Hi Marty, I may have missed something along the road but I don't see my name on the list and at one time I emailed Zavie and told me that I was number 48. Question, is their a way for me to enter my number and name, etc.? Thanks, greenie In a message dated 4/1/2016 5:38:49 A.M. Eastern Daylight Time, [email protected] writes:
Hi Emile, actually the list is included in your message to me. I hope that everyone that is interested in the list, it goes from # 1 That's me to #826. I also have it converted to text, however be fore warned it is very long, but one thing that this list proves, just look at how many people have survived and this list is not even complete. You getting my meaning of what 18's is really all about? I want to thank you Emile for all of your work, can all of you imagine what Zavie went through, because of how much his dedication went? 18's Marty ZERO CLUB MEMBERS No. Name Surname City St Comment 1 Marty Gartenberg Staten Island NY BMT from sister. I now live in Florida 2 Linda Bartlett Cody WY Gleevec 3 Jeanelle Street Nederland TX 4 Vinny Carrasco 5 Rob Gebauer Roseville CA 6 Suzan McNamara Montreal QU Petition originator. 7 Cynthia Duty Arlington VA Mother is Kim 8 Dorothy Emery Denver NC Helped with album 9 Jill Jones Husband is Richard 10 Ellen Rubino New York NY Mother has CML Email doesn't work anymore 11 Bob Andrews Relapsed. Was in accellerated. 12 Margie Bovee Saline MI Sees Dr. Schiffer @ Karmanis in Detroit 13 Jane Graham Seattle WA 14 Marilyn Phillips Buckhannon WV Son Tim writes. 15 Chris Posadas Laurie? 16 Wayne Becken Niagra Falls ON Trial in Detroit. Diag. Mar 1989 23 Fran Evertsbusch Anchorage Alaska INF, now on Gleevec, name is Maiuri 33 Angelo Arizzo Goes to MD Anderson 34 Scott Read Kaysville UT 44 Cliff Layman Raleigh (from Schenectady NY) NC see Dr. Shea and Dr.Powderly in Chapel Hill. 45 Alayna Leppke OK 47 Joyce Ward Pickerington OH Early chronic, 0 at 3 mos. Heart attach, 1/20 in jun03 49 Dave Schulz Detroit MI Had a self transplant. 50 Giora Scharf Natanya ISR 0 by Dr. Hochhaus 52 Bob Aylesworth St. Petersberg FL Wife Dawn 54 Bob Stewart Granger IN Wife Pat 58 Judy Orem Portland OR 59 Pete Pabon Palm Harbour FL Moved from Bayside NY 60 Ken Allen 61 Riza Yilmabasar 62 Lorraine Rollo 64 Dave B. INF only 65 Jennifer Gangloff 66 Nancy Belcher Alameda CA Liver toxicity 67 Thea Rosen Dr. M. Shurafa, Henry Ford 69 Kristin Olson Lieberman San Marino CA 70 Diane Wiley Coronado CA mom hDaughter is Laura Civilikasas cml 71 David Cranmer Shelburne VT BMT relapse, wife is Allison 72 Abe Weintraub father in law Barry 73 Fposades Fish BMT 74 Dianne Ness Mpls MN Husband Paul, INF 75 Richard Rockefeller Falmouth ME Dr., was on peg inf, MSKCC 76 Angela Esders Brantford ON 77 Dana Huddleston 78 Richard Schenk Harpers Ferry WV 79 David Greenberg Hobart IN 80 Sylvia Guenther Toronto ON 81 Harmony Jaursch 82 Susan Geller Chicago IL INF, daughter Jodi has CML 83 Sandra Craine London UK lives in UK 84 Victoria Bartling 85 Marajou Janse The Hague Netherlands 86 Steven Flack San Diego CA 87 Mithun Kamath New Orleans LA 15yr, dad is Burde 88 Linda Ginn age 44 89 Phylecia Wilson 90 Peter Capel Walton on Themes Surry From Elizabeth Rees - Hammersmith 91 Steve Harvey 92 Georgia Coats Dearborn MI age 28 93 Ruth Marcon Allentown PA Dr. Shuster, NY Presbyterian 94 Tracy van Houwling Leiden NL 95 Jack Plummer Aventura FL From ACOR, Dr. Talpaz 96 Bruce Weinstock Richfield MN Had a BMT. Relapsed. Gleevec 97 Terry Lowell Littleton CO 98 Doug Tan Kuala Lumpur Malaysia 99 John Rowe Oxon Hill MD Wife Marguaritte, after 12 mos on Gleevec 100 John Calderwood Vancouver BC Still waiting. 1% left. 101 Susan Carrow Buffalo NY 102 Zavie Miller Ottawa ON 103 Amy Fischer Boca Raton FL 104 Unlucky for Japanese 105 Ken Ito Japan 106 Darlene Shepherdsville KY 107 Charlie Jensen Fort Colins CO Wife is Vicky. Relapsed Mar02 108 Ladonna Lopossa Winlock WA 207 E Walnut #22 Winlock WA 98596 FISH 0 360-785-0907 109 Steve Robinson Longview WA Wife Jenifer, met at LTN 110 Syad Ansari 111 Lisa Martinez Tampa FL 112 Gale Woliver (Bacon) Dallas TX 113 Genie Boutchia Plymouth MA Dana Farber, Dr. De'Angelo 114 Chris Duce San Diego CA His mom is Paty 115 Bonnie Liebergot Chevy Chase MD _harris.liebergot.nist.gov_ (http://harris.liebergot.nist.gov/) 116 Sal 117 Anna Powers 118 Doris Kentucky KY 119 Paula Sapinski dxd 5/4/2001 120 Joe Stark Grove OK Wife Mary, going off G May 2004 121 = Mulone Astoria NY Frances dx 5/22/2, Gleevec 5/25/01-10/2/01 bma-cyto 0% in 3 