Hi Marty, just saw the post that you had a stroke I know you will get a full recovery. greenie In a message dated 7/3/2015 7:00:34 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes:
Hi Marty. Hang in there. Both my grandmother and mother had strokes in their 70s. They both lived to almost 90. This new chemo I take has a side effect of blood clots and strokes. Pill and faith. Praying for you daily. When the group reads this message let us bow our heads in prayer for Marty and everyone.❤️❤️ Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jul 2, 2015, at 9:47 PM, Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) > wrote: Hi. Susan unfortunately i had a stroke. getting better. 18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -----Original Message----- From: Pete Pabon <_nycotb@hotmail.com_ (mailto:nyc...@hotmail.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets Jeanie,who do you see at Moffitt? ____________________________________ Date: Sun, 14 Jun 2015 20:23:18 -0700 From: _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Subject: Re: [CMLHope] Platelets I do understand Skip. I have a sister that has been anemic all her life, and she is doing fine at 5. I have been having problems every time I get close 7.9. Just again shows how we each find our spot that works for us. Richard H. On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: I have had very low platelets and ANC and RBC and plus some others plus high Ferritin counts over 7000 most weeks I have critical platelets and white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I fell fine been doing this for 37 years I tell you this as I want all to know Low counts should looked but not to spoil your day Zevie was astounded when I send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of 0.20 hooe this helps Skip Dx 1977 _Sent from Yahoo Mail on Android_ (https://overview.mail.yahoo.com/mobile/?.src=Android) ____________________________________ From:"'Icandoallttc' via CMLHope" < cml...@googlegroups.com> Date:Tue, May 19, 2015 at 9:01 AM Subject:Re: [CMLHope] Platelets I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib. Prayers & Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan < graga...@gmail.com> wrote: I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per day and now taking 50mg per day. One moth of Sprycel medication and two months rest for platelet recovery. This is how current medication is going on. I take papaya leaf tea everyday to improve platelets. On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <esd...@rogers.com> wrote: Does anyone have problems maintaining their platelet level? Mine fall down to almost ZERO, which is a dangerous place to be. I am covered with big purple bruises and petechiae and look like I have been in a bar fight. Even a light scratch on my skin brings the blood to the surface. It is called Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions last week. My confidence waivers a little as it seems they don't really know what to do about me. I have lots of complications. More specialists on the horizon, but every step forward is followed by 3 steps back. I am on massive prednisone for the moment. Can anyone share info on this? Angie in Canada.... Gleevec pioneer since 2001 -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------ ------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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