Chiggers, their almost as bad as no-see-em's I can remember  them when I 
was a kid my Mother would put finger nail polish on them to get rid  of them.  
Maybe I should use that on no-see-em's.
 
greenie
 
 
In a message dated 8/30/2015 5:23:56 P.M. Eastern Daylight Time,  
[email protected] writes:

 
Hello to all our CML Friends in this  group.  Nick and I quietly celebrated 
55 years together Friday.   We're thankful for the LMH Oncology Department 
Dr. Stein and all the nursing  staff who have kept Nick going and worked 
with him and us for these   12 years.  
We send each of you special greetings and  prayers, too.  Yes, Jeannie, 
it's faith and pills. And people  praying for each other.  
Today after church there was a blood  drive to help replace blood used by a 
17year old who is  fighting Non-Hodgkin's Lymphoma.  I hope lots of people 
signed up and  donated.  


Hope you have a lovely holiday, John and  wife.  Joyce, hope you find an 
Oncologist who listens and cares for you  and your CML needs.  Greenie, we 
haven't had no-see-ums, but boy! have we  had chiggers this year!!!   Next, 
I've got to go out and pull poison  ivy from steps and trees.  Probably 
tomorrow.  
As ever Elizabeth & Nick








 
 
On Sunday, August 30, 2015 5:17 AM,  "[email protected]" 
<[email protected]>  wrote:




 
 
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Suzieq  <[email protected]>: Aug 29 02:11PM -0700  

Joyce: I go to Sitemen Cancer Center at the Barne's  Jewish Hospital and 
Washington University School of Medicine. My  doctor is Dr. Amanda Cashen. 
I know she treats many CML patients,  not sure about being a CML 
specialist. I checked her out when the  doctor I had previous to her left 
to go back into research and she  did her clinicals under my original 
doctor 
that I started out with  at Sitemen, Dr. Hannah Koury. Dr. Koury was the 
greatest.....but I  only had him for about six months when he left to go to 
Emory  University hospital in Atlanta to set up a Hematology/Oncology Dept. 
 
like Sitemen has. That was back in 2004..... After him, I saw Dr.  
Vig.......now he may be a specialist, because after about my 3rd or  4th 
visit with him, he handed me off to another (the one who went  back into 
research) saying that I was not "sick enough", that he  only saw those CML 
patients who were in trouble or having many  problems. Once I got Dr. 
Cashen, I've been very happy with her. She  is very compassionate and 
she'll sit there and talk to me. I also  see her nurse practitioner, Holly, 
almost as much as her. I love  them both and would recommend them to 
anyone. There is a Dr.  Depersio within the group of 
Hematologist/Oncologists that has been  listed in the top 100 doctors & 
I've 
heard that those who see  him are happy with him. I hope this answers your 
questions. I am  very happy going to the Cancer Center....they have an 
awesome set up  if one needs a BMB done, will give you drugs if you need 
them for  the BMB. I've never had a problem with the lab department, they 
are  very good at what they do, you don't have long waits.  

Greenie: I certainly sympathize with you and the  no-see-ems! LOL I 
hate them as much as the love bugs that get all  over the front of the car 
when driving down. Awful!  

Jeanie: You keep fighting, girl! I also know what you mean  about the dry 
skin. I have places on my arms of dry skin and my legs  are rough as well. 
I rubbed my hands over my legs and thought to  myself, this is almost like 
sand paper in places. I am going to try  rubbing them with Coconut Oil. 
I've heard a lot of good stuff about  that.

