Hi Rien, Yes I had an awful jaw and earache for about 3 months--they finally cleared up but my blood counts shot way up. I read where the blue bulge in your palate could be some cells filled with blood. I read it should be removed but more than likely wasn't malignant. Read this article http://www.justanswer.com/dental/22lpb-dark-blue-spot-hard-palate.html Blessings, Jeanie<3 In a message dated 1/18/2015 10:36:18 A.M. Eastern Standard Time, rien16...@gmail.com writes:
Hi Jeanie, Thanks for posting! I was surprised to hear that you suffered from ear pain too, I had that as well, with blooding ears, but I never thought that this could be linked to Gleevec.... As for the palate: I never check it, do not feel any pain either, so I do not know since when it has got this funny colour. I visited my dentist there months ago and then nothing strange could be seen... I am still afraid that it could be mouth cancer... They will call me on Tuesday from the hospital, telling me if they think a biopsy is needed...Keep my fingers crossed... My blood was checked last week, nothing special!! Thanks again, Rien Op donderdag 15 januari 2015 heeft 'Icandoallttc' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > het volgende geschreven: Hi Rien In my 11 years on tki's nothing surprises me anymore!!! I recently suffered from terrible jaw and ear pain. It finally went away but my blood counts went way up. Have you bruise your mouth? Has this been going on for a long time? Sometimes a wait and see might work. Keep a close check on you CBC And CPN. Good luck Jeanie Sent from my iPhone On Jan 13, 2015, at 10:40 AM, Rien Jonkers <_rien16746@gmail.com_ (javascript:_e({},'cvml','rien16...@gmail.com');) > wrote: Hello CML-warriors, It has been a long time since I sent messages to you, but I have continued reading all the topics with much interest. And now I have a question myself: I have been taking Gleevec since March 2003 and I was very happy as I heard that I could participate in a European study, meaning that I could stop taking the pills since December 2014. The acr-bcr-results were fine, but now they discovered something very strange. My dentist saw that my palate was partly blue. He had never seen such a thing before and he sent me to the oral surgeon/oncologist, whose reaction was more or less the same as my dentist's. He had never seen such a thing either. He thought it could be a side effect caused by Gleevec (but I do not take it aanymore!!). He will now ask his colleagues hematologists if this could indeed be the case. If they do not have an answer, he will do a biopsy, because it could be an oral cancer, even if the color does not correspond with the diagnosis and there is not any swelling. Does anyone have any idea what this blue/violet spot on the palate could be? Thank you very much in advance for your reactions!! Greetings from the rainy Netherlands, Rien Jonkers -- Dr. Marinus Jonkers Ravenhoflaan 5 NL- 4706 WD Roosendaal Tel. +31 165 8 22128 117 Bd de la 1ère Armée, no. 21 F – 83330 Le Beausset Tél. +33 494 06 01 87 email: _Rien16746@gmail.com_ (javascript:_e({},'cvml','rien16...@gmail.com');) -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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For more options, visit https://groups.google.com/d/optout. -- Dr. Marinus Jonkers Ravenhoflaan 5 NL- 4706 WD Roosendaal Tel. +31 165 8 22128 117 Bd de la 1ère Armée, no. 21 F – 83330 Le Beausset Tél. +33 494 06 01 87 email: _Rien16746@gmail.com_ (mailto:rien16...@gmail.com) -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . 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