Marty

Since he couldn't find a matching dornor and doesn't want half-matched bone 
marrow transplnat, he is now considering getting another doctor. He has no 
choice except TKI right now. I also feel that half matched bone marrow 
transplant would be wrong decision. 


Choi.  



2016년 1월 22일 금요일 오전 4시 53분 2초 UTC+9, wa2yyx 님의 말:

> Choi,
>
> GET ANOTHER DOCTOR immediately!!! This guy can't be a CML specialist or he 
> would have never mentioned getting a half matched bone marrow transplant. 
> Besides getting severe GVHD it will probably fail in a short time. Do you 
> know where he is located? and is there someone that specializes in CML?
>
> 18's,
>
> Marty
>
> On Thu, Jan 21, 2016 at 8:36 AM, Choi <[email protected] <javascript:>> 
> wrote:
>
>> Hi. This is Choi,
>>
>> My family was diagnosed with CML in 2001 and have been on Gleevec. I have 
>> made a lot of CML friends since then.
>> Recently I've met a man who was diagnosed with CML during the acute stage 
>> in 2015. I think it was on May. 
>> He had gone through Chemo(I think it's remission induction therapy) after 
>> being diagnosed, he got reached remission and then was on Gleevec. 
>> His doctor initially considered bone marrow transplant but couln't find a 
>> matching dornor. Fortunately 3 months PCR testinng during the Gleevec shows 
>> 0.03%. 
>> It was just 3 months ago. However today his PCR testing shows 1.5% and I 
>> don't know why but his doctor swithed to Sprycel and suggested half-matched 
>> bone marrow transplnat.
>> He is in a dilemma. He wants to be on TKI treatment because he doesn't 
>> have a mathing dornor. 
>> Have any one had a similar experience?  
>>  
>>
>> Choi.
>>
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