Glad you are home safe and blood work is good. You are truly a wonder. I haven't flown for a long time but have been in choppy Rides. Flying hurts my ears really bad. My Moffitt is the last of this month. I hope my blood is good also. Blessing.
Sent from my iPhone > On Jun 2, 2016, at 2:32 PM, Myvety2k via CMLHope <[email protected]> > wrote: > > Hi Group, Well I awoke at 3 a.m. to get ready to fly to Chicago to see Dr. > Altman, get my blood work, etc. and fly home. But when I got to the airport > 2 hours early their was a line of about 100 young people that were on their > way to Washington D. C.. My plane came in 35 min. late after getting fuel we > had mechanical problems and that put us behind. My appointment was at 10:15 > and we arrived at 8:55 a.m. and my son picked me up and got me their on time. > > Saw the Doctor, got my blood work which came back O. K. and Derek picked me > up and took me to the airport. Another 2 1/2 wait to get through. Got ready > to take off put their was a head count problem. Let's say their was 100 > people aboard and the paper work showed 99. We had to start over again and > called each and every one to find out the problem and the computer didn't > read the persons ticket right, so took of 55 min. late. Was up at 40 > thousand feet and ran in to clouds and turbulence so we dropped down to 10 > thousand feet and a much smoother ride. I used to be a private pilot and I > can tell you it was like riding on a roller coaster. > > Well anyway he made up time on the way their but we ran into thunderstorms > and lightning so we circled and circled and circled until we had to fly up to > Tampa, FL. to refuel. More time lost, took off again for Fort Myers which > took only 26 min. it's a 2 1/2 hour drive. Landed many hours late and > instead of having my wife pick me up I took a taxi home for $36.00. They > wouldn't let us text or call while we were on the plane so my wife was > worried sick. She called Southwest to find out what happened and gave them a > piece of her mind. > > So life goes on and I home tired but as the song goes on (I will survive). > > Was a fun day, > > greenie > > In a message dated 6/1/2016 1:34:18 P.M. Eastern Daylight Time, > [email protected] writes: > HI KATHY, > i'm Christina, from Greece. I'm 52 years old and i have been diagnosed in > 2009 when i was 45 years old. I started with Gleevec 400 mg every day for 5 > 1/2 years, i was in recession for 3 years so in 2015 my doctors said that i > could try to stop the medicine. But after 3 months my bcr-able was 2,3. > So i started tasigna 600 mg (300 mg in the morning and 300 mg in the > evening). One year after i'm in recession again (the latest 6 months i'm > negative, bcr-able can not be detected). I'm so happy for it and i feel > great!!! But after 9 months with tasigna i get high LDL(175) and > cholesterole (280) and a few pimples sebum ιn my arms. For the pimples i > used an intensive exfoliating creme with olive.For the LDL i take care of my > diet (only mediterranean diet, not junk food at all). My doctors told me that > i don' t need a medicine for the cholisterole yet. Only swimming in the sea. > walking, good diet, good psychology and faith something like an holistic > approach (like HIPPOCRATES said) to this problem. For me the Gleevec effects > where terrible (diarrhea, vomiting, blood -storms in my eyes ). I prefer > Tasigna and i take my risks. Maybe it would be a good idea to talk once again > with your doctors (dermatologist,hematologistic, gynecologist). > best wishes > thinking of you > C. > > > > 2016-05-31 4:27 GMT+03:00 kathy walls <[email protected]>: >> I'm still a newbie was diagnosed 1/9 and started tasigna on the 23rd, oh >> yeah I'm lucky enough to have the ph chromosome to boot. I stopped tasigna >> in December because of horrible side effects, I got an awful rash and cysts. >> Switched to Gleevev and I feel much better, but did dr said at this level i >> will never see remission. I'm ok with that. Quality of like is much >> important to me than quantity. I'm 56 I have a 4 yr old grandson and 3 >> month old grandson. I'd much rather a little pep in my step than being in >> remission but to sick to anything! Just my thoughts. We all are fighting >> the same fight each in our way >> BEST TO ALL. -18's >> Kate >> >> Sent from my iPhone >> >>> On May 30, 2016, at 8:55 PM, Marty Gartenberg <[email protected]> wrote: >>> >>> Yes Jeanie, >>> >>> we are still all kicking! Jeanie what happened in the past according to >>> your oncologist about you being to old should remain in the past and I will >>> tell you why. I also want you to think about something called BASHERT, >>> which I have already mentioned many times. It's meaning is it was meant to >>> be. Sound familiar? I believe that things that are meant to be are >>> predestined. >>> >>> For instance this site, and everyone that reads it or posts on it are meant >>> to be because all of us are still kicking (as you said) and we all share >>> this disease called CML and let's not forget that. >>> >>> There are so many stories that surrounds us and every one of them are meant >>> to be. We all stand here and try help each other. Why? it's because it is >>> meant to be. We give of each other, and also to each other, and you know >>> what I am talking about. It is all about trying to live our lives the best >>> way that we can. >>> >>> Also, all of these new TKI's weren't they all predestined or if you like, >>> meant to be? That is how I look at things, how about you? And how about >>> everyone else here? >>> >>> Why do you think I always end any of my posts with those two numbers? 18's, >>> because it stands for life, and isn't that we have now. >>> >>> 18's, >>> >>> Marty >>> >>>> On Mon, May 30, 2016 at 5:41 PM, 'Jeanie' via CMLHope >>>> <[email protected]> wrote: >>>> Thank you so very much Marty. >>>> If I knew then what I knew today I think I would have >>>> Had the transplant. My onc at that time thought I >>>> Was too old. However I'm still alive and kicking >>>> After 4 tkis. I am sick; I can't seem to kick this flu. >>>> Just resting after my vacation. >>>> I sure had a good time with family. >>>> Thanks for all as usual. >>>> >>>> Sent from my iPhone >>>> >>>>> On May 30, 2016, at 4:57 PM, Marty Gartenberg <[email protected]> wrote: >>>>> >>>>> >>>>> Hi again Jeanie, >>>>> >>>>> I just spoke with my good friend Gloria today and I asked her if she >>>>> wouldn't mind for me to send you and the rest of the group three of her >>>>> pictures. One before her BMT, one during her BMT and one about one year >>>>> after her BMT. She thought it was a very good idea. She also mentioned >>>>> that she would like to try getting onto this CML site and introduce >>>>> herself so please be on the lookout for her. >>>>> >>>>> The main thing here is those pictures which proves that there is life >>>>> after a bone marrow transplant. Think about something else... What about >>>>> those 1,286 people, including myself which now makes it 1,287. >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>> Scroll down please... >>>>> >>>>> >>>>> GLORIA >>>>> >>>>> Forward >>>>> Edit subject >>>>> Pop out reply >>>>> >>>>> >>>>> To >>>>> >>>>> [email protected] >>>>> >>>>> CcBcc >>>>> Cc >>>>> >>>>> Bcc >>>>> >>>>> >>>>> >>>>> Replies will be sent from [email protected] >>>>> Loading... >>>>> >>>>> >>>>> >>>>> >>>>> <image.png> >>>>> >>>>> >>>>> >>>>> Image: >>>>> Small|Best fit|Original size|Remove >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> Sans Serif >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this 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