Thanks Emile, I didn't get remission until I was put on Sprycel in 2009. I believe I was in the 900 # list. Thanks for giving us the list. Blessings Jeanie<3 In a message dated 4/1/2016 9:17:30 A.M. Eastern Daylight Time, [email protected] writes:
Hi Emile, I have been getting some posts from this site asking to be able to put themselves on the list. I couldn't sleep so I was up from 3 am until now trying to peace everything together. I know for a fact that Bobby Doyle is 840 but it wasn't posted. Then there is Jeannie and they just posted this morning so their posts should appear right this morning. I would kindly ask you to update their name/s into the list it could start the ball rolling. However if anyone doesn't remember their number then it would probably make things very difficult but maybe if someone out there does have the rest of the of list then "Bingo" were in business! There is another site that I usually post on and I already have posted the list on there but for now lets try getting everything on here. I am really tired now so I need some restful sleep about now. Thank you everyone. 18's, Marty On Thu, Mar 31, 2016 at 4:29 PM, Emile Fichault <[email protected]_ (mailto:[email protected]) > wrote: Zavie did send me long time ago a list of the zero club . At this time , the last one was around no 800 ( like I said , long time ago ) . So I hope this information will help you . Emile , Repentigny , Canada . no 528 of the VIP list of our friend Zavie . ____________________________________ De : [email protected]_ (mailto:[email protected]) <[email protected]_ (mailto:[email protected]) > de la part de Marty Gartenberg <[email protected]_ (mailto:[email protected]) > Envoyé : 31 mars 2016 16:21 À : [email protected]_ (mailto:[email protected]) Objet : Re: [CMLHope] ZAVIE ZERO CLUB NUMBER - INVITATION I believe that Ida had it but when she died I guess that it went with her. Maybe some one that I don't know of may still have it, try asking around. 18's Marty On Thu, Mar 31, 2016 at 3:40 PM, 'Icandoallttc' via CMLHope <[email protected]_ (mailto:[email protected]) > wrote: Hi all, I got my number many years ago but can't remember it. Did he have a list and does anyone have access to it? Thanks My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 31, 2016, at 12:14 PM, Myvety2k via CMLHope <[email protected]_ (mailto:[email protected]) > wrote: Marty, I forgot to add that many people would ask me what the number 48 on the side of the hat stood for, then I would tell them the story about Zavie, etc. greenie In a message dated 3/31/2016 12:12:27 P.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Marty, I do remember the good old day's and Zavie's club which I am #48. Well, anyway I had some hats made up, I was stationed at the "Glenview Navy Air Station" for 6 Years from 1956 to 1962, and on the side of each hat I had the number 48 embroidery on the side of all the hats. I still where them every day. Greenie, South Fort Myers, FL. In a message dated 3/31/2016 11:27:36 A.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Sue, I don't like to get involved with any social media because, first I just don't have the time and I am to busy as well as for some personal reasons. If it helps, many years I actually personally knew Zavie and his wife Ida, and since my bone marrow transplant came way before became Zavie became because of how active I was even able to help him. I remember when he first met Dr. Drunker and started on a drug at the time that was called STI-571 which then became Gleevec. And this became something what was able to save so many lives of the people with CML, and still does, more and more drugs (TKI) started to spring up, and this is why I always keep saying that there WILL be a cure soon. Probably most of the newcomers to CML, as we referred to it as "the club that no one wants to be in" probably never even heard about Zavie or even have never seen him. So without further a-due let me present you with a picture of him an the cover of a magazine that I have kept for a very long time. I am also number 1 in Zavie's zero club, and Zavie and Ida personally presented it to me when they were down in Florida. The last thing I would like to say about Zavie is that he was a real Mensch, meaning a real good man. Also please let me know if you were able to receive this along with the picture I have enclosed in the attachment. 18's Marty On Thu, Mar 31, 2016 at 10:00 AM, Sue <[email protected]_ (mailto:[email protected]) > wrote: Hi Everyone Are you on face book – If so we have a new face book page seeking to reconnect with those who received a ZAVIE ZERO CLUB NUMBER Facebook Page for those who were diagnosed prior to 2010 Searching for those who were on the Yahoo Site prior to June 2010 ... and presented with a Zero Club Number when they got to CCR Do you have a Zavie Miller ZERO CLUB Number ? If so please join this group - add Name, Number, where located, how long you have been diagnosed with CML, medication and dose and how you are currently. Zavie always left a sign off with a Yippee !! Yahoo !! https://www.facebook.com/groups/1673390782910601/ ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU ? Reunite with friends from the start of your diagnosis of CML (Yahoo) Group The Zavie Zero Club Number only went up to 1340 as this was the last number presented Thank you in advance Sue Hurt (Australia #1197) -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . 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