Thanks Marty.
Some years ago I also copied "The Patient's Prayer" that you posted. I love
that prayer. Thank you for all your support.
Joyce in IL
On Jun 22, 2015, at 6:53 AM, Marty Gartenberg wrote:
> Hi Joyce,
>
> I see that your a "night owl" by getting up so early in the morning. This
> tells me something. You have a lot on your mind but for good reason. When
> something is running through my mind I also have difficulties sleeping and
> will get up early in the morning. Sometimes I just lay in bed and my mind
> seems to work overtime, and most of this time I just think about things. Some
> good but also some bad.
>
> Joyce this is just human behavior and I have tried to learn how to control
> it. As I have mentioned many times already this disease called CML is both a
> disease of not only the body but the mind itself, and I found a way to try
> and deal with it. Remember that I just went through a lot having the kidney
> transplant as well as that nasty operation to my prostate with many problems
> as well as many hospitalizations.
>
> I am no different then you or anybody else and I do have my times that I
> become frightened about what is to come up later. However I try to always be
> upbeat and try to think things out, and usually do. It took me many years to
> be able to know how to deal with things and I would always remember something
> that I have passed onto this group as well as a few more CML sites.
>
> Even though you and others may have already seen it I would like to send it
> to you once again. You may want to print it out and whenever you should have
> any doubts just pick it up and read it. It always helps me and I think that
> it will also help you as well.
>
> By the way you know that I am praying for you. I also know that you and many
> others have also prayed for me. Don't you worry GOD does listen to all of our
> prayers, and I know this for a fact. I already told everyone about what
> happened to me when that Reverend that I knew for over four years at the
> dialysis center where his wife was also a patient.
>
> I come in there on a Monday morning waiting in the waiting room to go into
> the dialysis clinic when he comes over to me and says, Marty today you will
> have a miracle happen to you. Then the next few seconds, no more then five
> seconds I was called to go into the dialysis clinic for my treatment. I was
> just about to open the door to the clinic, my hand wasn't even yet on the
> door knob when the phone rings in the office. Remember it was only five
> seconds. They told me that the call was from The Cleveland Clinic and they
> wanted to talk to me.
>
> I go over to the sliding window from the office and it was my kidney
> transplant coordinator. She tells me that there is a perfectly matched kidney
> for me, and I should go and finish my dialysis then go home and rest. Then be
> at The Cleveland Clinic at about midnight, and my transplant surgery would
> begin at 7:30 that same morning.
>
> Now how did that Reverend ever know that this would take place??? Joyce I
> know that miracles do happen because it happened to me not once but twice in
> my life. My bone marrow transplant as well as my kidney transplant, and I
> am sure it will happen for you as well.
>
> All that you need to do is to expect the best and focus on that. Keep this
> CML and everything else out of your mind.
>
> 18's to you Joyce,
>
> Marty
>
> EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE.
> TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF
> YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER
> MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.
>
> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF
> MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING
> INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU
> THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.
>
> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE
> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE
> SUCCESSFUL OUTCOME...
>
> FOCUS...
>
> <35D.gif>
>
>
>
>
> On Mon, Jun 22, 2015 at 2:06 AM, Joyce Mesnarich <[email protected]> wrote:
> Jeanie,
> So far I have had no side effects from the anti-hormone pills to shrink the
> tumors. I don't know if they may come on after I have taken the meds longer
> or not. I am to take them for 3 months. I am praying they do their job and
> then it will be on to the surgery part of the treatment, followed by
> radiation. Hopefully not chemo. Thank you for your prayers and concern.
> This group is so uplifting.
> Joyce in IL
>
>
>
> On Jun 21, 2015, at 4:36 PM, 'Icandoallttc' via CMLHope wrote:
>
>> Looks like you've had it all. So sorry for the diagnosis. I know you are
>> strong and we are here for you always. Are you having bad side effects from
>> the pills to shrink the tumors?
>>
>> Prayers & Blessings Jeanie <emoji_u1f41f.png><emoji_u1f41f.png>18,s
>> Dx 1/2004
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>>
>> On Jun 21, 2015, at 12:13 AM, Joyce Mesnarich <[email protected]> wrote:
>>
>>> Jeanie,
>>> I did not have a ct scan. At least not yet. I have had mammograms, ultra
>>> sounds and MRIs. I had 2 different biopsies, both confirming breast
>>> cancer. I am now taking a pill to hopefully shrink the tumors before
>>> surgery. Thanks for your prayers and concern.
