Hello to all our CML Friends in this group. Nick and I quietly celebrated 55
years together Friday. We're thankful for the LMH Oncology Department Dr.
Stein and all the nursing staff who have kept Nick going and worked with him
and us for these 12 years. We send each of you special greetings and prayers,
too. Yes, Jeannie, it's faith and pills. And people praying for each other.
Today after church there was a blood drive to help replace blood used by a
17year old who is fighting Non-Hodgkin's Lymphoma. I hope lots of people
signed up and donated.
Hope you have a lovely holiday, John and wife. Joyce, hope you find an
Oncologist who listens and cares for you and your CML needs. Greenie, we
haven't had no-see-ums, but boy! have we had chiggers this year!!! Next, I've
got to go out and pull poison ivy from steps and trees. Probably tomorrow. As
ever Elizabeth & Nick
On Sunday, August 30, 2015 5:17 AM, "[email protected]"
<[email protected]> wrote:
| [email protected] | Google Groups | |
Topic digest
View all topics
- Thanks - 2 Updates
- John - 3 Updates
- Oct BCR-ABL - 1 Update
- August 2015 - Advances in managing and treating lymphedema - 1 Update
Thanks
| Suzieq <[email protected]>: Aug 29 02:11PM -0700
Joyce: I go to Sitemen Cancer Center at the Barne's Jewish Hospital and
Washington University School of Medicine. My doctor is Dr. Amanda Cashen.
I know she treats many CML patients, not sure about being a CML
specialist. I checked her out when the doctor I had previous to her left
to go back into research and she did her clinicals under my original doctor
that I started out with at Sitemen, Dr. Hannah Koury. Dr. Koury was the
greatest.....but I only had him for about six months when he left to go to
Emory University hospital in Atlanta to set up a Hematology/Oncology Dept.
like Sitemen has. That was back in 2004..... After him, I saw Dr.
Vig.......now he may be a specialist, because after about my 3rd or 4th
visit with him, he handed me off to another (the one who went back into
research) saying that I was not "sick enough", that he only saw those CML
patients who were in trouble or having many problems. Once I got Dr.
Cashen, I've been very happy with her. She is very compassionate and
she'll sit there and talk to me. I also see her nurse practitioner, Holly,
almost as much as her. I love them both and would recommend them to
anyone. There is a Dr. Depersio within the group of
Hematologist/Oncologists that has been listed in the top 100 doctors & I've
heard that those who see him are happy with him. I hope this answers your
questions. I am very happy going to the Cancer Center....they have an
awesome set up if one needs a BMB done, will give you drugs if you need
them for the BMB. I've never had a problem with the lab department, they
are very good at what they do, you don't have long waits.
Greenie: I certainly sympathize with you and the no-see-ems! LOL I
hate them as much as the love bugs that get all over the front of the car
when driving down. Awful!
Jeanie: You keep fighting, girl! I also know what you mean about the dry
skin. I have places on my arms of dry skin and my legs are rough as well.
I rubbed my hands over my legs and thought to myself, this is almost like
sand paper in places. I am going to try rubbing them with Coconut Oil.
I've heard a lot of good stuff about that.
Oh and Joyce, I don't plan on leaving CML Hope. I love it here. :)
Suzieq
|
| [email protected]: Aug 29 05:30PM -0400
Yea, I walked out to the mail box this afternoon and one got me. Must be
that Jewish, Irish, English blood that runs through my veins.
greenie
In a message dated 8/29/2015 5:11:51 P.M. Eastern Daylight Time,
[email protected] writes:
Joyce: I go to Sitemen Cancer Center at the Barne's Jewish Hospital and
Washington University School of Medicine. My doctor is Dr. Amanda Cashen.
I know she treats many CML patients, not sure about being a CML
specialist. I checked her out when the doctor I had previous to her left to go
back
into research and she did her clinicals under my original doctor that I
started out with at Sitemen, Dr. Hannah Koury. Dr. Koury was the
greatest.....but I only had him for about six months when he left to go to
Emory
University hospital in Atlanta to set up a Hematology/Oncology Dept. like
Sitemen
has. That was back in 2004..... After him, I saw Dr. Vig.......now he may
be a specialist, because after about my 3rd or 4th visit with him, he
handed me off to another (the one who went back into research) saying that I
was not "sick enough", that he only saw those CML patients who were in
trouble or having many problems. Once I got Dr. Cashen, I've been very happy
with her. She is very compassionate and she'll sit there and talk to me. I
also see her nurse practitioner, Holly, almost as much as her. I love them
both and would recommend them to anyone. There is a Dr. Depersio within
the group of Hematologist/Oncologists that has been listed in the top 100
doctors & I've heard that those who see him are happy with him. I hope this
answers your questions. I am very happy going to the Cancer Center....they
have an awesome set up if one needs a BMB done, will give you drugs if
you need them for the BMB. I've never had a problem with the lab department,
they are very good at what they do, you don't have long waits.
Greenie: I certainly sympathize with you and the no-see-ems! LOL I
hate them as much as the love bugs that get all over the front of the car when
driving down. Awful!
Jeanie: You keep fighting, girl! I also know what you mean about the dry
skin. I have places on my arms of dry skin and my legs are rough as well.
I rubbed my hands over my legs and thought to myself, this is almost like
sand paper in places. I am going to try rubbing them with Coconut Oil.
I've heard a lot of good stuff about that.
Oh and Joyce, I don't plan on leaving CML Hope. I love it here. :)
Suzieq
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|
Back to top John
| Icandoallttc <[email protected]>: Aug 29 02:31PM -0400
How are you John?
How many pills are you on?
Just checking in.
Blessings
My Motto: Faith and Pills
Jeanie 🐟🐟18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center
|
| John Barrons <[email protected]>: Aug 29 04:56PM -0400
Hi Jeanie: right now it is 10.45pm and I am on the Danube River. Our next port
of call tomorrow is Budapest. My last count was Aug 19 and after three weeks
being off the pill my counts went up, so I had a pill on the 20th. I am off the
drug until I get back home which will be Sept 6. My next count will be on Sept
9 and all things being equal, I would have my next pill on the 10th. My wife
and I are having a great time, but it is very hot. High eighties to low
nineties. Hope you are doing OK John B
Sent from my iPad
|
| Icandoallttc <[email protected]>: Aug 29 05:02PM -0400
Thanks John and wish you a great vacation.
Have lots of fun and good food.
Blessings
My Motto: Faith and Pills
Jeanie 🐟🐟18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center
|
Back to top Oct BCR-ABL
| Icandoallttc <[email protected]>: Aug 29 02:29PM -0400
Yes Richard
One day at a time.
Blessings
My Motto: Faith and Pills
Jeanie 🐟🐟18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center
|
Back to top August 2015 - Advances in managing and treating lymphedema
| Icandoallttc <[email protected]>: Aug 29 02:28PM -0400
Managing lymphodema
My Motto: Faith and Pills
Jeanie 🐟🐟18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center
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