mos. 122 Beth Petrich From European Site 123 Shelley Orenstein Boca Raton FL 124 Max Hoefler Germany 125 Keith Sharrock 126 Sydna&Bob 127 Richard Wilday 128 Caroline MacDonald Husband, Steve 129 Keith Danby 130 Ruth Waldhauer La Honda CA 131 Eugene Leyvi Gene int then gleevec 132 Mark Frazer Australia see website 133 Roxianne BMT 134 Roberta Troyer Fallston MD From Jerry's list, showing resistence 135 Jirapon Chaimongkon Bankok Thailand 136 Lloyd Peterson Brother has CML Steve 137 Ron Vietti Bakersfield CA Pastor at Valley Bible Fellowship 138 Laura McCourt 139 Sandy Butler 140 Mary 141 Donna Dunn Tuscon AZ Cousin Avis Allen writes 142 Bob Farmer Bremmerton WA BMT 1993, Zero 1996, pH+ 1997, pH- 2000, see http://oc.itgo.com/ 143 Judy Levine PA 144 Bill Buckberry Hendersonville TN Wife Sue. 300mg Gleevec 145 Jehuda Driori Tel Aviv ISR His son Shai writes 146 John From Jerry's site 147 Al Rhodes Wife Lynda, at VA hospital 148 Bob Whitaker South Florida FL Wife Odile 149 John Wall Fayetteville AR 1 yr on STI 150 Doug Jensen Hood River OR Patient 13, found him in CBC news doc 151 April Bowers See Miles 151 Miles Bowers Jacksonville FL Daughter April Bowers Davis 152 Jamie Malizia Ottawa ON Wife Karen Leggettdoes all the e-mailing 153 Holly Baker St. Louis MO 154 Peter Miles Southport GB From euro list. BMT 155 Sourabh Ghosh Calcutta India 156 Shannon Sydney Australia 157 Nico Oliver Capetown SA 158 Mithun Kamath New Orleans LA Dab Burde is a prof of pharmacology 159 Joyce Mondgeau Jacksonville FL 160 Fusun Ilkay London UK 161 Steve McMillan Katy TX Wife is Nancy. Peg inf, then Gleevec 162 Mike Harris Silver Spring MD Wife Kimberly Pendergast Harris, on Gleeevec for 2 years 163 Tamara Lam Hertlelia ISR Hydrea only 164 Benyamin Reinitz Jerusalem ISR BMT, relapse 165 Yehuda Drori Ramat Gan ISR Gleevec 166 Marko Cohen Natanya ISR INF 12 years, Gleevec 9 mos 167 Ruty Glik Natanya ISR INF, Gleevec 168 Uri Cohen Sheva ISR Gleevec 169 Yossi Tavor Natanya ISR INF 2 mos, Gleevec 3 mos. 170 Ronit Shnider Rishon Lezion ISR BMT, relapse, Gleevec 171 Yoram Linman ISR Gleevec 172 Kris Ward T. Louis MO INF, CHF, Gleevec 173 Niels Hansen-Trip Ottawa ON INF, Gleevec. 106 trial 174 Neslihan Tosun Turkey Nesli, study in Germany, 0 after 3 mos. 175 Eugene Leonenko Moscow Russia From Liz Rees 176 Jim Studeman Davenport Iowa Wife Debby 177 Mark Owens Shreveport LA FISH after 6 mos 178 Ed Wife has CML. From Jerry's site 179 Roger Baker Hammersmith GB From Rees 180 Ian Sharpe GB From Rees 181 Laura Geelhoed Grand Junction CO INF 182 Carol Kalat MI From Gleevec group 183 Jeff Shaffer Louisa KY INF 8 yrs, Gleevec 6 mos 184 Mae Moyer Plantation FL GIST, from Gleevec list 185 Markus Euskirchen Berlin Germany From Gleevec group. 186 Ollie Odaka After 6 mos. On Gleevec 187 Lynne Andrews 188 Cheryl Smith 189 Duree Trautwein Houston TX Husband is William, Baylor. 190 Cindy Lewis Flower Mound TX Fairfax VA originally 191 Dona Dunn Tuscon AZ Posted by Avis Ferguson 192 Dorothy Huffstetler Kings Mountain NC Dot from Gleevec group. 193 Jim Logan Fox Point WI From STI Gazette 194 Charles Pignataro Los Angeles CA 195 Jeff Wolf Haymarket VA Gleevec/inerferon combo. Dr. O'Dweyer 196 Rachel Workman Mother is Julie, BMT, DLI, then Gleevec 197 Mariela Genta Uruguay 198 MI 199 Doug Kroeger Basking Ridge NJ Wife Gail 200 Sandra Parr Austin TX From ACOR, husband David 201 Stephanie Boyd Heath OH 202 Clyde Furumoto La Palma CA Carol is wife 203 Chris Frailey Marion IL 204 Susan Hertzog Dillsberg PA 205 Margot Menefee Wichita KA Husband Fred 206 Zazzy Hanson St. Maries ID Name is Carol 207 Jeannie Matthews Medford OR Gave her a # at 99.5 % 208 Shawn Beller Sylmar CA Wife is Heather, Holy Cross Cancer Center, Mission Hills 209 Benny Rocillo San Andres Manila From Eva 210 Jim's friend 211 Helene Anderson Oslo Norway Mother is Rune 212 Bruce Crabtree Kansas City KA Wife Jeannine 213 Sandra McKerman Tuolumne CA Looking at 3 cells. 