more than >>>>>>>>>>>>> five minutes to do anything at all I start profusely sweating >>>>>>>>>>>>> from weakness. I think part of this is from the bosulif, but >>>>>>>>>>>>> most is from the stroke weakness and need for hormones. I will >>>>>>>>>>>>> not take artificial hormones and have not gotten the good kind >>>>>>>>>>>>> that are specially made for each person. I totally sympathize >>>>>>>>>>>>> with you Marcie. You might want to go to a >>>>>>>>>>>>> naturalist doctor about getting a test for hormones and then they >>>>>>>>>>>>> will make a compound for you of cream that usually works. >>>>>>>>>>>>> Regular md's only know to prescribe the synthetic or horse >>>>>>>>>>>>> hormones which do cause cancer. That's my take on it, hope you >>>>>>>>>>>>> find some relief!!! >>>>>>>>>>>>> >>>>>>>>>>>>> Thanks for your always uplifting posts! Happy New Year to you, >>>>>>>>>>>>> too! >>>>>>>>>>>>> Susan F. Zimmerman >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> -----Original Message----- >>>>>>>>>>>>> From: 'Marcie Goodman' via CMLHope <[email protected]> >>>>>>>>>>>>> To: cmlhope <[email protected]> >>>>>>>>>>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>>>>>>>>>> Subject: [CMLHope] Night Sweats >>>>>>>>>>>>> >>>>>>>>>>>>> Happy New Year, dear friends. I'm wondering if any of you suffer >>>>>>>>>>>>> with night >>>>>>>>>>>>> sweats as a side effect of your TKI. I do, and have, over the >>>>>>>>>>>>> years of my >>>>>>>>>>>>> treatment. I don't know that it is happening more frequently but >>>>>>>>>>>>> the sweats seem >>>>>>>>>>>>> to be more intense. Is there anything that you know of that will >>>>>>>>>>>>> help? >>>>>>>>>>>>> >>>>>>>>>>>>> Many thanks for always being there to offer encouragement and >>>>>>>>>>>>> assistance. >>>>>>>>>>>>> >>>>>>>>>>>>> Marcie >>>>>>>>>>>>> >>>>>>>>>>>>> Sent from my iPad >>>>>>>>>>>>> >>>>>>>>>>>>> -- >>>>>>>>>>>>> -- >>>>>>>>>>>>> [CMLHope] >>>>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>>>> >>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>> Google Groups >>>>>>>>>>>>> "CMLHope" group. >>>>>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>>> [email protected] >>>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>>>> --- >>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>> Google Groups >>>>>>>>>>>>> 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