Hi Beth, I am actually still in the hospital but maybe today I will be getting out just have to wait for the doctors when they make their rounds. I will keep everyone updated.
18's, Marty bkbarney via CMLHope <[email protected]> wrote: >Dear Marty, > >So glad you are out of the hospital! And Peg, you are so right about what you >said to Jeanie...Hope everyone is doing as well as possible. Thinking of all >of you...love, and 18's Beth > >-----Original Message----- >From: 'Icandoallttc' via CMLHope <[email protected]> >To: peg <[email protected]> >Cc: CMLHope <[email protected]> >Sent: Fri, Mar 18, 2016 11:19 am >Subject: [CMLHope] Re: Dizzy all day > >Thanks Peg, > >You are so right. I was reading the side effects of ponatinib and i was >thinking I have to take this??! > >Well yes I do and blood clots and heart problems are right up there high on >the list. > >My potassium tends to be high also and you can get heart problems from that. > >Just have to fight on and thanks again. > > > > >My Motto: Faith and Pills❤️ > >With 💗Jeanie 🐟🐟18,s Chi > >Dx 1/2004. CML Leukemia > >Started Gleevec 2/2004 > >Started Tasigna 9/2009 > >Started Sprycel 11/2009 > >Started Ponatinib January 2015 > >Dr Balducci Moffitt Cancer Center > > >On Mar 18, 2016, at 12:00 PM, peg <[email protected]> wrote: > > >Hi Jeanie, > > >I was traveling on business this week and just checked in and am wondering if >you are feeling better? > > >I had to caution another cancer patient recently not to write off sudden >changes as normal...caused by treatment, age, etc. The new generation of meds >to treat CML and other cancers can have side effects that can be deadly if not >caught in time. Sprycel was a really good example of this. Prior to the FDA >warning that it can cause deadly pulmonary hypertension no one was paying >attention to folks that were already on it. When one of our CML warriors >started feeling weak and dizzy, even her doctor dismissed it, for months, >until she collapsed and woke up in the cardiac care unit. She almost died, >and had a long road to recovery. Her spreading the word saved other lives! >Everyone should know their meds, know what the symptoms are of the dangerous >side effects and alert their doctor if those symptoms present. It doesn't hurt >to tell the doctor you are concerned it is a side effect of your meds, you >would be surprised how many doctors are not familiar with the side effects of >the meds they are prescribing! > > >I think those of us living with cancer or any other chronic disease are kind >of stoic and don't whine a lot...but sometimes we should. > > >Note to Marty...since I am sure you are reading this...you are in my prayers!! > > >Fight on, > >Peg > >-- >-- >[CMLHope] >A support group of http://cmlhope.com >------------------------------------------------- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to [email protected] >To unsubscribe from this group, send email to >[email protected] >For more options, visit this group at http://groups.google.com/group/CMLHope >--- >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To unsubscribe from this group and stop receiving emails from it, send an >email to [email protected]. >For more options, visit https://groups.google.com/d/optout. > >-- >-- >[CMLHope] >A support group of http://cmlhope.com >------------------------------------------------- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to [email protected] >To unsubscribe from this group, send email to >[email protected] >For more options, visit this group at http://groups.google.com/group/CMLHope >--- >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To unsubscribe from this group and stop receiving emails from it, send an >email to [email protected]. >For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
