I also had horrible rash and boils!! Happy New Year!!! My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center
> On Dec 30, 2015, at 7:04 PM, kathy walls <cand...@originalsbykate.com> wrote: > > I got actual red pimples that would hurt. I had to go back to my dermatolgst > I saw as a teen. Finally changed to gleevec > Sent from my iPhon >> On Dec 30, 2015, at 3:34 PM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> Yes I have had the red flushing with all the tkis. Just have to get ice and >> cool down. I feel so hot like I will explode!!! >> Try not to eat hot foods or spicy. >> I didn't do good on tasigna. It lowered my blood counts to low and had to >> have platelets. Had to go on Sprycel. See chart below. Good luck. >> >> My Motto: Faith and Pills >> Jeanie 🐟🐟18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >>> On Dec 28, 2015, at 4:44 PM, hotmail <jocelynnew...@hotmail.com> wrote: >>> >>> Question for the group? Has anyone experienced intense deep red facial >>> flushing with Tasigna? If so, does it get any better? Thanks! >>> >>> Jocelyn >>> >>> Sent from my iPhone >>> >>>> On Dec 28, 2015, at 4:02 PM, bkbarney via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> >>>> HI All. And a very happy New Year to everyone. I miss you all. Richard, I >>>> am so happy you can bring your wife home! And Susan, I will keep you and >>>> Jeannie and Marty and Richard and Greenie and everyone else whose names I >>>> cannot think of this moment ( chemo brain:) ), in my prayers... >>>> >>>> I had a rough ride...did not make it to Florida, stuck with a kidney >>>> infection and kidney stone in Chicago, then, after ultra sounds and two >>>> MRI"s, three trips to the hospital..of course I caught something >>>> there..had the flu for the last week plus...so, finally starting to feel >>>> better...sat down and I have another 1100 emails to sift through since the >>>> last time I was online..... >>>> >>>> so sad to have missed you and your wife Greenie, but hope to get down >>>> there this winter some time...in the mean time..I hope you and your >>>> sweetie are taking good care and enjoying nice weather...Chicago has been >>>> so mild up until now...now ice storm, and then 4-7 inches of snow tomorrow >>>> on top of it....I am still off any work until next Monday so I hope to >>>> regroup...and get better this week... >>>> >>>> I think of all of you so often and hope this is a good health year for all >>>> of us. I have been of sprycel for 6 weeks now, but Bcr Abl showed it's >>>> return at 5 weeks off...so on Friday I restart. It has definitely been >>>> good for my body and soul, the break, working on getting the cpk down with >>>> steroids in the hope that I can build back muscle if we can just get it >>>> down and keep it down....still have a lot of pain in my body..but other >>>> than that..no complaints....happy to be here.. >>>> >>>> >>>> my best wishes, 18's and big hugs all around. You all are the best, my CML >>>> family. >>>> >>>> love, Beth >>>> >>>> >>>> -----Original Message----- >>>> From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> >>>> To: cmlhope <cmlhope@googlegroups.com> >>>> Sent: Mon, Dec 28, 2015 1:37 pm >>>> Subject: Re: [CMLHope] Re: Merry Christmas and happy Hilidays >>>> >>>> Merry Christmas and Happy New Year to all of you, ALL!!! This was the >>>> best Christmas I can remember, as both my adult children and their >>>> families were in attendance. It made the celebration wonderful with a 7 >>>> and a 4 yr old (grandkids). I will be recuperating for a few days since >>>> they left yesterday. Both my husband and I hit the sheets for a nap the >>>> minute they left! Wouldn't trade it for the world. Was not sure if I had >>>> stroke symptoms or a sugar overload on Saturday after a big party. Double >>>> vision and near-vomiting for over three hours. Took off my mono contacts >>>> after the LOOONNG ride home and in half an hour was fine. Ten days before >>>> that I had doubled my dose of bosulif. Now not sure whether to keep on >>>> two a day or cut back to one a day again. Stroke is not worth the >>>> medicine. I'll test it again and see.....prayers appreciated. >>>> >>>> 18's and Enjoy every day, >>>> Susan F. Zimmerman >>>> >>>> -----Original Message----- >>>> From: Richard H <rbhuffm...@gmail.com> >>>> To: CMLHope <cmlhope@googlegroups.com> >>>> Cc: icandoallttc <icandoall...@aol.com> >>>> Sent: Sat, Dec 26, 2015 12:17 am >>>> Subject: [CMLHope] Re: Merry Christmas and happy Hilidays >>>> >>>> Merry Christmas and happy holidays back your way and to all. >>>> >>>> Santa was the BEST EVER. I was able to bring my wife HOME. Lots of in >>>> home care and therapy wi;l start next week. >>>> >>>>> On Friday, December 25, 2015 at 2:44:03 PM UTC-6, Icandoallttc wrote: >>>>> Merry Christmas and happy Holidays to all. >>>>> I hope everyone is good and that Santa was good to you. >>>>> >>>>> My Motto: Faith and Pills >>>>> Jeanie 🐟🐟18,s >>>>> Dx 1/2004. CML Leukemia >>>>> Started Gleevec 2/2004 >>>>> Started Tasigna 9/2009 >>>>> Started Sprycel 11/2009 >>>>> Started Ponatinib January 2015 >>>>> Dr Balducci Moffitt Cancer Center >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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