Ok, let's see what happens at your next blood test. I just had one this morning and sorry to say my WBC was only 1.87 so that puts me having a problem with immunity but I know that it is coming from the CMV virus that I am having so I have to be very careful until the reduced medication starts to work again. In the mean time I have gotten some terrible mouth sores just like I got when I had the bone marrow transplant caused by all of the Chemo and radiation. Something that I will never forget. Believe it or not that was by far the worst part of it. However I just try not to complain about it. And do you know why? I'm still alive today.
And now you know what 18's stands for... Life! So I bid you many more 18's. Marty On Fri, Feb 12, 2016 at 5:49 AM, John Barrons <[email protected]> wrote: > Hi My wbc last Tuesday were 4.2, platelets 43 and hemo 103. I will next > have a cbc a week this Tuesday. John > > Sent from my iPad > > On Feb 12, 2016, at 6:59 AM, Marty Gartenberg <[email protected]> wrote: > > Hi John, > > What are your WBC now? I know a man who lives in Canada a very long time > ago actually more then 35 years ago and he never took any TKI's but he did > take something and it did "burn out his Leukemia" but unfortunately he has > to have blood transfusions I think every two weeks. He is the longest > surviving person in this world. > > I probably am in there as well logging in going on 27 years after having a > bone marrow transplant. > > Different people react to different things and sometimes some of them > defies the logic of these things that are just meant to be. Hey you seem to > be one of them👍 > Good luck to you! > > Remember what 18's stands for. > > Marty > > On Thu, Feb 11, 2016 at 8:01 AM, <[email protected]> wrote: > >> I am taking ponatinib like Jeanie in Tampa. I need to take only one pill >> a week to keep the counts low. the counts do fluctuate from time to time. >> There does not seem to an answer for the white blood cells to have >> increased so suddenly. My oncologist did not think it was a change to blast >> phase. So I go once a week or once every two weeks to check them. John B. >> >> >> On Wednesday, February 10, 2016 11:06 PM, Marty Gartenberg < >> [email protected]> wrote: >> >> >> Hi John, >> >> First let me say hello to your wife, and believe me I personally know >> what she has been going through. >> >> Now what I can't understand why your white blood count went over 100,000. >> And what pill have you been taking? Usually you need to be taking more then >> 1 pill and that should be every day. So John I am really puzzled. >> >> I wish you as well as your wife the very best, because of mainly what you >> wrote. Yes, life is good. >> >> If you have been reading any of my posts I always end them with 18's >> which is a symbol for life. >> >> 18's, >> >> Marty >> >> On Wed, Feb 10, 2016 at 4:45 PM, John Barrons <[email protected]> wrote: >> >> Hi Jeanie and to all: Well, where do I start. Before last Christmas, I >> was not feeling very well. My oncologist said if I felt worse go to >> emergency, which I did on Dec 26. I had pneumonia and as I result my heart >> was having trouble. In addition, my white blood count went over 100,000. I >> was in hospital until Jan 16 when I was transferred to a rehab centre to >> gain back some strength. I arrived back at home last Saturday, so glad to >> be home I can't begin to say. All is well as far as the things that were >> wrong. Mind you I have to gain a lot of weight back. The leukemia is back >> to normal and I am on 1 pill per week. That was along time to be away and I >> was difficult for my wife also. Life is good John B >> >> Sent from my iPad >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to mailto:cmlhope%[email protected] >> <cmlhope%[email protected]>. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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