Choi, I can't even imagine why that doctor would ever want such a mismatch, and maybe I am not the best one to judge but the last time that I have ever heard of such a mismatch it was his mother that gave him her marrow and he got such a bad case of GVHD that he died shortly after. If he can't find a suitable match then I would still keep on looking but at least there are those TKI's and he just may try to find the best one for his needs, and in order to do that yes he must get a good Oncologist with experience with CML. By the way where does he live? Maybe there is someone close by and even if not you could always to get in touch with Dr. Brian Druker in Oregon or Dr. Moshie Talpaz in Mich. Depending on where he lives it may make sense to consider an appointment. As far as I am concerned those two ar probably the best dealing with CML.
Please do not mess around with this just get the best doctor you find that deals with CML. 18.s Marty As it was when I had my BMT it was my sister that was my donor and at that time there was a standard of having a 6 out of 6 HLA match and at the time it was consired to be a perfect match. Right now the last I heard it was a 10 out of 10 HLA match and that was several years ago, and I haven't looked lately. On Fri, Jan 22, 2016 at 4:43 PM, Choi <[email protected]> wrote: > Marty > > Since he couldn't find a matching dornor and doesn't want half-matched > bone marrow transplnat, he is now considering getting another doctor. He > has no choice except TKI right now. I also feel that half matched bone > marrow transplant would be wrong decision. > > > Choi. > > > > 2016년 1월 22일 금요일 오전 4시 53분 2초 UTC+9, wa2yyx 님의 말: > >> Choi, >> >> GET ANOTHER DOCTOR immediately!!! This guy can't be a CML specialist or >> he would have never mentioned getting a half matched bone marrow >> transplant. Besides getting severe GVHD it will probably fail in a short >> time. Do you know where he is located? and is there someone that >> specializes in CML? >> >> 18's, >> >> Marty >> >> On Thu, Jan 21, 2016 at 8:36 AM, Choi <[email protected]> wrote: >> >>> Hi. This is Choi, >>> >>> My family was diagnosed with CML in 2001 and have been on Gleevec. I >>> have made a lot of CML friends since then. >>> Recently I've met a man who was diagnosed with CML during the acute >>> stage in 2015. I think it was on May. >>> He had gone through Chemo(I think it's remission induction therapy) >>> after being diagnosed, he got reached remission and then was on Gleevec. >>> His doctor initially considered bone marrow transplant but couln't find >>> a matching dornor. Fortunately 3 months PCR testinng during the Gleevec >>> shows 0.03%. >>> It was just 3 months ago. However today his PCR testing shows 1.5% and I >>> don't know why but his doctor swithed to Sprycel and suggested half-matched >>> bone marrow transplnat. >>> He is in a dilemma. He wants to be on TKI treatment because he doesn't >>> have a mathing dornor. >>> Have any one had a similar experience? >>> >>> >>> Choi. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