214 Juscelino Brazil From Jerry's site 215 Hennie Bosch Netherlands 216 Mike Westland Belleville WA Firefighter 217 Julie Baumann Elmira NY After 6 mos on Glevec 218 Dennis Dricken South Bend WI 219 Earl Harford Pequot Lake MN 220 Ellen Penrod Winetka IL 221 Ken Sierzan Mayville MI On interferon. Wife is Kay. Switch to Gleevec 222 Toni Leib 223 Suzanne Dreger Escanaba MI 224 Melinda Kerner Fairfield CA Died in Aug 04. Comlications from BMT 225 Betsy Pitzman Homer AK 226 Emily Guerrant Ellensburg WA Age 24 227 Susan King South Windsor CT 228 Steve Sprague Staten Island NY Umbilical Cord Blood transplant 229 Dave Lukaszewski Milwaukee WI From ACOR 230 Alice Kjorness Cheyene WY 231 Guy Sponaugle Fairfax VA 232 Dane Tessler Treasure Is FL Daily photo 233 Larry Wickware Oaklahoma City OK Wife Tiffany - Larry had a BMT 234 Kevin Kottrel Lawrenceburg IN 235 Prescilla Atlanta GA 236 Carol Kalrak Dearborn MI 237 Joe Pfannenstiel Inman KA 238 Mike Emberton Llandudno North Wales, UK From European site 239 Jim Lynch Pittsburg MO Wife is Donna 240 Daniel Golden Springfield MO Wife is Kelly, going for transplant 241 Ellen Somerville Berkeley Heights NJ Friends with Kathy 242 Eva Manila Waiting for confirmation 243 Colleen Kanieski 244 Beau Turner Bateau Bay NSW, AU 245 Betsy Fogg Boscawen NH 246 Yehuda Drori Tel Aviv ISR Son is Shai 247 Rick Pata Oshkosh WI UofW, Madison,WI 248 Tony Garrison San Antonio TX 249 Michele Johnson Orlando FL 250 251 252 Meg Scata Middleton CT 253 Rakesh Doshi Cincinnati OH 254 Alex B Chicago IL From euro site, inf first 255 Ros and Dave From European group. 256 Elizabeth Rees London GB From European group. Goldman,Hammersmith 257 Connie Holifield Laurel MI From ACOR, Dr. K. MD Anderson 258 259 Jennifer Hudspeth Noblesville IN 260 Virginia Gardner Claremont CA UCLA trial. After 3 years. 261 Sonia Arnedo Mexico City MX 262 Jim Cook Chateaugay NY Daughter is Stephanie Leffler 263 Bryce Onaran Centreville VA Aunt Leslie Tetreault 264 Dwarka Rathi 265 Dorothy Goldstein Natanya IL 266 Ron Eaton Waiting 267 Jim Downs Palm Desert CA Linda's friend 268 Kim KR 269 Jody Capik 270 Matt Ruggiero Relapsed 6/02, cord blood trans 3/03 271 Sara Piotrowski Mondovi WI Husband Norbert publishes 'Keep America Dancing 272 Don Treated at OHSU 273 Bill Teague SC Daughter Jessica 274 Carmen Florence Italy On 300 mg 275 276 Richard Jones Rochester NY Wife Deanna 277 Karen Andrews Harvard Mass 5 kids, relapsed in 04, RAD trial 278 Maggie Plano TX 279 Jane Todd Springfield VA Turtle 280 Guy Sponaugle 281 Dave Lukaszewski Elizabeth CO Sees Dr. Link in Litleton CO. 282 Bud Huth Guelph ON Lori's dad 283 Tina Sierra Prospect CT Husband Rick 284 Karen K Maybe 285 Joey Brooklyn NY From euro group 286 Jesper Kjällquist Sweden Via BMT, from euro group 287 Mike Sample IN 288 Rev Andrew Climpson UK 289 Janet Hansen Ithaca NY Ancient Lurking Turtle 290 Barbara Heathcoat Raleigh NC Interferon 291 Eugene Leonenko Moscow RU From europen group 292 John Wheeler Nacogdoches TX Wife Nancy, 800mg, stopped due to pain 293 Susan Armour NJ 294 Keith Sharrock UK From petition messages 295 Patty Preston Derbyshire UK From petition messages 296 Aaliyah Smith UK From petition messages 297 Kristin Wolf UK From petition messages 298 Nigel Frost UK From petition messages 299 Lorrraine Rollo UK From petition messages 300 Nancy Cogan Eugene OR Reserved 301 Jeannie Douglas UK 302 Jan Geissler Bietigheim GER From Anjana 303 Stacy Coale Birmingham Alabana Age 28. Teacher 304 Carol Miller St. Cloud FL From Gleevec group 305 Nadine Vangelisti From ACOR, Dr. K. MD Anderson 306 Lisa Boyce Fairmont WV Dr. Coonley, United Hosp Clinic, Clarksburg, Wva 307 Bruce McGarth Bryn Mawr PA Age 65 308 Linda Greeneberg Palm Springs CA 309 Joe Jurkovac 310 George Nearchou Melbourne Australia 311 Dianne DeCesare Mineral Ridge OH 312 Henny Bosch Amsterdam NL Husband Annelies? 313 Paul Barsevskis Toronto ON Wife Lyn. Paul died. 314 Kathy Brown Somers CT Had Essential Thrombocytosis 315 David Smith Wife has CML. From Jerry's site 316 Suzanne Decker Gladstone MI 317 318 Ed Ranier Wife is Rosemary. 319 Laquita Neill Carrollton M Rob manages the site 320 Ellen Froyd Carpinteria CA 321 Jeanne Burns Minneapolis MN BMT, relapse 322 Yvonne Heimann NewNew Braunfels TX BMT relapse 323 Don't display See Russ 324 Ginger Jarnagin Houston TX BMT relapse 325 Dan Sponaugle Elmhurst IL Wife is Laura Walsh 326 Jeffrey Chan NJ 327 Jim Bloomquest Ellijay GA Zero on interferon 328 JR Hill Kansas City MU From Gleevec Group 329 Joe Nishide Kishiwada,Osaka JP 330 Ken Roberson Asheville NC Bad neuropathy 331 aelbaw Brother has CML Steve 332 Dennis Gasgarth Leland, Lancs UK Failed auto SCT 333 Yvonne Poulton Newhaven, Sussex UK 334 Gina Demase Chicago IL 335 Thomas Brand Minneapolis MN From ACOR group, son has CML. 336 Sarah Hulburt Dad is Bob. From ACOR 337 Alice Cramden Springfield MO Hsp70 trial 338 Geri Sehnert Rochester NY BMT, then relapse. 