Re: [CMLHope] Haven't heard from John either.

Sat, 06 Aug 2016 06:41:50 -0700 





    Hi dear Jeanie,I am so sorry your side pain is worse. I sure wish your doc 
or a new doc would find the cause. Pain is an indicator and the docs should not 
ignore it. I have forgotten where you live. I was so blessed and relieved after 
changing docs from my first local one to Moffitt. It was sure worth the drive. 
The squeaky wheel does get the grease! I just hate to hear you've been living 
with this for so long. 
Praying for ya, honey, as all of u are in my prayers!Hugs and 18's,Sisan z
Sent from my Sprint phone



------ Original message------From: 'Jeanie' via CMLHope Date: Sat, Aug 6, 2016 
8:10 AMTo: [email protected];Subject:[CMLHope] Haven't heard from John 
either.

Hi allNot well at all today.  Just hanging in there.  Does anyone know John who 
was on Ponatinib like me??   Haven't heard from him.  Pain in side much worse.  
 I was on oxycodone but took myself off due to terrible side effect.  However 
it did help the pain.  Taking my morning walk.  Making it from chair to chair 
hehe. Let's hear from everyone today!!!!
My Motto:Faith and PillsWith Love🐠18'sDx 1/2004 CML LeukemiaStarted Gleevec 
2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 
1/2015Doctor Balducci Moffitt Cancer Center 
On Aug 5, 2016, at 9:24 PM, 'educatorsusan' via CMLHope 
<[email protected]> wrote:

Beth, Susan Z. and Jeanie:
Thank you for your good wishes.  I do follow you all but I have just not posted.
Hugs,Susan



On Thursday, August 4, 2016 at 3:22:00 PM UTC-4, Beth wrote:Susan,
I am so deeply happy for you! thanks for sharing such good news. Love, Beth


-----Original Message-----
From: 'Susan Rosenthal' via CMLHope <[email protected]>
To: cmlhope <[email protected]>
Sent: Wed, Aug 3, 2016 7:54 pm
Subject: [CMLHope] How Am I Doing?

Jeanie and others:

I am doing great...I hope!!!!  I just sent in my 10 month (since October 2, 
2015) TKI-free 6 week PCR test.  My fingers are crossed.

When we don’t hear from Marty, we know that something is going on.

Hugs,
Susan Rosenthal

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