Hi Joyce,

I see that your a "night owl" by getting up so early in the morning. This
tells me something. You have a lot on your mind but for good reason. When
something is running through my mind I also have difficulties sleeping and
will get up early in the morning. Sometimes I just lay in bed and my mind
seems to work overtime, and most of this time I just think about things.
Some good but also some bad.

Joyce this is just human behavior and I have tried to learn how to control
it. As I have mentioned many times already this disease called CML is both
a disease of not only the body but the mind itself, and I found a way to
try and deal with it. Remember that I just went through a lot having the
kidney transplant as well as that nasty operation to my prostate with many
problems as well as many hospitalizations.

I am no different then you or anybody else and I do have my times that I
become frightened about what is to come up later. However I try to always
be upbeat and try to think things out, and usually do. It took me many
years to be able to know how to deal with things and I would always
remember something that I have passed onto this group as well as a few more
CML sites.

Even though you and others may have already seen it I would like to send it
to you once again. You may want to print it out and whenever you should
have any doubts just pick it up and read it. It always helps me and I think
that it will also help you as well.

By the way you know that I am praying for you. I also know that you and
many others have also prayed for me. Don't you worry GOD does listen to all
of our prayers, and I know this for a fact. I already told everyone about
what happened to me when that Reverend that I knew for over four years at
the dialysis center where his wife was also a patient.

I come in there on a Monday morning waiting in the waiting room to go into
the dialysis clinic when he comes over to me and says, Marty today you will
have a miracle happen to you. Then the next few seconds, no more then five
seconds I was called to go into the dialysis clinic for my treatment. I was
just about to open the door to the clinic, my hand wasn't even yet on the
door knob when the phone rings in the office. Remember it was only five
seconds. They told me that the call was from The Cleveland Clinic and they
wanted to talk to me.

I go over to the sliding window from the office and it was my kidney
transplant coordinator. She tells me that there is a perfectly matched
kidney for me, and I should go and finish my dialysis then go home and
rest. Then be at The Cleveland Clinic at about midnight, and my transplant
surgery would begin at 7:30 that same morning.

Now how did that Reverend ever know that this would take place??? Joyce I
know that miracles do happen because it happened to me not once but twice
in my life. My bone marrow transplant as well as my kidney transplant, and I
am sure it will happen for you as well.

All that you need to do is to *expect the best and focus on that*. Keep
this CML and everything else out of your mind.

18's to you Joyce,

Marty

*EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF
CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN
YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET
(MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.*

*WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF
MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING
INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU
THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.*

*EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE
BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE
SUCCESSFUL OUTCOME...*

*FOCUS...*

[?]



On Mon, Jun 22, 2015 at 2:06 AM, Joyce Mesnarich <[email protected]> wrote:

> Jeanie,
> So far I have had no side effects from the anti-hormone pills to shrink
> the tumors.  I don't know if they may come on after I have taken the meds
> longer or not.  I am to take them for 3 months.  I am praying they do their
> job and then it will be on to the surgery part of the treatment, followed
> by radiation.  Hopefully not chemo.  Thank you for your prayers and
> concern.  This group is so uplifting.
>        Joyce in IL
>
>
>
> On Jun 21, 2015, at 4:36 PM, 'Icandoallttc' via CMLHope wrote:
>
> Looks like you've had it all. So sorry for the diagnosis.  I know you are
> strong and we are here for you always. Are you having bad side effects from
> the pills to shrink the tumors?
>
> Prayers & Blessings Jeanie [image: 🐟][image: 🐟]18,s
> Dx 1/2004
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jun 21, 2015, at 12:13 AM, Joyce Mesnarich <[email protected]> wrote:
>
> Jeanie,
> I did not have a ct scan.  At least not yet.  I have had mammograms, ultra
> sounds and MRIs.  I had 2 different biopsies, both confirming breast
> cancer.  I am now taking a pill to hopefully shrink the tumors before
> surgery. Thanks for your prayers and concern.
>         Joyce in IL
>
>
> On Jun 20, 2015, at 9:13 AM, 'Icandoallttc' via CMLHope wrote:
>
> Oh no Joyce.  So sorry about the breast cancer!!
> Did they do a ct scan on your breast?
> Good luck on all the test.  My prayers are with you.
> Maybe you could go on the ponatinib if the other tki doesn't work.
> I have had complete positive response in 6 months.
> Have faith and courage. I am 77.  [image: ❤]️[image: ❤]️
>
> Prayers & Blessings Jeanie [image: 🐟][image: 🐟]18,s
> Dx 1/2004
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jun 19, 2015, at 11:54 PM, Joyce Mesnarich <[email protected]> wrote:
>
> Jeanie,
> So happy that your new TKI is working.  On July 9 my hubby and I will go
> to see Dr Talpaz in MI to see if his new TKI, bosulif, is working.  In
> April it was not doing anything and they doubled his dose to 100 mg.  We
> are hoping that this does the trick.
> Best of luck on your upcoming ct scan.  Seems like it is always something,
> doesn't it?
> I was recently dx with breast cancer, so I am going through a bunch of
> tests, biopsies, etc. to see what my next step is.  I am 75, so this is not
> as big a deal to me as if I was younger.  But I will do whatever is
> necessary to fight this.
> Fight on, warriors.
>        Joyce in IL
>
>
> On Jun 19, 2015, at 12:43 PM, 'Icandoallttc' via CMLHope wrote:
>
> Hello to everyone and thanks for the uplifting.
> This tki is really working.
> Praise The Lord!!!
>
> Going to have a ct scan soon of my thorax to make sure everything is good.
>
> Happy Friday!!!
>
> Prayers & Blessings Jeanie [image: 🐟][image: 🐟]18,s
> Dx 1/2004
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jun 18, 2015, at 4:54 PM, bkbarney via CMLHope <
> [email protected]> wrote:
>
> Jeannie..what FABULOUS NEWS!!!! :)    You rock, I know this has been a
> very very difficult journey on ponatinib....it's so nice to hear that it is
> doing it's job, and that you are adjusting to the medication...I am just
> soooo happy for you because I know it's been a really challenging time.
> your resiliency and staying your course with a positive outcome is a real
> lift for all of us struggling out here....May your good news continue for
> decades to come...
>
>  Hugs and 18's,
> Beth
>
> -----Original Message-----
> From: 'Icandoallttc' via CMLHope <[email protected]>
> To: cmlhope <[email protected]>
> Sent: Thu, Jun 18, 2015 3:43 pm
> Subject: [CMLHope] Jeans Moffitt visit
>
>  Blood test was great.  All counts normal.   Don't have to go back for 3 
> months.
> Yahoo!!!
>
> Prayers & Blessings Jeanie 18,s
> Dx 1/2004
> Started Gleevec
> 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib
> January 2015
> Dr Balducci Moffitt Cancer Center
>
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