339 Wendell Bailey St. Augustine FL Orig from Minnesota 340 Sue Dickerson UK from eur site 341 Marcelo Filipe Simoes Cascais PO From Eur. Site. 342 Patricia de Almeida Goncalves Lisbon PO From Eur. Site. 343 Joan Hume Sydney AU 344 Maria Carpenter 345 Jody Porter Los Angeles CA 346 Rodney Shelly Shingleton MI From ACOR. 347 Douglas Yost Eden Prarie MN From Gleevec, mom is Laurel, fathered a son 348 Ed de la Cruz-Munoz Miami FL Brother is Jorge 349 Brian Land Dallas TX 350 351 Tracey In Canada Ottawa ON Good friend 352 Lynne Andrews MA Trisomy 8 353 Travis McArthur WI Father is Kent. JW 354 Anita Rowland Orangeville ON Came to my hearing 355 Mike Liston Pittsburg CA Wife is Jeanie 356 Jacki Holcomb Austin TX 357 358 Felice Bombaci Torino IT 106 on inf. 359 Jeannie Ingalls Greenville SC Husband Paul 360 Erico TW 361 Sharon Morris Running London Marathon GB Sees Hochhaus 362 Peter Lim Yeng Chuan Singapore 363 Judy Martyn Niagara Fall Ball. Ken is husband 364 Johan Drotskie Johannesburgh SA 365 Janice Amason Lineville AL 366 Dilar Vermeulen Mom is Dorita NL 367 Joan Ann Via mini BMT 368 Davina Magill From European site 369 Joseph From European site 370 Kate Debrovnik CR 371 Deana Brenner Staten Island NY Marty's friend 372 Peter Jaeggin Oakville ON T.O. Pete 373 Susan Buchman Springbrook WI From Jerry's site 374 Pramila Khanna Daughter is Vivek 375 Viviane Quadri RUDOLFSTETTEN Switzerland From European site 376 Pamela From Jerry's site 377 Shelly Pate Joplin MO From Jerry's site 378 Bob Fox From Jerry's site 379 Richard Elledge Hope AR Wife, Dani 380 John Owen Solana Beach CA From Jerry's site. On 300mg 381 Travis Northcote San Diego CA Wife is Kate Blease 382 Juan OVALLE Long Beach CA 383 Dave Milton From European site 384 Jean Yoko Craft Fruitvale BC Husband Donald 385 Walt Seldon Severna Park MD 386 Keno Elsen Frankfurt DL 387 Alfredo Campos BR 388 Ralph Robertson 389 390 Bev Belsha Milwaulie WI 391 Tamara Norton 392 Cheryl Simoneau Pointe Claire QC Born in Santa Monica 393 Rebecca Schneider 394 Steve Bowser Leicestershire GB Partner Lisa 395 Marge Valdmann ES 396 Danny Qin Manilla From Eve 397 Phil Long Plymouth Meeting PA 398 Shonoa Ruddick Santa Cruz CA 399 Judy Gingrich Lancaster PA 400 Judy Wilson Bronxville NY Husband James 401 Barbara Stanley Mesa AZ 402 Paul Somerville San Francisco CA Races motorcycles 403 Nancy Meyers Husband is Michelle. ACOR 404 Rajdeep Singh Delhi India From Anjana 405 Orit Golovity IS From Leeora 406 Marlene Ellman 407 Holly Pittsburgh 408 Erin Loeher Royal Oak MI From Gleevec group. Hodgkin's 1994 409 Debbie From Jennifer's site 410 Joyce O From Jennifer's site 411 Mariela Hillenbrand From Jennifer's site 412 Ed Draughn Morrow GA From Jennifer's site 413 Vance Werner From ACOR 414 Michel Huron 415 Judy Harvel Lancaster VA from acor 416 Kris Stebins 417 Marc Macks Baltimore MD unnamed 418 Francisco Olivera Porto PO 419 Nina Woodroff Pregnat. Mother is Denise 420 Keith Sharrock UK From Sandy 421 Richard Wilday Worcester UK From NICE 422 Jayne McCarthy Scottsdale AZ From ACOR 423 Bruce Collins Washington DC Fron ACOR 424 Suzanne Schwartz From ACOR 425 John McLeod Bellevue WA 426 Dimitri Voutselas Athens GR BMT in 1992 427 Debbie Thomas NJ Husband is Danny 428 Tami Haupt From ACOR 429 Steve Bryan From Jerry's site 430 Luis Montesino 431 Ruth Hofman Afula ISL from Giora 432 Frida Batman Afula ISL from Giora 433 V Srinivasan Chennai, Tamil Nadu India son is Venky 434 Endrias Afework El Sobrante CA From Etheopia 435 436 Tom Lehman Toronto ON Transplant at PMH 437 Benyamin Javadi Iran Father is Ahmed, Dr. is Zonovi 438 Marianne Maxey 439 Kathleen McQuillin Soquel CA 3 yrs on inf 440 Jusilo Lobao Aracaju BR 441 Freeda Barry From Gleevec List 442 Rob Harless Solona Beach CA Wife is Kelly 443 Terry Dodge West Palm Beach FL Now on BMS drug. 444 Trisha Brennecke Parsons KS 3.5 years 445 Valerie Amo Ann Arbor MI 446 Frank Vitello BMT 1/99 447 Andy Grasis Tuscon AZ Lic Plate # 448 Eran Thomson Bondi Beach, NSW AU Luke the Rat 449 Johan van der Veen Luxembourg EU 450 Tracy Keats Suffern NY Very early dx, moving to Scranton 451 Marcia Beaudry FISH relapse? 452 Fred Jung Cazenovia NY 453 Joyce Wilson Harpers Ferry WV 454 Ronald Bryan Stoney Creek VA Via BMT, wife Dottie 455 Michiel Dubois Amsterdam NL Met him in Dec03 456 Bob Samuel UK 457 Peter Quartuccio 458 459 Jan Drewett Gold Coast, Qld AU Special needs co-ordinator 460 Julia Valentine Douglas Isle of Man UK From European site 461 Jim Rodeghier New Lenox IL 462 Steve Boulton Southampton UK From European site. BMT. Wife is Sarah 463 Neil Strong UK From European sit. Wife has CML 464 Jean UK From European site. BMT. Wife is Sarah 465 Dave Feltman Dallas TX On chat 466 Erika de Haes UK 467 John From Jerry's site 468 Sara Byne From Jerry's site 469 Darin Bell Vancouver WA From WSJ 470 Andy Skidmore Enschede NL 471 Bill Wfe Marge 472 Lori Wasserman Derwood MD On INF 473 Jim From Jerry's site 474 Pat Manning Loscoe, Derbyshire GB From Eur. Site 475 Cathy Lea Toronto ON From album. BMT relapse. 