Re: [CMLHope] Haven't gotten any e-mail notifications

Tue, 06 Sep 2016 12:49:40 -0700 





    Dear Jeanie,So sorry to hear about the pancreas. My heart goes out to you 
after all the pain you have suffered. I pray that adjusting your diet helps 
tremendously. Enjoy the remainder of summer/fall. We are in Hawaii!!! Love and 
hugs and 18's, Susan
Sent from my Sprint phone



------ Original message------From: 'Jeanie' via CMLHopeDate: Tue, Sep 6, 2016 
8:48 AMTo: [email protected];Subject:Re: [CMLHope] Haven't gotten any 
e-mail notifications
Thanks Joyce,Yes a low fat diet is recommended for pancreatic problems.   About 
7 months into Ponatinib treatment the pain in my side became bad.  One of the 
side effects is pancreatitis.  They say it is caused by drinking and smoking 
and I don't do either so it has to be the tki.  They say you can heal it with 
diet so I'll take that step but don't know what the doctor will say. See him 
the end of the month.  He might want a ERCP.  Don't know if I want that.  
Blessings to all.  My Motto:Faith and PillsWith Love🐠18'sDx 1/2004 CML 
LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 
11/2009Started Ponatinib 1/2015Doctor Balducci Moffitt Cancer Center > On Sep 
6, 2016, at 2:24 PM, Joyce Mesnarich  wrote:> > Jeanie,> So sorry to hear of 
your pancreas problem.  I guess we learn something new every day.  I never knew 
the pancreas had anything to do with fat.  I thought it handled sugar.  
Whatever, we have to do what the doctors tell us.  As time goes on, I fear that 
they will find out that most of the TKIs have bad side effects when used for a 
longer amount of time.  But we are all thankful for the extra length of time 
they give CML warriors “on the right side of the grass”, as they say.  I will 
keep you in my prayers.>        Joyce in IL> > >> On Sep 6, 2016, at 6:45 AM, 
'Jeanie' via CMLHope  wrote:>> >> Me either.  Think everyone is on vacation.  
>> I had my cat scan. Some bad news.  My pancreas has atrophied.  Got to cut 
down on fat.  I wonder if that is what is causing my pain.  I know Ponatinib 
causes pancreatitis.  Dr never says anything about it.  Everything else was the 
same except for a little fatty liver. >> Hope everyone is good.  >> Still no 
Marty!!!! >> >> My Motto:>> Faith and Pills>> With Love>> 🐠18's>> Dx 1/2004 CML 
Leukemia>> Started Gleevec 2/2004>> Started Tasigna 9/2009>> Started Sprycel 
11/2009>> Started Ponatinib 1/2015>> Doctor Balducci Moffitt Cancer Center >> 
>>> On Sep 5, 2016, at 7:06 PM, 'LadyRx' via CMLHope  wrote:>>> >>> I haven't 
received any notifications in my e-mail for the past 3 weeks or so. Just 
checking to see if the group is still active. If so, please leave a comment.>>> 
>>> Thank you!>>> >>> -- >>> -- >>> [CMLHope]>>> A support group of 
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