Hi Group, After my son Derek passed away on June 13th and when  we found 
out Grace had a heart attack within 5 min and had to get her over to  the 
Hosp. and was their for 4 days she is doing O. K. But I had to fly up to  
Chicago by myself to go to the Funeral.  Then two weeks later when Grace  could 
travel we flew up to Chicago again for 4 days.  Two weeks later we  had to go 
back for a week and on the return flight we had to sit at the airport  for 5 
hours and the trip was 2 1/2 hours.  The next day I had to see my  
Urologist for my 6 month visit and found out a few days later that my PSA was  
way 
over the 4.4 which is high.
 
So I waited for a week and when back for some blood work and  the results 
came back 2.9, that's good.  Found out that sitting on your  rear end for 
that long a time can cause the counts to go up so the bottom line  is Men don't 
sit on your rear in before going in to have your PSA  checked.
 
On wise everything else is O. K.  So now Grace and I  drove up to Northwest 
Indiana to help her son move into a new house that needs  some work and the 
was a 2 day drive.  Won't do that again.  To much  travel, every city had 
road work better to fly and rent a car.  So everyone  take care.
 
greenie
 
In a message dated 8/6/2016 8:11:01 A.M. Eastern Daylight Time,  
[email protected] writes:


Hi all
Not well at all today.  Just hanging in there.  Does anyone know John who 
was on Ponatinib like me??   Haven't  heard from him.  
Pain in side much worse.   I was on oxycodone  but took myself off due to 
terrible side effect.  However it did help the  pain.  
Taking my morning walk.  Making it from chair  to chair hehe. 
Let's hear from everyone today!!!!
My Motto:  
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope 
<[email protected]_ (mailto:[email protected]) >  wrote:




Beth, Susan Z. and Jeanie:  


Thank you for your good wishes.  I do follow you all but I have  just not 
posted.


Hugs,
Susan




On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth wrote:  
Susan,  


I am so deeply happy for you! thanks for sharing such good news.  Love, Beth


-----Original  Message-----
From: 'Susan Rosenthal' via CMLHope <[email protected]_ 
(javascript:) >
To:  cmlhope <[email protected]_ (javascript:) >
Sent:  Wed, Aug 3, 2016 7:54 pm
Subject: [CMLHope] How Am I  Doing?

Jeanie and others:

I am doing great...I hope!!!! I  just sent in my 10 month (since October 2, 
2015) TKI-free 6 week PCR test.  My fingers are crossed.

When we don’t hear from Marty, we know that  something is going on.

Hugs,
Susan Rosenthal

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