476 Rakesh Gupta New Delhi India 477 Mark Stasium Portland ME Wife Sue 478 Ho-Leung Ng Oakland/Berkley CA Great researcher 479 Louis Nault Montreal QC 480 Diane Manning Looking for generic gleevec. Phillip 481 Kate Watt Montreal QC From Gleevec 482 Dave Jamrog Manchester NH From Gleevec 483 Susan Lowencamp Hartford CT On HSP70 trial 484 Cynthia Inf first. From Gleevec list 485 From Gleevec 486 Richard Soucey Waterbury CT From BMT 487 Shirley Krager 488 Mary Knotts Madison AL 489 John Doerr St. Louis MO 490 Glenn Fuller San Francisco CA trisomy 8, monosomy 7 491 Linda Baker From European site 492 Jean From Jerry's site 493 Laura Gonzalez From Jerry's site 494 Joan Clements Newport Heights CA Mary Toole's friend 495 David Roth OH Wife Ruth. 17 yrs 496 Mary McKinley Charlottesville VA From ACOR site 497 Rakesh Gupta From Gleevec 498 Scott Leslie 499 Wilma van Voorthuisen NL Met at summit 500 George Lazarowitz London ON 501 Judy Prusky Calgary AB 502 Stephanie Sylvestre Montreal QC 503 Pam May Devon UK Husband John does the email. 504 Mary Toole Mission Viejo CA 505 Miles Denham J. Aiken SC From ACOR 506 Dorothy From Gleevec 507 Steve BMT, European site. Wife is Sarah 508 Shirely Walkley Oxford UK From European site. 509 Christian Cavallero Miami FL From Miami Herald 510 Brett Ison From Miami Herald 511 John Schultz Laguna Niguel CA From ACOR 512 Jean Casey Ferndale MI Triple therapy - Gleevec 513 Terry From Europen site 514 Mary Hoglund 515 BVR Seattle WA From Gerry's site 516 HJ From Gerry's site 517 Nat 518 Maria Theresa Zenzes Mississauga ON 519 Peter Geary Aukland NZ pacific1953 520 Nancy Sutton Norway Lake ME Roland is husband 521 Grace From Europen site 522 Jacqueline Jarmusz Memphis TN Sister is Mary Ellen. Originally from Chicago 522 Mary Ellen 523 Mary Jean Hoder San Antonio TX 524 Alan Sago Father is Jim Sago 524 Jim Sago 525 Pam Truchon Germantown MD 526 Valeriano Munoz Madrid ES Spain 527 Shari Drennan ElDorado KS 528 Emile Fichault Repentigny QC 529 Bob Budynas Oahu HI 530 Richard Huffman Belton MO Dickie, vet 531 Mercedes Rodriguez Daughter is Ana 532 Hans Friessmann st.augustin Germany From Jerry's site 533 Russell Borski Broomfield CO 534 Brent Styles Blockhouse Bay NZ Dawn 535 Julie Lowsen QC 536 Bob Borland 537 Tony Davis Mom is Karyn 538 Tanya Feldman Manotick on 539 David Michaels Oakland/Berkley CA 540 Shaun Seaholm Has chromosome 9 problem 541 Ross Shirran From European site. 542 Ron Homan NC From Jerry's site. Wife is Lynn 543 Randy Provart Blaine MN 544 Theresa Migut Johnstowm PA 6 mo. On INF 545 Amy Lalonde Toronto ON 546 Syed Nasir New York NY Only 7 cells. Saba Kali 547 Pirkko KELEMAN Tampere Finland 548 Stefan DE 549 Amber Lynn Plath Menifee CA 550 Kennet DK From Jerry's list, wife is Christiana 550 Kennet Christensen Als DK From Jerry's site 551 Amy Clark Dallas TX 552 Penny Rivers Cayman Island 553 Esther Liben Montreal QC 554 Elaine Schiavo 555 Kat Miles Perth WA 556 Dawn Penny From ACOR 557 Julie Kennedy Hull QC 558 Brian Walsh Cork IRL 559 Stavros Beriatos Athens GR 560 Mark Alleman Monroe LA Relapse after 3 yrs 561 Leroy Clayton Brick NJ from Gleevec site 562 Matt Worcester Chicago IL Wife is Elizabeth 563 David Bradley Interlochen MI 564 Aaron Bullingham UK Mother is Jayne, BMT 565 Stuart Lefebvre Allen & Gail are parents 566 Andi 567 Tammy Hunt Winter Park FL hoakierollerr 568 Vinnie Falgione Pittsburgh PA 569 Janet 570 Norm 600mg 571 Anna Grimm Midland TX 572 Kathy Finnigan Cataumet MA 573 Melinda Folse Slidel Louisianna From Jerry's site, mutations 574 Helen From Jerry's site 575 Alison European site 576 Richard Schempp Neilberg SK 577 Chris Stickle Branchburg NJ 578 Sharron Wallace From Gerry's site 579 Carolyn Oehrle Louisville KY From Jerry's site 580 Lynne Frankli PA Zero after 11 weeks. Liver toxicity 581 Micheline Campeau From Cheryl 582 jhill 583 Brian Manning From European site, wife Pat posts. 