Glad you are back--I hope the test come back good. Benedral makes me nervous for some reason. They said not to put anything on it right now. Been having some eye side effect--seeing flashes and get a headache right after. They say it's an ocular migraine. Thank heavens for friends. Keep fighting.
Prayers & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠. 18,s > On Feb 18, 2015, at 8:24 PM, bkbarney via CMLHope <[email protected]> > wrote: > > > I am back home. Don't know much yet, will find out more news from test > results within a couple of weeks. Jeanie, you hang in there! I wonder if you > can take benadryl..and if that will help your rash- as a reaction to the > Ponatinib? Just a thought?? > and yes Jeanie, my friend came with me. Could not have been there without > them. :) WE get by with a little help from our friends...(good old song! :) B > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Feb 17, 2015 5:25 pm > Subject: Re: [CMLHope] Good news Jeanie > > Good to hear from you Beth. I know you must've worn out. One day at Moffitt > knocks me out. I've never had that many test in one day. > No I never visited the arts center but will. I found the chapel--very nice. > Visited the cafeteria and gift shop. As you walk into the adult senior > oncology clinic there is a Starbucks coffee shop. Smells heavenly!!! > Stay safe and I know you will be happy to go home. Is someone with you? > > Prayers & Blessings Jeanie . 18,s > > On Feb 16, 2015, at 10:30 PM, bkbarney via CMLHope <[email protected]> > wrote: > >> I am so happy for your results as well.....I understand your feelings..I had >> to fast half the day today...and had to drink barium...ugh...but the test >> result for swallowing was fine..so then all was O.K....I wasn't worried >> about the swallow test at all...hopefully I will have good info by >> tomorrow... >> >> Take good care of yourself and know we are all praying daily for >> you.......did you find that lovely creative arts/spiritual center at Moffit >> where you can make lovely things and rest a spell????they have books >> too..just nice atmosphere....take care you....keep us posted....we will do >> the same...Beth >> >> >> -----Original Message----- >> From: 'Icandoallttc' via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Fri, Feb 13, 2015 8:18 am >> Subject: Re: [CMLHope] Good news Jeanie >> >> Hi Beth >> I am praying for your good results. I spent all day at Moffitt yest so I >> know how tiring it can be. >> I found the chapel in between appointments and said prayers for all. >> They had free coffee and pastries and wouldn't you know I had to fast before >> my cat scan hehe. >> I sure was hungry. I had the cat scan where they have to put an IV in and >> dye plus drink that awful contrast drink. >> I was so happy with my results I was numb I believe. >> >> >> Prayers & Blessings Jeanie 18's >> >> On Feb 13, 2015, at 12:28 AM, bkbarney via CMLHope >> <[email protected]> wrote: >> >>> Jeanie!!! Yippee!!!! Happy dances are circling you as we speak!!! >>> >>> Miracles do happen all the time.. >>> >>> So glad SuzieQ you are feeling better....your numbers.....you are going to >>> be fine...me too....we all hate to see any changes in our numbers that >>> aren't positive movement... >>> >>> >>> at the Mayo clinic..just drove in...doc appts tomorrow starting at 6:45 >>> a.m....so good night, will keep you posted..I too am praying for a >>> miracle...lets just pass the magic wand around....:) >>> >>> 18'sBeth >>> >>> >>> -----Original Message----- >>> From: Marty Gartenberg <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Thu, Feb 12, 2015 4:36 pm >>> Subject: Re: [CMLHope] Good news Jeanie >>> >>> Hi Jeanie, >>> >>> What makes you say, (to almost normal)? Gee I have some news for you. They >>> are normal. You also state that it is a miracle, well if you don't already >>> know it you are a miracle! >>> >>> You must understand that things are just meant to be and you are just one >>> of those things. There is an ancient Hebrew word, BASHERT, which means >>> meant to be. >>> >>> I now think that you may realize just why I always end any of my posts with >>> those two numbers. I see that your also using them. Good! >>> >>> 18's, (Symbol for life) >>> >>> Marty >>> >>> PS I am really happy for you and your progress. <35D.gif> HUGS! >>> >>>> On Thu, Feb 12, 2015 at 3:32 PM, 'Icandoallttc' via CMLHope >>>> <[email protected]> wrote: >>>> Platelets down to under 400 and WBC were 7: that is a miracle. >>>> From over a million to almost normal. The meds kicked in. Now worried >>>> they might go to low. Hehe. Hemoglobin went down to 12.8 after holding at >>>> 13. Need to ear some iron foods. >>>> Thanks for prayers. >>>> >>>> Prayers & Blessings Jeanie 18's <emoji_u1f420.png><emoji_u1f420.png> >>>> >>>> On Feb 12, 2015, at 10:57 AM, Suzieq <[email protected]> wrote: >>>> >>>>> Holly: I am so glad to meet someone who also has Dr. Cashen as their >>>>> doctor. I love Dr. Amanda Cashen and her nurse practitioner, Holly. As >>>>> far as their testing goes, I am assuming that they are going to do all >>>>> of it there from now on. I am glad that they don't have to overnight the >>>>> blood any longer, but I feel I need someone to explain their testing to >>>>> me. These numbers were so different than what I was use to seeing before >>>>> when I tested positive. Then, it was always in the thousandths from the >>>>> other place......this was 0.02%. I think that's what upset me so much, >>>>> the not understanding. And, I didn't have anyone to explain it to me. >>>>> Someone (Beth) here asked me if it was on the "International >>>>> Scale"......I don't know. I am not at home right now, (visiting my mom >>>>> in Florida), but I will check when I get home, if I can remember. >>>>> Thank you all for your kind words. I'm in a much better place mentally >>>>> & emotionally today than I was after opening those results. ***smile*** >>>>> God reminded me by bringing that old McKamey song, "The God on the >>>>> mountain, is still God in the valley" that night while I was feeling >>>>> sorry for myself and doing laundry. LOL!! >>>>> >>>>> Thank you all, >>>>> >>>>> Suzieq >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are 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visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send 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