Hi Beth and good to hear from you. How are you? I am in my 7th month of ponatinib. Dried my skin out and my hair is still falling out but put my blood back where it needs to be.
Heart attacks and blood clots are some of the side effects. Sad but that's what we hAve to live with on these tkis. I will fight on. Let us know how you are. ❤️❤️ My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jul 22, 2015, at 12:16 PM, Joyce Mesnarich <[email protected]> wrote: > > Hello everyone. I have not had time to contribute for awhile. But I must > let you all know the results of my husband's PCR at his last visit to Dr > Talpaz. He was taken off Sprycel due to pleural effusion and we were hoping > his undetectable would hold....but it did not. He was subsequently put on > bosulif and not showing much improvement after 3 months. So his dosage was > changed from 100 mg to 200 mg. And now, after 3 more months, his PCR went > from 8.7 to 0.127!! Hopefully in another 3 months he will once again reach > undetectable. > > The downside of his test results is that the liver function tests have > increased a lot. The doctor will not really say that bosulif is to blame, > but nothing else has changed. Has anyone of you CML warriors had any > problems with the liver while on TKI's? Was there any treatment to help the > liver? > > God bless you all. > > Joyce in IL > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
