Suzieq, glad to here that doing O. K. I sure don't miss the tornado warnings but I did like living outside of Springfield. greenie In a message dated 4/22/2015 2:55:08 P.M. Eastern Daylight Time, [email protected] writes:
Hello my fellow CML Survivors: Suzieq here.....checking in with all and hoping to find you as well as can be. I check in and read your posts now and then, but haven't posted in a while. Sorry about that, just been caught up in life, I guess. (smiling) Well, I think I posted that my last BRC-ABL results were very different and I was upset and called the doctor asking if we should change things and such and such. It's been 11 years this past February since I was put on Gleevec. I started on 400mgs. and after 5 years received my first "non detected". It stayed that way until this past December 31st and the results I received said "positive" at 0.02%. I think I was in shock for a day or so. Anyway, after the nurse practitioner for my doctor called me back, she explained that they were using a different lab now to do their testing and we really couldn't go by that result until we string several together. She said that this lab was using a more sensitive test to do their BCR-ABL's than the other. So, I said to her, "what you are saying is that I've probably always showed this, but their test just didn't pick it up?" She said, "Yes, most likely". Anyway, we decided to set things up on me going every 4 months again instead of the 6. So, I went back March25th. Blood counts all looked extremely good as did the Dec. ones did. I have been sitting here waiting and waiting and waiting for her to mail me the BCR results. Nothing came, so I called. Well, she called me yesterday afternoon to inform me that apparently the lab didn't draw the blood to run the test. ???? She said, "Sheila, you have been doing so well, I think we're good to stay on the 6 months like we were doing. You are doing okay, nothing to be fretting about." So, I thought to myself, "Lord, I just leave it in your hands and I'm going to continue taking my medicine and not worry about this anymore!" I feel like a weight was lifted off my shoulders. I told the nurse practitioner that my appointment was for last of July, so we would just wait and do it then. I do believe when we have so many "negative" responses built up in a row, it gives us a false sense of being cured or wellness. I think we forget that this disease is for life and that our TKI's just block the diseased cells, they don't cure us. My new saying that I learned from seeing it on the back of some man's t-shirt at the cancer center last December is "Breath in, Breath out, Move forward". That's what I do now, each and every day. Marty, I see that you are having some struggles and I keep you in my thoughts and prayers. You hang in there, don't give up, and keep on "moving forward". Greenie, I was stuck in Florida (Port Richey) with my mom for the month of February into the 1st week of March. LOL.....My husband kept telling me to stay, seemed here where we live in Missouri, we had the worst month of February for snow. Every time I went to return, it either snowed heavy here or between here and there so I couldn't get through. lol But, I enjoyed having all that time with my mother. Ya'll keep looking up, Love and prayers, Suzieq -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