584 Susan Rosenthal Miami FL 585 Jim From Gleevec list 586 Sharon Hudson MA 587 Lisa Perry 588 Larry Hicks 589 Rodney 590 Cindy LOUEY Melbourne AU 591 Sandy Butler From Jerry's site 592 Stan Ste Croix Barrie ON From Jerry's site 593 John Bonistalli Elliot City MD Wife is Dane, pregenant 594 Barbara Masters Grants Pass OR 595 Chandra Singh Mumbai India From Ferry's site 596 Ed From Jerry's site 597 Simone The Pas Manitoba (Sunny)Priscilla is mom. 598 Carl Davies PA 599 Janet Greenberg Toronto ON Met her at Winter 2004 600 Jack Hooper Canto GA Jenny's dad 601 Valorie Reid Kalamazoo MI Fronm Jerry's site 602 Glenda Smith Joplin MO Fronm Jerry's site 603 Fides Putong From Asian List via Eva 604 Valentina Gomez From Asian List via Eva 605 Phyl D Cantom MI 606 Julianne Harju MI 607 Patricia de Almeida Dever from European site 608 Marion Staplefeld Ryegate VT Moe 609 Annette Babb 610 Krithika Adimoolam Chennai India From Asian site 611 From Asian site. On inf. 12 yrs 612 Edna Boyd 613 Don Adkins Colorado Springs CO 614 Paul coonass2112 615 Elizabeth Duley Kents Store VA CCR on INF, relapsed, then Gleevec 616 Chris Woodroff Problem with email address European site 617 Ethan Christina reports. European site 618 Esther Harper European site 619 Donna Swart Auburn WA 620 Doc wants her to go off Gleevec 621 Nancy Craig Gorham ME BMT. From Jerry's site 622 Mike Cleaves Port Republic MD Wife has CML. Was on GM-CSF and INF trials. 623 Stacey Atkinson From European site 624 Sandy Weber Cincinnati OH From Asian site 625 Jill Jones Stourbridge, Midlands UK From European site 626 Matthew Loos Iowa City OW 627 Robert Jackson San Francisco CA Wife is Sharon Parker. From Jerry's site 628 Dana Burba 800 trial at MDA 629 Nadine Lim From Eva, Phillipines 630 Alen Glen Sayson From Eva, Phillipines 631 Alona Garrido From Eva, Phillipines 632 Steven Persaud NYC? NY Mother is Angelo 633 Charles Gilbert Susan Zencka's dad. Turtle 634 Juergen Karl Frankfurt DE 635 Christine Barthelemy FR Has liver toxicity 636 Jimmie Phillips Hattiesburg MS 637 Carlos Valentia Tuscon AX Cord blood, IM. From Tuscon newpaper 638 Paul Patterson Bartlesville OK Dr. wants to stop Gleevec 639 Bob Glover Hornsby AU From Asian group 640 Wayne Cox 641 Don 642 Gloria Dunford Westland MI 643 Desnee Lynne McClarnan Swansea, Wales UK From European site 644 Ruth Collins 645 Andreas Wertberg DE from Asian site 646 Amy AU From Perth, now in Georgia 647 Andrew Sklarz Yardley PA From Cheryl 648 Yvette Hyland Weston-super-Mare, Somerset UK From European. Jason's wife 649 Kathy Soloff Penn Valley PA From Asian site 650 Steen Lyngvig From European site 651 Jessie Altura Calgary AB BMT from sister. 652 Josh From Jerry's site 653 Rosanna Bernstein Miami FL Qult for Druker 654 655 Chris Lambert From Eur. Wife is Sarah 656 Mike Bernardino From Jerry's site, keep confid 657 Jeff Vierstra From Jerry's site. BMT 658 Lauren AU From Jerry's site. BMT 659 Stephan UK From Eur. BMT. Parents Neil&Sam 660 Genevieve Russo Her daughter has CML 661 Amanda Olivere Newark DE Jerry's site 662 Joan Porter Jacksonville FL 663 Both are 82. Wife has CML. 200mg 664 Maximo Olivo Venice IT From Jerry's site 665 Nasir Chestnut Ridge NY From Asian Group 666 Rory Collins 667 Lynne Nadal Vancouver WA From Jerry's site. 132 in Appreciation album 668 Elmer HU 669 Marie Chapman Frum Eur site. BMT 670 His father has CML. In appreciation album 671 Massoud 672 Cindy Paul #638 friend. Had a BMT 673 Tom From euro site. Wife Karen 674 Rosey Brenan Vancouver BC Sister is Elizabeth 675 Susie Leech Port Lincoln AU 676 Kathleen Verderber Southgate KY 6 mos in Naples, FL 677 Laura H Paducah KY From Jerry's site 678 Mark From European 679 Jerry From Jennifer's site 680 Ray Haines From Jennifer's site 681 Kennet Geihsler Houston TX Called his son 682 Monique Kuijpers NL Met at Milan meeting 683 David Pillow UK 684 Judy From European site. See Patty Preston 685 Richard Jones UK Brother has CML 685 Simon Jones UK 687 688 Ed From Jerry's site 689 Sara Byne Charlottesville NC From Jerry's site 690 Charley Morgan Ogden UT 691 Janice Jackson UK "European site. Had a mini BMT. http://homepage.ntlworld.com/dave.jackson4/homepage.htm " 692 Lynne 693 Darlene Lawless UK From Europ site 694 Barry Stark barryhuthut from chat 695 Amanda Lane From Europ site. Wants a baby 696 Denis Hung From Asian site 697 Pamela Levine NY From Jerry's site 698 Philip Kruger Montville NJ From Jerry's site. Thank you 699 Judy Telford Melbourne AU BMT relapse after 11 years. 700 Bob Wilhelm Wife Nancy. BMS trial. Desert Tortoise. 701 Sheila Durbin Utica KY Husband is David 702 Jim Johnson 703 Dee 704 Larry Moe Newbury Park CA Relapsed on 300 mg 705 Steve Silver Montreal QC Inf 9 yrs. 706 Don Tracy Sherman PA Nam Vet 707 Christine Finsand ACOR 708 Valerie Scott ACOR. In album. 