Beth, Jennie and all of you that are "residing" in this CMl web site are just EXCELLENT PEOPLE, it's just you don't realize it... Yet.
18's, Marty On Wed, May 4, 2016 at 10:43 AM, 'Icandoallttc' via CMLHope < [email protected]> wrote: > Hi Beth and thanks. > My Creatine level was 0.9. The normal is 0.5-1.0. > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On May 3, 2016, at 2:44 PM, bkbarney via CMLHope <[email protected]> > wrote: > > CPK doubled in the last two months to 700. Monoclonal protein they had > been tracking for the last two years is up...BCR abl will hopefully be a > good result... Then we plan from there... > > Marty, I just went to the national Bone Marrow Transplant Survivors > conference this weekend...I went as the caregiver and helper to my best > friend who is now 2.5 years out and struggling with graft vs host. I went > to 9 seminars and met lots of people ..wow...so humbling, inspiring, > overwhelming...and I thought of you.all those years ago....before all these > advances have been made.....hope you are feeling better...I know you will > stay positive, and strong..I am thinking of you.. > > > and Jeanie, the session I went to on faith, spirituality and illness > ....was right up your alley...you and many other's here.. > > also did a nice piece on yoga and meditation, complementary medicines, > nutrition....pain management, sleep issues...etc..etc..really well done > weekend. > > > and the importance of not getting lost in our heads, in fear, and > ruminating...but instead, staying anchored, and reaching out so we are not > in isolation.... > > Thinking of all of you.. > > Love, Beth > 18's.. > > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, May 3, 2016 12:12 pm > Subject: Re: [CMLHope] Prayers are offered. > > What are the changes in your blood work if u don't mind sharing Beth?I > have several things out of range but just slightly. > > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope < > [email protected]> wrote: > > Beth, yes, a long time since you've posted. Please let us know your > results. Sending prayers and hugs. > > Marcie > > Sent from my iPhone > > On May 2, 2016, at 2:05 PM, bkbarney via CMLHope <[email protected]> > wrote: > > Thank you Richard for your kind words and prayers. They are always so > appreciated. You are such a stable presence here. I so appreciate your > thoughts and help. I hope everyone is navigating the best they can. Know > that I think of all of you often...haven't written much because of my own > journey...I am sorry if I missed out on communicating with those who are > struggling recently. All of you are in my heart. > > I do BCR abl next week..so please keep your fingers crossed. I have more > anxiety about this one for some reason... My basic blood work shows some > changes that are in the wrong direction...hopefully things are stable in > the CML realm. > > Will keep you posted.. > > Much love and 18's, Beth > > -----Original Message----- > From: Richard H <[email protected]> > To: CMLHope <[email protected]> > Sent: Sun, May 1, 2016 11:11 pm > Subject: Re: [CMLHope] Prayers are offered. > > Thank you. > Richard > > On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >> >> Just one thing to say Richard H. Your like the rock of Gibraltar. >> >> 18's to you! >> >> Marty >> >> On Sat, Apr 30, 2016 at 12:07 AM, Richard H <[email protected]> wrote: >> >>> I am sorry to hear about all the problems everyone is reporting. I am >>> lifting prayers for healing to those with problems and for the caregivers >>> prayers of understanding and strength to help them be the support they want >>> and need to be. >>> >>> I am just coasting with all my problems and trying to deal with lower >>> strength because of them. I have changed a couple of Doctors because they >>> started practicing too far away. They have reviewed my records and have >>> updated me on things that I don't remember being told about and clarified >>> some things that were given as side inference. I am also adding a new >>> heart med and will be monitored to see if I need to change others on my >>> list. >>> >>> 18's >>> >>> Richard H. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope- > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope- > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
