Sounds like you are in good hands, Jeanie. Sz
Sent from my Sprint phone
------ Original message------From: 'Icandoallttc' via CMLHope Date: Tue, Jun
30, 2015 11:28 AMTo: [email protected];Subject:Re: [CMLHope] Platelets
Hi Susan. I tried to see him but had trouble with the appointment. My first
onc recommended dr balducci. I have been seeing him since 2009. He is the head
of the senior oncology at Moffitt. Great doctor!! He specializes in breast
cancer. I have a great team at Moffitt. God bless them every one. Thanks.
Prayers & Blessings Jeanie 🐟🐟18,sDx 1/2004Started Gleevec 2/2004Started Tasigna
9/2009Started Sprycel 11/2009Started Ponatinib January 2015Dr Balducci Moffitt
Cancer Center
On Jun 29, 2015, at 2:18 PM, "'Susan Zimmerman' via CMLHope"
<[email protected]> wrote:
Pete,When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is
GREAT!!!
18'S,
Susan F. Zimmerman
-----Original Message-----
From: Pete Pabon <[email protected]>
To: cmlhope <[email protected]>
Sent: Mon, Jun 15, 2015 12:36 am
Subject: RE: [CMLHope] Platelets
#AOLMsgPart_2_4089d2fc-b1c2-4933-833d-77b508525c5c td{color: black;}
.aolReplacedBody .hmmessage P { margin:0px; padding:0px } .aolReplacedBody
body.hmmessage { font-size: 12pt; font-family:Calibri } Jeanie,who do you see
at Moffitt?
Date: Sun, 14 Jun 2015 20:23:18 -0700
From: [email protected]
To: [email protected]
Subject: Re: [CMLHope] Platelets
I do understand Skip. I have a sister that has been anemic all her
life, and she is doing fine at 5. I have been having problems every time I get
close 7.9. Just again shows how we each find our spot that works for us.
Richard H.
On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote:
I have had very low platelets and ANC and RBC and plus some others plus high
Ferritin counts over 7000 most weeks I have critical platelets and white counts
of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I
fell fine been doing this for 37 years I tell you this as I want all to know
Low counts should looked but not to spoil your day Zevie was astounded when I
send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of
0.20 hooe this helps Skip Dx 1977
Sent from Yahoo Mail on Android
From:"'Icandoallttc' via CMLHope" <
[email protected]>
Date:Tue, May 19, 2015 at 9:01 AM
Subject:Re: [CMLHope] Platelets
I also have problems with platelets and WBC.
They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We
are all unique in how we respond to the tkis.
Moffitt tomorrow. I am hoping for good results.
5 months on ponatinib.
Prayers & Blessings Jeanie 18,s
Dx 1/2004 Started Gleevec 2/2004
Started Tasigna 9/2009 Started
Sprycel 11/2009 Started Ponatinib January 2015
On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan <
[email protected]> wrote:
I have problems
with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel.
With Sprycel, platelet counts go down. Started with 140mg per day and now
taking 50mg per day. One moth of Sprycel medication and two months rest for
platelet recovery. This is how current medication is going on. I take papaya
leaf tea everyday to improve platelets.
On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS
<[email protected]> wrote:
Does anyone have problems maintaining their platelet level?
Mine fall down to almost ZERO, which is a dangerous
place to be. I am covered with big purple bruises and petechiae and look like I
have been in a bar fight. Even a light scratch on my skin brings the blood to
the surface. It is called Thrombocytopenia. My red cells also plummet and I had
6 blood transfusions last week. My
confidence waivers a little as it seems they don't really know what to do about
me. I have lots of complications. More specialists on the horizon, but every
step forward is followed by 3 steps back. I am on massive prednisone for the
moment. Can anyone share info on
this? Angie in Canada....
Gleevec pioneer since 2001
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