709 Karen Sos 710 Peter Stick From Jerry. BMS trial 711 Suzanne Festa CN From Asian 712 Chloe 3 yrs old 713 Morgan Blackford 6 yrs old, Michelle is mom 714 Eleanore Perkins 715 Debra Moretz 716 Jason Nagy 717 Suzanne Festa 718 Ron Lacy 719 Masoud Seyedjalali From Asian site 720 Vickie From Jerry's site 721 Geeta 722 Mary Hooker Bebton LA From PLWC ASCO site 723 Victoria From Jerry's site 724 Eoghan Gallagher Strokestown IR From European site 725 Sultan FR From Jerry's site 726 Derek Bergmann UK From European site. 727 Richard Troxel Newhall CA 728 Sergio Garcia Orange County CA 729 Susan Dale FR From BMT in France 730 Jim Simpson Winnipeg MA From European site 731 Denis Culligan Dublin IR From European site 732 Tonya Atlanta GA 733 Miles Levim BMT 734 Dee (Doreen) Hedman Duluth MI 735 Marilynn 736 Sam European site. 737 Barbara Marfleet European site. 738 Marlene Curby Low ANC. On Asian list 739 Marcia ON Marcia is wife. From Jerry'e site. 740 Joyce Davis European site. 741 David Landry Debbis is his mom 742 Stuart is husband. Eur. Site 743 Ian Prudence UK Kathy is wife. From Europ site 744 Melinda Pierce 745 Dawn Cigainero Hooks TX Husband is Chris. From ACOR 746 Nathalie Doyle Contz les Bains FR Had a baby 747 Betsy Carlin Holmdel NJ Husband is James 748 Mike Siegel Cyclist. Newspaer Article 749 m&m 750 Eva Brubaker Upland CA On BMS drug 751 Michael Herring Atlanta GA Retired military. Back to school. Eur. Site. 752 Linda Scukins European site 753 Paul Codrington Minster, Isle of Sheppey UK 754 Carolyn Bullard BMT 755 Tommy Tbone From Jerry's site. BMT relapse 756 Nancy Chando Hurley NY 757 Mark Pardy New Milton, Hamp UK From European 758 Celsey Daniels Calgary AB From Jerry 759 Tom Cripps BMS. Wife is Teresa 760 TD BMS From Jerry 761 Nadine Awde Asian 762 Rosaura Santa Orlasndo FL Eur. Site 763 Jose N 764 Teresa Tadros Tallahasse FL 765 Daniella Whittington UK Had a baby. 766 mctx Afro American 767 Bob 768 Julie Breton Mascouche QC 769 Stephanie Canton NY 770 Jacqueline 771 Adam 772 Dan 773 Philip Kaplan NY Had a BMT. 16oct03 774 Alain Branchereau Frankfurt Germany From Asian 775 Amanda Harris MI From Asian 776 Sam Blood From European 777 Bernard Davidoff From Asian 778 Eugenea Bouchia From Asian. Genie See # 113 779 Krithika Adimoolan Asian 780 Michael MUD 5 yrs ago. Great shape 781 Jonathan Mom is Fran 782 Steen Langeland dk 783 David Gulledge Birmingham Alabama Ann Jessup -Fiancee David has CML 784 Teoh Poh Tiong Singapore Malysia BMT relapse, PT on chat 785 Rodney Cole Halifax NS Turtle 786 Gordon Crawford Crewe, Cxheshire UK Did a stem cell collection 787 Dr. Shital Kiran Bangalore India Wants to father a child 788 Gay Bratton Turtle - Dec 99 789 Brenda Morelli 790 Carol Salmon Dad on BMS 791 Kit Yong Houston TX From Asian site 792 Andreas Shattler Toronto ON 793 Libby Scrivner Mobile AL 794 Christine Finsand Chatfield MN 795 Debbie Coopwood Tuscon AZ From Druke Tribute Album 796 Ruth McIntosh From Asian. On AMN107 797 Gwen Nowland Victoria BC Via BMT-18NOV03 798 Annie Kennedy Edinburgh UK Euro site 799 David Wolovitz Glem Mills PA 800 Jerry Mayfield 801 Judy J Jerry's site 802 Ricky Zhao Shanghai CH 803 Nick 804 Jim Carlson 805 Barbara Meunier 806 Kyle Hoover Wiffe Marge. had BMT, relapse, Gleevec 807 Erin Zammett New York NY Editor for Glamour mag 808 Mark Sharp WA BMT. Wife Katrina 809 Meghann Bell 810 David UK site. In trial with 811 Kay Tweety MI Black lady 812 Ron Groves From Jerry's site 813 Fjohn 814 Tom Green Bay WI From CML Hope 815 Pat Reynolds Lynnville TN via PCR 816 Tommy Cleaver Winchester VA Mom is Suzan Schabo 817 Craig Cooper UK wife is Maria 818 Andrew AU European site. 819 John Thompson Murietta CA 820 Angela Tyrell Eur. Site. 821 Geoff Thomas UK BMT. Football star. 822 Siri Jinadasa Montreal QC Met at YUL meeting 823 Phil North Somerset UK European site. 824 Thiva GR From Jerry's site. Wife is Elena 825 Peter Howlett AU hottuna_au 826 Dieter GermanyJrrr'ys site ---------- Forwarded message ---------- From: Emile Fichault <[email protected]_ (mailto:[email protected]) > Date: Thu, Mar 31, 2016 at 10:21 PM Subject: RE: [CMLHope] ZAVIE ZERO CLUB NUMBER To: "[email protected]_ (mailto:[email protected]) " <[email protected]_ (mailto:[email protected]) > Yes , I join a file with my invoice , it's an Excel file . I wish you be able to open that . If you can't , contact me directly at [email protected]_ (mailto:[email protected]) , I will see what I can do . And like