Hu Sherri. I love your attitude.: My kidney disease is from long term use Zocor for my heart and Gleevec.. Both drugs warn about watching the kidneys, so I definitely believe this is the cause for my kidney problems. I to have been out in this weather. Yesterday, we were going to go to the store and my car wound not start. I called my favorite auto service and ended up buying a new battery. I had it checked and it would no longer hold a charge. Our wind chills have been -10 to --25 so that is brutal for our part of the country. Richard H.
Hi Marty, > > Thanks for the prayers and right back at ya. > > I've been struggling with my kidney disease for many years and didn't know > it, and then one day voilà the doctors found that there was a problem and > that I'd been fighting it for years hence the diagnoses of Chronic Kidney > Disease. And the funny thing is, I'm the only one in my entire family that > has any of these diseases. My family had its share of health issues from > heart disease to diabetes. But never anything like what I have. All my > doctors just shake their heads. I tell them that I like to keep things > interesting. And what they like is that I have a sense of humor. And at > this point, it is much better to joke and laugh than to worry and cry. > While I still take what I have seriously, I'm just happy to be here. > > I would be a lot happier if the weather here would warm up. For crying out > loud it was -5 here yesterday and I was out in it. Now that is one hearty > person or a very foolish one. The jury is still out on that one. Today it > is going to be a balmy 8. Woohoo! A heat wave. And, again I'll be out in > it as I have to go and get a Rx that I need. > > L'chaim, > > Sherri > > On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <[email protected] > <javascript:>> wrote: > >> Dear Sherri, >> >> Yes, you are a fighter and it takes one to know one. I pray that >> everything turns out well for you. >> >> And you are correct that all of the radiation and chemotherapy did >> destroy both of my kidneys. It has been over 25 years that I had my BMT. It >> took many years for my kidneys to fail and that is probably why most >> transplant centers will usually not use total body radiation any more >> unless it is really needed. >> >> 18's, >> >> Marty >> >> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson <[email protected] >> <javascript:>> wrote: >> >>> Hi Marty, >>> >>> The doctors are trying to treat the different illnesses that are >>> included in my condition. There are so many and they do so many different >>> things, that I am happy just to to be here. I agree that as we get older >>> there are some unusual things that that find us. But in the long run, we >>> all got something. I'm a survivor. It's what I do. So when I found out on >>> Monday that I have a large mass on my thyroid, I told my doctor I guess >>> we're going to be busy this winter. At least I'm not an alarmist. >>> >>> I too have trouble with my kidneys. Not to the extend that you do, I'm >>> working to keep myself at the current level of stage III Kidney Disease. >>> Some days, I'm good others, not so much. Lately I've not been doing so >>> good and I've had to go and buy new shoes as my feet have been so swollen >>> that my current size no longer fit. I wear compression socks all the time >>> as well. >>> >>> My Nephrologist ran some blood work and found that my sodium was very >>> low and and so was a bunch of other levels. Now, he is an alarmist. If I >>> even look like I'm getting a cold he freaks out. I love him dearly, and I >>> do what he says, but I can't sneeze without him making me go see my GP or >>> the Oncologist or whatever doctor he thinks I need to see. >>> >>> I've heard that when you have a BMT and have to have radiation and >>> chemo, sometimes kidney failure is possible. How long have you been on the >>> list for transplant? >>> >>> Well, I'm glad that you are here and that you are strong. You're an >>> inspiration to all of us. Thanks for all you do Marty. >>> >>> L'chaim >>> >>> Sherri >>> >>> On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg <[email protected] >>> <javascript:>> wrote: >>> >>>> Hi again Sherri, >>>> >>>> Hopefully