Hi John, What are your WBC now? I know a man who lives in Canada a very long time ago actually more then 35 years ago and he never took any TKI's but he did take something and it did "burn out his Leukemia" but unfortunately he has to have blood transfusions I think every two weeks. He is the longest surviving person in this world.
I probably am in there as well logging in going on 27 years after having a bone marrow transplant. Different people react to different things and sometimes some of them defies the logic of these things that are just meant to be. Hey you seem to be one of them👍 Good luck to you! Remember what 18's stands for. Marty On Thu, Feb 11, 2016 at 8:01 AM, <[email protected]> wrote: > I am taking ponatinib like Jeanie in Tampa. I need to take only one pill a > week to keep the counts low. the counts do fluctuate from time to time. > There does not seem to an answer for the white blood cells to have > increased so suddenly. My oncologist did not think it was a change to blast > phase. So I go once a week or once every two weeks to check them. John B. > > > On Wednesday, February 10, 2016 11:06 PM, Marty Gartenberg < > [email protected]> wrote: > > > Hi John, > > First let me say hello to your wife, and believe me I personally know what > she has been going through. > > Now what I can't understand why your white blood count went over 100,000. > And what pill have you been taking? Usually you need to be taking more then > 1 pill and that should be every day. So John I am really puzzled. > > I wish you as well as your wife the very best, because of mainly what you > wrote. Yes, life is good. > > If you have been reading any of my posts I always end them with 18's which > is a symbol for life. > > 18's, > > Marty > > On Wed, Feb 10, 2016 at 4:45 PM, John Barrons <[email protected]> wrote: > > Hi Jeanie and to all: Well, where do I start. Before last Christmas, I was > not feeling very well. My oncologist said if I felt worse go to emergency, > which I did on Dec 26. I had pneumonia and as I result my heart was having > trouble. In addition, my white blood count went over 100,000. I was in > hospital until Jan 16 when I was transferred to a rehab centre to gain back > some strength. I arrived back at home last Saturday, so glad to be home I > can't begin to say. All is well as far as the things that were wrong. Mind > you I have to gain a lot of weight back. The leukemia is back to normal and > I am on 1 pill per week. That was along time to be away and I was difficult > for my wife also. Life is good John B > > Sent from my iPad > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to mailto:cmlhope%[email protected] > <cmlhope%[email protected]>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
