Hi Jeanie,  yes I had it yesterday afternoon and  everything is O. K..But 
when the nurse tried to give me the IV in my upper arm,  I don't do the top 
of hands.  She had a hard time getting the needle in  lot's of scar tissue as 
the blood was running down my arm onto the floor and I'm  ready to pass 
out.  But the second try she got in and I swear she used a  square needle that 
was bend in haft because the pain was unbearable and that  lasted until it 
was time to remove it after the colonoscopy.
 
Now I'm going to see my Florida cancer doctor tomorrow  because I found a 
lump in my left breast and men can get cancer their also, it  never ends does 
it.
 
Will keep everyone up to date as soon as I found out what's  going on..
 
Stay well everyone.
 
greeni
 
 
In a message dated 3/19/2015 2:24:38 P.M. Eastern Daylight Time,  
[email protected] writes:

Have you had your colonoscopy Greenie?   Let us know the results if  you 
have them.  
It's about the only test I haven't  had. 
Prayers & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠.  18,s

On Mar 10, 2015, at 10:26 PM, "'Marcie Goodman' via CMLHope" 
<[email protected]_ (mailto:[email protected]) >  wrote:




Greenie, I pray that all will be well with your tests and I'm sure it  
will. You are a warrior and with Grace by your side, there is nothing you  
can't 
overcome. Please let us know how it turns out. I'll be thinking about  you 
and saying prayers. 


Marcie

Sent from my iPhone

On Mar 10, 2015, at 10:06 PM, Myvety2k via CMLHope 
<[email protected]_ (mailto:[email protected]) >  wrote:



 
To all my CML friends and care takers,  thank you  for your replies and 
keeping me in your thoughts  Bless you  all,
 
greenie
 
 
In a message dated 3/10/2015 6:49:20 P.M. Eastern Daylight Time, 
[email protected]_ (mailto:[email protected])   writes:

Thanks so much Beth.    Your input means so much to me.  I am fighting this 
dry skin--feels like leather. I am blond and  fair and have always had dry 
and oily skin.    I've got my eye  doctor's check up next week--hope it's 
temporary and not doing to much  damage.  I pray that you resolve your health 
problems soon--hang in  there and know we are praying for you and all.  

Prayers  & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠. 18,s

On Mar 10, 2015, at 5:29 PM, bkbarney via CMLHope 
<[email protected]_ (mailto:[email protected]) >  wrote:



Dear Greenie, I hope your  test results come out O.K., and they can find a 
simple explanation for  your weight loss. So sorry you are going through the 
stress of all  this...thinking of you....  


And Richard, as Sherri said, great news about your hemoglobin and  the 
collaboration of your docs on your behalf. Colonoscopy sounds  
reasonable...just 
to rule out and give you peace of mind. Are you more  tired than usual???


Stay positive and stay strong. Keep us posted...
And Sherri,  so sorry you had to have a transfusion, but I hope it made you 
feel  better and stabilized your counts..


Still praying for Marty.
Jeannie, I know it's been a rough two months on ponatinib and you  have 
felt miserable...I hope it gets better with time, and maybe, you  can take less 
of a dose in months, years to come, if your doc  recommends it to help you 
with the toxicity. thinking of you...


Not a lot new to report here....still working on understanding  and 
treating muscle/ weakness/ elevated CPK etc...issues..will do more  blood work 
to 
rule out any other possible cancers lurking, but I don't  think that is 
it..at least I, like Greenie, sure hope not.


18's to all


Beth

-----Original  Message-----
From: Myvety2k via CMLHope <[email protected]_ 
(mailto:[email protected]) >
To:  cmlhope <[email protected]_ (mailto:[email protected]) >
Sent:  Tue, Mar 10, 2015 5:31 am
Subject: Re: [CMLHope] CML visit


 
Hi  Group, As of last Tuesday I have lost 5  pounds and I don't know why.  
Been eating O. K. so I went to my  Reg. Doctor yesterday and I'm going over 
to get some blood work at 7  a.m.  Comprehensive metabolic panel, cbc (no 
diff), vitamin B12  level and TSH, Ultrasensitive.  Also he want's me to have 
a  colonoscopy to screen for colon cancer Friday.  I really don't  need 2 
different kinds of cancer so I'm worried.  Will let you  all know what 
happens. 

greenie 

 
In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time,  
[email protected]_ (mailto:[email protected])   writes: 

 
Richard,  That is  great news about the your haemoglobin. I also think it's 
great that  your drs are talking to one another.  That is so  important.
Last week, I had to get a transfusion as my counts  were so low. I went to 
my onc and he did the usual blood draw and my  WBC was 2.4.  That was enough 
to send me over to the hospital  for type and cross match and a 
transfusion.  


I too am eager to hear  about Marty and pray for him everyday.   


Sherri  



On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie  Goodman' via CMLHope 
<[email protected]_ (mailto:[email protected]) > wrote: 


Richard, excellent news and I'm happy to hear that your  hemoglobin has 
stabilized.  Glad that your doctors are in  sync, too, because that will 
certainly make your life easier. Yay!  


Marcie 

Sent from my iPhone 
 
 

On Mar 10, 2015, at 12:15 AM, Richard H < [email protected]_ 
(mailto:[email protected]) > wrote: 




 
I visited my VA ONC  today and both ONCs are bck on the same page.  The  
better news is it appears that my hemoglobin has stabilized at  10.5. we are 
going to move forward with the testing program  until the end of May.  
Another piece of news that makes me  very happy is that both ONC's works at 
Kansas 
University Cancer  Center. The VA contracts it's Doctors and Fellows 
(Doctors in  training).  They can access all my records at both offices  with 
the 
new Cerner Medical Systems that are being installed  world wide. 

I am anxiously waiting for more news from  Marty, and him keeping him my 
prayers. 

Richard H.  



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