you will be able to be treated for this condition. It seems >>>> that as most of us get older we start suffering from some very unusual >>>> things, but that is the price we must pay to remain alive. We just have to >>>> do whatever we can to keep on going because we have no other choice. >>>> >>>> My kidneys failed four years ago and I must be on dialysis because it >>>> is keeping me alive until I can hopefully receive a kidney transplant. >>>> >>>> This happened because when I received a bone marrow transplant more >>>> then 25 years all of the radiation and chemotherapy started to destroy my >>>> kidneys, but i'm still alive today because of it. We all have our own >>>> battles in life and that is just the way it is. >>>> >>>> I wish you much health and happiness in this New Year. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson <[email protected] >>>> <javascript:>> wrote: >>>> >>>>> Hi Marty, >>>>> >>>>> Happy New Year. I hope you are well. Thanks for the research I enjoyed >>>>> article. I could only wish it was as simple as being as side effect of my >>>>> TKI. In my case, nothing is ever simple LOL. What I have is called >>>>> Autonomic Neuropathy. Basically, my Autonomic Nervous System has >>>>> malfunctioned. Here is a link for you to read if you would like to. >>>>> >>>>> http://en.wikipedia.org/wiki/Dysautonomia >>>>> >>>>> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects >>>>> involuntary body functions, including heart rate, blood pressure, >>>>> perspiration and digestion. >>>>> >>>>> It isn't a specific disease. Autonomic Neuropathy refers to damage to >>>>> the autonomic nerves. This damage disrupts signals between the brain and >>>>> portions of the autonomic nervous system, such as the heart, blood >>>>> vessels >>>>> and sweat glands. This can cause decreased or abnormal performance of one >>>>> or more involuntary body functions. >>>>> >>>>> Autonomic Neuropathy can be a complication of a number of diseases and >>>>> conditions. And some medications can cause autonomic neuropathy as a side >>>>> effect. Signs, symptoms and treatment of autonomic neuropathy vary >>>>> depending on the cause, and on which nerves are affected. >>>>> >>>>> L'Chaim, >>>>> >>>>> Sherri >>>>> >>>>> >>>>> >>>>> >>>>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <[email protected] >>>>> <javascript:>> wrote: >>>>> >>>>>> Hi Sherri, >>>>>> >>>>>> I did a little research on your no sweating problem, and it is >>>>>> probably a side effect of your TKI treatment. >>>>>> >>>>>> I also ran across an article which you can read here. It does mention >>>>>> something about the lack of sweating. It probably has nothing to do with >>>>>> your problem but maybe you should read it anyway. >>>>>> >>>>>> http://en.wikipedia.org/wiki/Fabry_disease >>>>>> >>>>>> 18's, >>>>>> >>>>>> Marty >>>>>> >>>>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson <[email protected] >>>>>> <javascript:>> wrote: >>>>>> >>>>>>> Hello, >>>>>>> >>>>>>> I've had CML for 12 years and I've taken Gleevec for those 12 years. >>>>>>> I've also experienced night sweats for many years. At first I was told >>>>>>> that it was due to menopause because of my age at the time. Go figure. >>>>>>> When >>>>>>> that was no longer an option, the only thing left was the Gleevec. >>>>>>> Since >>>>>>> being dx'd with the CML in 2003, I've been dx'd with other chronic >>>>>>> illnesses that are just as serious. >>>>>>> >>>>>>> With these new illnesses came a new problem. I no longer sweat at >>>>>>> all. So now I have the complete opposite problem. No matter how hot it >>>>>>> is, >>>>>>> I never sweat. I a way, it's nice because I'm always cold and I long >>>>>>> for >>>>>>> very hot days so I can go out side in the heat. But my oncologist has >>>>>>> warned me to not do it for very long as I have no way to control my >>>>>>> body >>>>>>> temperature. Unfortunately, it works the same way with the cold. My >>>>>>> body >>>>>>> temperature is a constant 95 degrees. >>>>>>> >>>>>>> So, in answer to your question, yes, the Gleevec does cause night >>>>>>> sweats. It is one of its side effects. Unfortunately, I was not able to >>>>>>> find a remedy for my night sweats other than going to the extreme