>>> Joyce in IL
>>>
>>>
>>> On Jun 20, 2015, at 9:13 AM, 'Icandoallttc' via CMLHope wrote:
>>>
>>>> Oh no Joyce. So sorry about the breast cancer!!
>>>> Did they do a ct scan on your breast?
>>>> Good luck on all the test. My prayers are with you.
>>>> Maybe you could go on the ponatinib if the other tki doesn't work.
>>>> I have had complete positive response in 6 months.
>>>> Have faith and courage. I am 77. <emoji_u2764.png>️<emoji_u2764.png>️
>>>>
>>>> Prayers & Blessings Jeanie <emoji_u1f41f.png><emoji_u1f41f.png>18,s
>>>> Dx 1/2004
>>>> Started Gleevec 2/2004
>>>> Started Tasigna 9/2009
>>>> Started Sprycel 11/2009
>>>> Started Ponatinib January 2015
>>>> Dr Balducci Moffitt Cancer Center
>>>>
>>>> On Jun 19, 2015, at 11:54 PM, Joyce Mesnarich <[email protected]> wrote:
>>>>
>>>>> Jeanie,
>>>>> So happy that your new TKI is working. On July 9 my hubby and I will go
>>>>> to see Dr Talpaz in MI to see if his new TKI, bosulif, is working. In
>>>>> April it was not doing anything and they doubled his dose to 100 mg. We
>>>>> are hoping that this does the trick.
>>>>> Best of luck on your upcoming ct scan. Seems like it is always
>>>>> something, doesn't it?
>>>>> I was recently dx with breast cancer, so I am going through a bunch of
>>>>> tests, biopsies, etc. to see what my next step is. I am 75, so this is
>>>>> not as big a deal to me as if I was younger. But I will do whatever is
>>>>> necessary to fight this.
>>>>> Fight on, warriors.
>>>>> Joyce in IL
>>>>>
>>>>>
>>>>> On Jun 19, 2015, at 12:43 PM, 'Icandoallttc' via CMLHope wrote:
>>>>>
>>>>>> Hello to everyone and thanks for the uplifting.
>>>>>> This tki is really working.
>>>>>> Praise The Lord!!!
>>>>>>
>>>>>> Going to have a ct scan soon of my thorax to make sure everything is
>>>>>> good.
>>>>>>
>>>>>> Happy Friday!!!
>>>>>>
>>>>>> Prayers & Blessings Jeanie <emoji_u1f41f.png><emoji_u1f41f.png>18,s
>>>>>> Dx 1/2004
>>>>>> Started Gleevec 2/2004
>>>>>> Started Tasigna 9/2009
>>>>>> Started Sprycel 11/2009
>>>>>> Started Ponatinib January 2015
>>>>>> Dr Balducci Moffitt Cancer Center
>>>>>>
>>>>>> On Jun 18, 2015, at 4:54 PM, bkbarney via CMLHope
>>>>>> <[email protected]> wrote:
>>>>>>
>>>>>>> Jeannie..what FABULOUS NEWS!!!! :) You rock, I know this has been a
>>>>>>> very very difficult journey on ponatinib....it's so nice to hear that
>>>>>>> it is doing it's job, and that you are adjusting to the medication...I
>>>>>>> am just soooo happy for you because I know it's been a really
>>>>>>> challenging time. your resiliency and staying your course with a
>>>>>>> positive outcome is a real lift for all of us struggling out
>>>>>>> here....May your good news continue for decades to come...
>>>>>>>
>>>>>>> Hugs and 18's,
>>>>>>> Beth
>>>>>>>
>>>>>>> -----Original Message-----
>>>>>>> From: 'Icandoallttc' via CMLHope <[email protected]>
>>>>>>> To: cmlhope <[email protected]>
>>>>>>> Sent: Thu, Jun 18, 2015 3:43 pm
>>>>>>> Subject: [CMLHope] Jeans Moffitt visit
>>>>>>>
>>>>>>> Blood test was great. All counts normal. Don't have to go back for 3
>>>>>>> months.
>>>>>>> Yahoo!!!
>>>>>>>
>>>>>>> Prayers & Blessings Jeanie 18,s
>>>>>>> Dx 1/2004
>>>>>>> Started Gleevec
>>>>>>> 2/2004
>>>>>>> Started Tasigna 9/2009
>>>>>>> Started Sprycel 11/2009
>>>>>>> Started Ponatinib
>>>>>>> January 2015
>>>>>>> Dr Balducci Moffitt Cancer Center
>>>>>>>
>>>>>>> --
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