Oh and Joyce, I don't plan on leaving CML Hope. I  love it here. :)

Suzieq
[email protected]: Aug  29 05:30PM -0400 

Yea, I walked out to the mail box this  afternoon and one got me. Must be 
that Jewish, Irish, English blood  that runs through my veins. 

greenie

In a message dated  8/29/2015 5:11:51 P.M. Eastern Daylight Time,  
[email protected] writes:

Joyce: I go to  Sitemen Cancer Center at the Barne's Jewish Hospital and 
Washington  University School of Medicine. My doctor is Dr. Amanda Cashen. 
I  know she treats many CML patients, not sure about being a CML  
specialist. I checked her out when the doctor I had previous to her  left 
to go back 
into research and she did her clinicals under my  original doctor that I 
started out with at Sitemen, Dr. Hannah  Koury. Dr. Koury was the 
greatest.....but I only had him for about  six months when he left to go to 
Emory 
University hospital in  Atlanta to set up a Hematology/Oncology Dept. like 
Sitemen 
has. That  was back in 2004..... After him, I saw Dr. Vig.......now he may 
be a  specialist, because after about my 3rd or 4th visit with him, he  
handed me off to another (the one who went back into research)  saying that 
I 
was not "sick enough", that he only saw those CML  patients who were in 
trouble or having many problems. Once I got Dr.  Cashen, I've been very 
happy 
with her. She is very compassionate and  she'll sit there and talk to me. I 
also see her nurse practitioner,  Holly, almost as much as her. I love them 
both and would recommend  them to anyone. There is a Dr. Depersio within 
the group of  Hematologist/Oncologists that has been listed in the top 100 
doctors  & I've heard that those who see him are happy with him. I hope 
this  
answers your questions. I am very happy going to the Cancer  Center....they 
have an awesome set up if one needs a BMB done, will  give you drugs if 
you need them for the BMB. I've never had a  problem with the lab 
department, 
they are very good at what they do,  you don't have long waits. 


Greenie: I certainly  sympathize with you and the no-see-ems! LOL I 
hate them as much as  the love bugs that get all over the front of the car 
when 
driving  down. Awful! 


Jeanie: You keep fighting, girl! I  also know what you mean about the dry 
skin. I have places on my arms  of dry skin and my legs are rough as well. 
I rubbed my hands over my  legs and thought to myself, this is almost like 
sand paper in  places. I am going to try rubbing them with Coconut Oil. 
I've heard  a lot of good stuff about that.


Oh and Joyce, I  don't plan on leaving CML Hope. I love it here.  :)


Suzieq

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Icandoallttc  <[email protected]>: Aug 29 02:31PM -0400 

How  are you John?
How many pills are you on?
Just checking in.  
Blessings

My Motto: Faith and Pills
Jeanie 🐟🐟18,s  
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January  2015
Dr Balducci Moffitt Cancer Center
John Barrons  <[email protected]>: Aug 29 04:56PM -0400 

Hi Jeanie:  right now it is 10.45pm and I am on the Danube River. Our next 
port of  call tomorrow is Budapest. My last count was Aug 19 and after three 
 weeks being off the pill my counts went up, so I had a pill on the 20th.  
I am off the drug until I get back home which will be Sept 6. My next  count 
will be on Sept 9 and all things being equal, I would have my next  pill on 
the 10th. My wife and I are having a great time, but it is very  hot. High 
eighties to low nineties. Hope you are doing OK John  B


Sent from my iPad

Icandoallttc  <[email protected]>: Aug 29 05:02PM -0400 

Thanks  John and wish you a great vacation. 
Have lots of fun and good food.  
Blessings

My Motto: Faith and Pills
Jeanie 🐟🐟18,s  
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January  2015
Dr Balducci Moffitt Cancer  Center

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Icandoallttc  <[email protected]>: Aug 29 02:29PM -0400 

Yes  Richard 
One day at a time. 
Blessings

My Motto:  Faith and Pills
Jeanie 🐟🐟18,s 
Dx 1/2004. CML  Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started  Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt  Cancer Center

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um=email) 
Icandoallttc  <[email protected]>: Aug 29 02:28PM -0400  

Managing lymphodema

My Motto: Faith and  Pills
Jeanie 🐟🐟18,s 
Dx 1/2004. CML Leukemia
Started Gleevec  2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started  Ponatinib January 2015
Dr Balducci Moffitt Cancer  Center

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