which >>>>>>> I >>>>>>> do not recommend. >>>>>>> >>>>>>> I hope everyone has a good New Year and is healthy. Keep my posted >>>>>>> as to what you find out. Even thought I no long have this issue, I >>>>>>> would >>>>>>> still like to be kept in the loop. >>>>>>> >>>>>>> L'chaim >>>>>>> >>>>>>> Sherri >>>>>>> >>>>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope < >>>>>>> [email protected] <javascript:>> wrote: >>>>>>> >>>>>>>> Hello, Susan. Gosh, we are just sweating through this it seems. I >>>>>>>> will see what may be available naturally, as I don't want hormones >>>>>>>> either. >>>>>>>> Sorry you are experiencing this same problem which I hope to solve. >>>>>>>> >>>>>>>> Best wishes to you, Roy and your beautiful family for a blessed New >>>>>>>> Year. >>>>>>>> >>>>>>>> Marcie >>>>>>>> >>>>>>>> Sent from my iPad >>>>>>>> >>>>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" < >>>>>>>> [email protected] <javascript:>> wrote: >>>>>>>> >>>>>>>> Dear Marcie, >>>>>>>> >>>>>>>> I have had night sweats for years, intensifying after my dx in >>>>>>>> 2005. I have day sweats, too. When I stand up for more than five >>>>>>>> minutes >>>>>>>> to do anything at all I start profusely sweating from weakness. I >>>>>>>> think >>>>>>>> part of this is from the bosulif, but most is from the stroke weakness >>>>>>>> and >>>>>>>> need for hormones. I will not take artificial hormones and have not >>>>>>>> gotten >>>>>>>> the good kind that are specially made for each person. I totally >>>>>>>> sympathize with you Marcie. You might want to go to a naturalist >>>>>>>> doctor >>>>>>>> about getting a test for hormones and then they will make a compound >>>>>>>> for >>>>>>>> you of cream that usually works. Regular md's only know to prescribe >>>>>>>> the >>>>>>>> synthetic or horse hormones which do cause cancer. That's my take on >>>>>>>> it, >>>>>>>> hope you find some relief!!! >>>>>>>> >>>>>>>> Thanks for your always uplifting posts! Happy New Year to you, too! >>>>>>>> Susan F. Zimmerman >>>>>>>> >>>>>>>> >>>>>>>> -----Original Message----- >>>>>>>> From: 'Marcie Goodman' via CMLHope <[email protected] >>>>>>>> <javascript:>> >>>>>>>> To: cmlhope <[email protected] <javascript:>> >>>>>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>>>>> Subject: [CMLHope] Night Sweats >>>>>>>> >>>>>>>> Happy New Year, dear friends. I'm wondering if any of you suffer with >>>>>>>> night >>>>>>>> sweats as a side effect of your TKI. I do, and have, over the years >>>>>>>> of my >>>>>>>> treatment. I don't know that it is happening more frequently but the >>>>>>>> sweats seem >>>>>>>> to be more intense. Is there anything that you know of that will help? >>>>>>>> >>>>>>>> Many thanks for always being there to offer encouragement and >>>>>>>> assistance. >>>>>>>> >>>>>>>> Marcie >>>>>>>> >>>>>>>> Sent from my iPad >>>>>>>> >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups >>>>>>>> "CMLHope" group. >>>>>>>> To post to this group, send email to [email protected] >>>>>>>> <javascript:> >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> [email protected] <javascript:> >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups >>>>>>>> "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>>> an email >>>>>>>> to [email protected] <javascript:>. >>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>> >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To post to this group, send email to [email protected] >>>>>>>> <javascript:> >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> [email protected] <javascript:> >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>> send an email to [email protected] <javascript:>. >>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>> >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To post to this group, send email to [email protected] >>>>>>>> <javascript:> >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> [email protected] <javascript:> >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>> send an email to [email protected] <javascript:>. >>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>> >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> 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