On Mon, May 30, 2016 at 9:27 PM, kathy walls <[email protected]>
wrote:

> I'm still a newbie was diagnosed 1/9 and started tasigna on the 23rd, oh
> yeah I'm lucky enough to have the ph chromosome to boot.  I stopped tasigna
> in December because of horrible side effects, I got an awful rash and
> cysts. Switched to Gleevev and I feel much better, but did dr said at this
> level i will never see remission.  I'm ok with that.  Quality of like is
> much important to me than quantity.  I'm 56 I have  a 4 yr old grandson and
>  3 month old grandson. I'd much rather a little pep in my step than being
> in remission but to sick to anything!  Just my thoughts. We all are
> fighting the same fight each in our way
> BEST TO ALL. -18's
> Kate
>
> Sent from my iPhone
>
> On May 30, 2016, at 8:55 PM, Marty Gartenberg <[email protected]> wrote:
>
> Yes Jeanie,
>
> we are still all kicking! Jeanie what happened in the past according to
> your oncologist about you being to old should remain in the past and I will
> tell you why. I also want you to think about something called BASHERT,
> which I have already mentioned many times. It's meaning is it was meant to
> be. Sound familiar? I believe that things that are meant to be are
> predestined.
>
> For instance this site, and everyone that reads it or posts on it are
> meant to be because all of us are still kicking (as you said) and we all
> share this disease called CML and let's not forget that.
>
> There are so many stories that surrounds us and every one of them are
> meant to be. We all stand here and try help each other. Why? it's because
> it is meant to be. We give of each other, and also to each other, and you
> know what I am talking about. It is all about trying to live our lives the
> best way that we can.
>
> Also, all of these new TKI's weren't they all predestined or if you like,
> meant to be?  That is how I look at things, how about you? And how about
> everyone else here?
>
> Why do you think I always end any of my posts with those two
> numbers? 18's, because it stands for life, and isn't that we have now.
>
> 18's,
>
> Marty
>
> On Mon, May 30, 2016 at 5:41 PM, 'Jeanie' via CMLHope <
> [email protected]> wrote:
>
>>   Thank you so very much Marty.
>> If I knew then what I knew today I think I would have
>> Had the transplant.  My onc at that time thought I
>> Was too old.  However I'm still alive and kicking
>> After 4 tkis.   I am sick; I can't seem to kick this flu.
>> Just resting after my vacation.
>> I sure had a good time with family.
>> Thanks for all as usual.
>>
>> Sent from my iPhone
>>
>> On May 30, 2016, at 4:57 PM, Marty Gartenberg <[email protected]> wrote:
>>
>>
>> Hi again Jeanie,
>>
>> I just spoke with my good friend Gloria today and I asked her if she
>> wouldn't mind for me to send you and the rest of the group three of her
>> pictures. One before her BMT, one during her BMT and one about one year
>> after her BMT. She thought it was a very good idea. She also mentioned that
>> she would like to try getting onto this CML site and introduce herself so
>> please be on the lookout for her.
>>
>> The main thing here is those pictures which proves that there is life
>> after a bone marrow transplant. Think about something else... What about
>> those 1,286 people, including myself which now makes it 1,287.
>>
>> 18's,
>>
>> Marty
>>
>> Scroll down please...
>>
>>
>>
>>
>>                                                            GLORIA
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