Hi Anthony and good to hear from you. My right side pain was with me for a while but got worse when put in Tasigna. It now goes up to a 10 and have to take pain meds for it. No cure just management. Probably a lot like Lupus. What tki do you take?
My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 25, 2016, at 10:52 AM, Anthony Lanoue <[email protected]> wrote: > > > I also get mild right side pain > ---- > Anthony Lanoue > Sent with MailBuzzr > On Mar 24, 2016, 5:44 PM, Icandoallttc' via CMLHope wrote: > Hi Susan and thanks so much. > My side pain is still bad but tests show nothing. Just treating the pain. I > read something about an MS hug. My side pain has a lot of similarities to > that. > I think the tkis caused this as it got worse when I had to go on Tasigna. > My Creatine was up but it seems to go up and down along with potassium. > I've been on Ponatinib for 12 months now. > No test planned thank Heavens. Have to go back in 3 months. They take PCR > every 3 months. I forgot to get my last results. Thanks again. > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > >> On Mar 24, 2016, at 5:30 PM, 'Susan Zimmerman' via CMLHope >> <[email protected]> wrote: >> >> Thank you so much, Jeanie!!! You are special to us all. How's the sideache >> and any more tests about it specifically? >> 18"s, >> >> >> Susan F. Zimmerman >> "All who humble themselves before the Lord shall be given every blessing, >> and shall have wonderful peace." Ps.37:11 >> >> >> >> On Thursday, March 24, 2016 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> >> Hi Susan and Marcie >> Prayers for both of you. Sorry for your hospital stay but we need them when >> we get sick. I hope you find the root of your problems. >> I had my gallbladder out many years ago. That's some bad pain. Good luck. >> Susan good luck off meds. Hang in there and fight. Blessings >> >> My Motto: Faith and Pills❤️ >> With 💗Jeanie 🐟🐟18,s Chi >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope >> <[email protected]> wrote: >> >> Susan, as always, I have you and Roy in my prayers. Please let us know how >> your test turns out. >> >> I just got out of hospital because my red cells bottomed out and I became >> very sick. So some transfusions and several days later, just came home. I >> will be undergoing more tests, might have gallbladder problem which arose >> after I was discharged, naturally! Ultrasound tomorrow. Never dull but >> always interesting! >> >> Marcie >> >> >> >> Sent from my iPhone >> >> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope >> <[email protected]> wrote: >> >> Thanks for the encouragement. I may write him but not confident he would >> have any different answers. Dr. Jessica Altman is completely on top of >> things for me. I"ve been to two other specialists at Nwestern to dig into >> causes....nothing unusual except cavernous malformations turns up. Have >> checked everything at least three times over the yrs. So again off meds >> hopefully for a long time unless #'s go high. >> >> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! >> >> Hope all is well with you! >> >> Susan F. Zimmerman >> "All who humble themselves before the Lord shall be given every blessing, >> and shall have wonderful peace." Ps.37:11 >> >> >> >> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope >> <[email protected]> wrote: >> >> Susan: >> >> Are you able to have an appointment with Dr. Druker in Portland, Oregon? >> >> At least email him >> >> Hugs, >> Susan Rosenthal >> >> Have a wonderful day >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- 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