Marty, got my fingers crossed. greenie In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, [email protected] writes:
Hi Beth, I am actually still in the hospital but maybe today I will be getting out just have to wait for the doctors when they make their rounds. I will keep everyone updated. 18's, Marty bkbarney via CMLHope <[email protected]> wrote: Dear Marty, So glad you are out of the hospital! And Peg, you are so right about what you said to Jeanie...Hope everyone is doing as well as possible. Thinking of all of you...love, and 18's Beth -----Original Message----- From: 'Icandoallttc' via CMLHope <[email protected]> To: peg <[email protected]> Cc: CMLHope <[email protected]> Sent: Fri, Mar 18, 2016 11:19 am Subject: [CMLHope] Re: Dizzy all day Thanks Peg, You are so right. I was reading the side effects of ponatinib and i was thinking I have to take this??! Well yes I do and blood clots and heart problems are right up there high on the list. My potassium tends to be high also and you can get heart problems from that. Just have to fight on and thanks again. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 18, 2016, at 12:00 PM, peg <[email protected]_ (mailto:[email protected]) > wrote: Hi Jeanie, I was traveling on business this week and just checked in and am wondering if you are feeling better? I had to caution another cancer patient recently not to write off sudden changes as normal...caused by treatment, age, etc. The new generation of meds to treat CML and other cancers can have side effects that can be deadly if not caught in time. Sprycel was a really good example of this. Prior to the FDA warning that it can cause deadly pulmonary hypertension no one was paying attention to folks that were already on it. When one of our CML warriors started feeling weak and dizzy, even her doctor dismissed it, for months, until she collapsed and woke up in the cardiac care unit. She almost died, and had a long road to recovery. Her spreading the word saved other lives! Everyone should know their meds, know what the symptoms are of the dangerous side effects and alert their doctor if those symptoms present. It doesn't hurt to tell the doctor you are concerned it is a side effect of your meds, you would be surprised how many doctors are not familiar with the side effects of the meds they are prescribing! I think those of us living with cancer or any other chronic disease are kind of stoic and don't whine a lot...but sometimes we should. Note to Marty...since I am sure you are reading this...you are in my prayers!! Fight on, Peg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
