Thanks Joyce. My blood counts soared so high they took me off sprycel and put me on hydrea. It keeps me nauseas. They want to try ponatinib. But it is a process getting approved. I hope Wayne keeps his remission. I didn't do well on tasigna at all. Had to have transfusions and etc. but some do well in it. Hang in there dear caregiver. Blessing Jeanie
Sent from my iPhone > On Jan 22, 2015, at 1:21 AM, Joyce Mesnarich <joy...@htc.net> wrote: > > Hi Jeanie, > I hope you are feeling some better. Have been following your reports and > keeping you in my thoughts and prayers. We all have these roller coaster ups > and downs it seems. > We don't know what is next for Wayne. Have to wait until Dr Talpaz gets the > results from the PCR, etc. that were done 1-15-15. But he says he will > definitely not go back on Sprycel. He is thinking possibly a small dose of > Tasigna. All of these TKI's are scary...but necessary. But he will not put > him on any TKI for awhile if his PCR is not up. He has been off Sprycel > since August, 2014. In October his count went from .01 to .04. But we all > know these can jump around a bit. So we just wait and see. > Good luck on your endoscopy. Hope they can find the reason for your > discomfort. > God bless and keep you, > Joyce in IL > > > >> On Jan 21, 2015, at 11:57 AM, 'Icandoallttc' via CMLHope wrote: >> >> Hi Joyce >> How is your hubby and what will he be on now. >> Good luck >> Jeanie >> >> Sent from my iPhone >> >>> On Jan 21, 2015, at 11:58 AM, grammie <joy...@htc.net> wrote: >>> >>> My husband has been taken permanently off Sprycel. He has 32 pills that >>> were purchased before we knew he would be taken off. These are 50 mg pills >>> and were purchased 8/21/14. Cannot mail outside the United States. We >>> hate to see these expensive pills go unused. Please contact me by personal >>> email. >>> joy...@htc.net >>> >>> Joyce in IL >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
