Thanks for the prayers Beth and all. I am hanging in there. As Marty says, "I woke up today." I'm thankful for everyday I get. Marty, I think your kidney is coming soon. Prayers and live to you. And to everyone on this list. If you haven't posted for a while check in and give us updates. Yes we do have those leukies lurking in our blood just waiting for a chance to strike again. This is my third relapse.
Prayers & Blessings Jeanie 18's 🐠🐠 > On Feb 11, 2015, at 9:27 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > I am praying Jeanie...praying praying praying.... your body can do > this....stay positive...and be patient know matter what the results.....only > 16 days!! an hurray for no side effects!!! > > love, Beth > > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Wed, Feb 11, 2015 4:04 pm > Subject: Re: [CMLHope] Just checking in > > Hello everyone. > So glad everyone is checking in. Thanks for all the updates. > This is my 16 th day on ponatinib. No major side effects so far. Going to > doctor tomorrow to get blood done. Also getting a cat scan done. Pray that > my counts are on the way down. > > > Prayers & Blessings Jeanie 18's > > On Feb 11, 2015, at 2:00 PM, "'Marcie Goodman' via CMLHope" > <cmlhope@googlegroups.com> wrote: > >> Hi SusieQ, >> >> Good to catch up with you. I know that same worry when you go from >> undetected to a positive reading. And you are correct that we aren't cured >> even if undetected, just cells hiding due to our TKIs. Hang in there and >> please let us know the results in March >> >> Marcie >> >> Sent from my iPhone >> >> On Feb 11, 2015, at 9:44 AM, Suzieq <sheila.a.wat...@gmail.com> wrote: >> >>> Hello CML Survivors: >>> >>> It's been some time since I stopped by and left word. Thought that I >>> should check on ya'll.....sorry to hear of the troubles you are having >>> Marty. I do hope you receive your Kidney and all goes well. Jeanie...I >>> see you are having a few problems once again and I hope that the doctors >>> can get you back on track. So many newer drugs now than when we all started >>> our journey with Gleevec. >>> >>> My last doctor visit was December 31st. Had really good blood work results >>> and all looked good until I got my BCR-ABL results back. They did not tell >>> me that they were going to use a new lab.....instead of sending it to where >>> they always did, they (Sitemen Cancer Center) are now doing the testing >>> in-house. I knew that the results had come back a lot quicker. Nothing >>> like what I was use to, no graph, nothing. Just said "Positive" & 0.02%. >>> I fell apart. Course this was around 7:00 at night when I had picked up >>> the mail after going to the movies. My husband was out of town. The next >>> morning (Friday), I called and left a message for the doctor to call me >>> back. It was around 4 that afternoon when the NP called me back and we had >>> a nice chat. That's when she told me that "we really can't go by these >>> results since we are using a new lab. And, it was a "more sensitive" >>> test." I asked her if I should up my dosage (remember I have gone from >>> 400mgs. down to 200, & now to 100mgs. since I've been "non-detected" since >>> July '09. She told me no, to stay doing what I've always done and that if >>> I wanted to come back in earlier than the ever six months as normally, I >>> could. So, we set that up where I will go back next month (March) the 25th >>> and be retested. >>> >>> I guess I was so use to seeing that "non-detected" over a long period of >>> time, that it gives one that false belief that we are in total remission >>> and the CML is gone. It's like my husband & I discussed......a few of the >>> leukemic cells are still there all along, just do not show up unless they >>> use deeper tests. This positive test brought me back to reality and >>> reminded me exactly what Dr. Khoury told me in the beginning of my journey, >>> "There is no cure for CML yet." >>> >>> So, there's my story. I guess we will always be in this fight for the rest >>> of our lives. I'm hoping to continue on just the 100mgs., but if I need >>> to go back to the higher dosage, I will. >>> >>> Keep Looking Up, >>> Suzieq >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