you say Uncle Marty : 18's Take care Emile ____________________________________ De : Emile Fichault Envoyé : 31 mars 2016 16:29 À : [email protected]_ (mailto:[email protected]) Objet : RE: [CMLHope] ZAVIE ZERO CLUB NUMBER Zavie did send me long time ago a list of the zero club . At this time , the last one was around no 800 ( like I said , long time ago ) . So I hope this information will help you . Emile , Repentigny , Canada . no 528 of the VIP list of our friend Zavie . ____________________________________ De : [email protected]_ (mailto:[email protected]) <[email protected]_ (mailto:[email protected]) > de la part de Marty Gartenberg <[email protected]_ (mailto:[email protected]) > Envoyé : 31 mars 2016 16:21 À : [email protected]_ (mailto:[email protected]) Objet : Re: [CMLHope] ZAVIE ZERO CLUB NUMBER - INVITATION I believe that Ida had it but when she died I guess that it went with her. Maybe some one that I don't know of may still have it, try asking around. 18's Marty On Thu, Mar 31, 2016 at 3:40 PM, 'Icandoallttc' via CMLHope <[email protected]_ (mailto:[email protected]) > wrote: Hi all, I got my number many years ago but can't remember it. Did he have a list and does anyone have access to it? Thanks My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 31, 2016, at 12:14 PM, Myvety2k via CMLHope <[email protected]_ (mailto:[email protected]) > wrote: Marty, I forgot to add that many people would ask me what the number 48 on the side of the hat stood for, then I would tell them the story about Zavie, etc. greenie In a message dated 3/31/2016 12:12:27 P.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Marty, I do remember the good old day's and Zavie's club which I am #48. Well, anyway I had some hats made up, I was stationed at the "Glenview Navy Air Station" for 6 Years from 1956 to 1962, and on the side of each hat I had the number 48 embroidery on the side of all the hats. I still where them every day. Greenie, South Fort Myers, FL. In a message dated 3/31/2016 11:27:36 A.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Sue, I don't like to get involved with any social media because, first I just don't have the time and I am to busy as well as for some personal reasons. If it helps, many years I actually personally knew Zavie and his wife Ida, and since my bone marrow transplant came way before became Zavie became because of how active I was even able to help him. I remember when he first met Dr. Drunker and started on a drug at the time that was called STI-571 which then became Gleevec. And this became something what was able to save so many lives of the people with CML, and still does, more and more drugs (TKI) started to spring up, and this is why I always keep saying that there WILL be a cure soon. Probably most of the newcomers to CML, as we referred to it as "the club that no one wants to be in" probably never even heard about Zavie or even have never seen him. So without further a-due let me present you with a picture of him an the cover of a magazine that I have kept for a very long time. I am also number 1 in Zavie's zero club, and Zavie and Ida personally presented it to me when they were down in Florida. The last thing I would like to say about Zavie is that he was a real Mensch, meaning a real good man. Also please let me know if you were able to receive this along with the picture I have enclosed in the attachment. 18's Marty On Thu, Mar 31, 2016 at 10:00 AM, Sue <[email protected]_ (mailto:[email protected]) > wrote: Hi Everyone Are you on face book – If so we have a new face book page seeking to reconnect with those who received a ZAVIE ZERO CLUB NUMBER Facebook Page for those who were diagnosed prior to 2010 Searching for those who were on the Yahoo Site prior to June 2010 ... and presented with a Zero Club Number when they got to CCR Do you have a Zavie Miller ZERO CLUB Number ? If so please join this group - add Name, Number, where located, how long you have been diagnosed with CML, medication and dose and how you are currently. Zavie always left a sign off with a Yippee !! Yahoo !! https://www.facebook.com/groups/1673390782910601/ ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU ? Reunite with friends from the start of your diagnosis of CML (Yahoo) Group The Zavie Zero Club Number only went up to 1340 as this was the last number presented Thank you in advance Sue Hurt (Australia #1197) -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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