Dear Jeanie, so sorry you are still in the dark about the side pain. I was hoping they would ask for a pet scan to rule out a different kind of cancer. I encourage you again to get to the bottom of it.....is it at all connected to plural effusion? Ponatinib has some ability to give heart or bleeding problems said my doc. Because of my bleeding my doc said it would never be the right one for me. So glad it's working for you! Don't mean to share negatives. I know your faith and ponatinib are doing well for you!
Blessings and 18's, Susan F. Zimmerman On Thursday, March 24, 2016 'Icandoallttc' via CMLHope <[email protected]> wrote: Hi Susan and thanks so much. My side pain is still bad but tests show nothing. Just treating the pain. I read something about an MS hug. My side pain has a lot of similarities to that. I think the tkis caused this as it got worse when I had to go on Tasigna. My Creatine was up but it seems to go up and down along with potassium. I've been on Ponatinib for 12 months now. No test planned thank Heavens. Have to go back in 3 months. They take PCR every 3 months. I forgot to get my last results. Thanks again. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 24, 2016, at 5:30 PM, 'Susan Zimmerman' via CMLHope <[email protected]> wrote: Thank you so much, Jeanie!!! You are special to us all. How's the sideache and any more tests about it specifically? 18"s, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 24, 2016 'Icandoallttc' via CMLHope <[email protected]> wrote: Hi Susan and Marcie Prayers for both of you. Sorry for your hospital stay but we need them when we get sick. I hope you find the root of your problems. I had my gallbladder out many years ago. That's some bad pain. Good luck. Susan good luck off meds. Hang in there and fight. Blessings My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope <[email protected]> wrote: Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally! Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope <[email protected]> wrote: Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causes....nothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! Hope all is well with you! Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope <[email protected]> wrote: Susan: Are you able to have an appointment with Dr. Druker in Portland, Oregon? At least email him Hugs, Susan Rosenthal Have a wonderful day -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
