Thanks Marty. I will talk to my doctor about it. Get better. ❤️❤️ Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015
> On Apr 25, 2015, at 7:41 PM, Marty Gartenberg <[email protected]> wrote: > > Hi Jeanie, > > I had the same problem after my kidney transplant. My pulse was beating in > the 145 and sometimes higher. The doctor gave me Cartizem and now my heart > beats are normal but even more my blood pressure is just about perfect. > > 18's, > > Marty > >> On Sat, Apr 25, 2015 at 6:24 PM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> Hi every one, >> I hope this Friday finds you guys all keeping the faith and doing well. >> >> I have been taking ponatinib now for 4 months. You are supposed to reach a >> good response in 6 months with a 12 month steady response. My blood is >> almost back to normal but I have had a lot of side effects. >> >> Rash >> Dry skin. Bad >> Rash >> High blood pressure >> Constipation >> Headaches >> >> There is a chance of blood clots and heart problems and more. >> >> The blood pressure meds don't work well with me and I have tried a lot. Any >> suggestions? >> >> Hang I'm there Marty. Maybe next year we will both feel like traveling the >> world. >> >> Prayers & Blessings Jeanie <emoji_u1f41f.png><emoji_u1f41f.png>18,s >> Dx 1/2004 >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> >>> On Mar 10, 2015, at 6:31 AM, Myvety2k via CMLHope >>> <[email protected]> wrote: >>> >>> Hi Group, As of last Tuesday I have lost 5 pounds and I don't know why. >>> Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going over >>> to get some blood work at 7 a.m. Comprehensive metabolic panel, cbc (no >>> diff), vitamin B12 level and TSH, Ultrasensitive. Also he want's me to >>> have a colonoscopy to screen for colon cancer Friday. I really don't need >>> 2 different kinds of cancer so I'm worried. Will let you all know what >>> happens. >>> >>> greenie >>> >>> In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time, >>> [email protected] writes: >>> Richard, That is great news about the your haemoglobin. I also think it's >>> great that your drs are talking to one another. That is so important. >>> Last week, I had to get a transfusion as my counts were so low. I went to >>> my onc and he did the usual blood draw and my WBC was 2.4. That was enough >>> to send me over to the hospital for type and cross match and a transfusion. >>> >>> I too am eager to hear about Marty and pray for him everyday. >>> >>> Sherri >>> >>>> On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope >>>> <[email protected]> wrote: >>>> Richard, excellent news and I'm happy to hear that your hemoglobin has >>>> stabilized. Glad that your doctors are in sync, too, because that will >>>> certainly make your life easier. Yay! >>>> >>>> Marcie >>>> >>>> Sent from my iPhone >>>> >>>>> On Mar 10, 2015, at 12:15 AM, Richard H <[email protected]> wrote: >>>>> >>>>> I visited my VA ONC today and both ONCs are bck on the same page. The >>>>> better news is it appears that my hemoglobin has stabilized at 10.5. we >>>>> are going to move forward with the testing program until the end of May. >>>>> Another piece of news that makes me very happy is that both ONC's works >>>>> at Kansas University Cancer Center. The VA contracts it's Doctors and >>>>> Fellows (Doctors in training). They can access all my records at both >>>>> offices with the new Cerner Medical Systems that are being installed >>>>> world wide. >>>>> >>>>> I am anxiously waiting for more news from Marty, and him keeping him my >>>>> prayers. >>>>> >>>>> Richard H. >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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