Hi Beth and thanks. My Creatine level was 0.9. The normal is 0.5-1.0. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center
> On May 3, 2016, at 2:44 PM, bkbarney via CMLHope <[email protected]> > wrote: > > CPK doubled in the last two months to 700. Monoclonal protein they had been > tracking for the last two years is up...BCR abl will hopefully be a good > result... Then we plan from there... > > Marty, I just went to the national Bone Marrow Transplant Survivors > conference this weekend...I went as the caregiver and helper to my best > friend who is now 2.5 years out and struggling with graft vs host. I went to > 9 seminars and met lots of people ..wow...so humbling, inspiring, > overwhelming...and I thought of you.all those years ago....before all these > advances have been made.....hope you are feeling better...I know you will > stay positive, and strong..I am thinking of you.. > > > and Jeanie, the session I went to on faith, spirituality and illness ....was > right up your alley...you and many other's here.. > > also did a nice piece on yoga and meditation, complementary medicines, > nutrition....pain management, sleep issues...etc..etc..really well done > weekend. > > and the importance of not getting lost in our heads, in fear, and > ruminating...but instead, staying anchored, and reaching out so we are not in > isolation.... > Thinking of all of you.. > > Love, Beth > 18's.. > > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, May 3, 2016 12:12 pm > Subject: Re: [CMLHope] Prayers are offered. > > What are the changes in your blood work if u don't mind sharing Beth?I have > several things out of range but just slightly. > > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope > <[email protected]> wrote: > > Beth, yes, a long time since you've posted. Please let us know your results. > Sending prayers and hugs. > > Marcie > > Sent from my iPhone > > On May 2, 2016, at 2:05 PM, bkbarney via CMLHope <[email protected]> > wrote: > > Thank you Richard for your kind words and prayers. They are always so > appreciated. You are such a stable presence here. I so appreciate your > thoughts and help. I hope everyone is navigating the best they can. Know that > I think of all of you often...haven't written much because of my own > journey...I am sorry if I missed out on communicating with those who are > struggling recently. All of you are in my heart. > > I do BCR abl next week..so please keep your fingers crossed. I have more > anxiety about this one for some reason... My basic blood work shows some > changes that are in the wrong direction...hopefully things are stable in the > CML realm. > > Will keep you posted.. > > Much love and 18's, Beth > > -----Original Message----- > From: Richard H <[email protected]> > To: CMLHope <[email protected]> > Sent: Sun, May 1, 2016 11:11 pm > Subject: Re: [CMLHope] Prayers are offered. > > Thank you. > Richard > >> On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >> Just one thing to say Richard H. Your like the rock of Gibraltar. >> >> 18's to you! >> >> Marty >> >>> On Sat, Apr 30, 2016 at 12:07 AM, Richard H <[email protected]> wrote: >>> I am sorry to hear about all the problems everyone is reporting. I am >>> lifting prayers for healing to those with problems and for the caregivers >>> prayers of understanding and strength to help them be the support they want >>> and need to be. >>> >>> I am just coasting with all my problems and trying to deal with lower >>> strength because of them. I have changed a couple of Doctors because they >>> started practicing too far away. They have reviewed my records and have >>> updated me on things that I don't remember being told about and clarified >>> some things that were given as side inference. I am also adding a new >>> heart med and will be monitored to see if I need to change others on my >>> list. >>> >>> 18's >>> >>> Richard H. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
