I got actual red pimples that would hurt. I had to go back to my dermatolgst I saw as a teen. Finally changed to gleevec Sent from my iPhon > On Dec 30, 2015, at 3:34 PM, 'Icandoallttc' via CMLHope > <[email protected]> wrote: > > Yes I have had the red flushing with all the tkis. Just have to get ice and > cool down. I feel so hot like I will explode!!! > Try not to eat hot foods or spicy. > I didn't do good on tasigna. It lowered my blood counts to low and had to > have platelets. Had to go on Sprycel. See chart below. Good luck. > > My Motto: Faith and Pills > Jeanie 🐟🐟18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > >> On Dec 28, 2015, at 4:44 PM, hotmail <[email protected]> wrote: >> >> Question for the group? Has anyone experienced intense deep red facial >> flushing with Tasigna? If so, does it get any better? Thanks! >> >> Jocelyn >> >> Sent from my iPhone >> >>> On Dec 28, 2015, at 4:02 PM, bkbarney via CMLHope >>> <[email protected]> wrote: >>> >>> HI All. And a very happy New Year to everyone. I miss you all. Richard, I >>> am so happy you can bring your wife home! And Susan, I will keep you and >>> Jeannie and Marty and Richard and Greenie and everyone else whose names I >>> cannot think of this moment ( chemo brain:) ), in my prayers... >>> >>> I had a rough ride...did not make it to Florida, stuck with a kidney >>> infection and kidney stone in Chicago, then, after ultra sounds and two >>> MRI"s, three trips to the hospital..of course I caught something there..had >>> the flu for the last week plus...so, finally starting to feel better...sat >>> down and I have another 1100 emails to sift through since the last time I >>> was online..... >>> >>> so sad to have missed you and your wife Greenie, but hope to get down there >>> this winter some time...in the mean time..I hope you and your sweetie are >>> taking good care and enjoying nice weather...Chicago has been so mild up >>> until now...now ice storm, and then 4-7 inches of snow tomorrow on top of >>> it....I am still off any work until next Monday so I hope to regroup...and >>> get better this week... >>> >>> I think of all of you so often and hope this is a good health year for all >>> of us. I have been of sprycel for 6 weeks now, but Bcr Abl showed it's >>> return at 5 weeks off...so on Friday I restart. It has definitely been good >>> for my body and soul, the break, working on getting the cpk down with >>> steroids in the hope that I can build back muscle if we can just get it >>> down and keep it down....still have a lot of pain in my body..but other >>> than that..no complaints....happy to be here.. >>> >>> >>> my best wishes, 18's and big hugs all around. You all are the best, my CML >>> family. >>> >>> love, Beth >>> >>> >>> -----Original Message----- >>> From: 'Susan Zimmerman' via CMLHope <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Mon, Dec 28, 2015 1:37 pm >>> Subject: Re: [CMLHope] Re: Merry Christmas and happy Hilidays >>> >>> Merry Christmas and Happy New Year to all of you, ALL!!! This was the best >>> Christmas I can remember, as both my adult children and their families were >>> in attendance. It made the celebration wonderful with a 7 and a 4 yr old >>> (grandkids). I will be recuperating for a few days since they left >>> yesterday. Both my husband and I hit the sheets for a nap the minute they >>> left! Wouldn't trade it for the world. Was not sure if I had stroke >>> symptoms or a sugar overload on Saturday after a big party. Double vision >>> and near-vomiting for over three hours. Took off my mono contacts after >>> the LOOONNG ride home and in half an hour was fine. Ten days before that I >>> had doubled my dose of bosulif. Now not sure whether to keep on two a day >>> or cut back to one a day again. Stroke is not worth the medicine. I'll >>> test it again and see.....prayers appreciated. >>> >>> 18's and Enjoy every day, >>> Susan F. Zimmerman >>> >>> -----Original Message----- >>> From: Richard H <[email protected]> >>> To: CMLHope <[email protected]> >>> Cc: icandoallttc <[email protected]> >>> Sent: Sat, Dec 26, 2015 12:17 am >>> Subject: [CMLHope] Re: Merry Christmas and happy Hilidays >>> >>> Merry Christmas and happy holidays back your way and to all. >>> >>> Santa was the BEST EVER. I was able to bring my wife HOME. Lots of in >>> home care and therapy wi;l start next week. >>> >>>> On Friday, December 25, 2015 at 2:44:03 PM UTC-6, Icandoallttc wrote: >>>> Merry Christmas and happy Holidays to all. >>>> I hope everyone is good and that Santa was good to you. >>>> >>>> My Motto: Faith and Pills >>>> Jeanie 🐟🐟18,s >>>> Dx 1/2004. CML Leukemia >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib January 2015 >>>> Dr Balducci Moffitt Cancer Center >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout.
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