Thanks Susan I eat a lot if fat but will have to cut down. Maybe the pancreas has been hurting all this time. I don't have any indigestion problems at all. Strange. They will probably want to do an ERCP but you need an expert to do that. Try diet first and go from there. Blessings
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 6, 2016, at 3:48 PM, '[email protected]' via CMLHope > <[email protected]> wrote: > > Dear Jeanie, > So sorry to hear about the pancreas. My heart goes out to you after all the > pain you have suffered. I pray that adjusting your diet helps tremendously. > Enjoy the remainder of summer/fall. We are in Hawaii!!! > Love and hugs and 18's, Susan > > Sent from my Sprint phone > > ------ Original message------ > From: 'Jeanie' via CMLHope > Date: Tue, Sep 6, 2016 8:48 AM > To: [email protected]; > Subject:Re: [CMLHope] Haven't gotten any e-mail notifications > > Thanks Joyce,Yes a low fat diet is recommended for pancreatic problems. > About 7 months into Ponatinib treatment the pain in my side became bad. One > of the side effects is pancreatitis. They say it is caused by drinking and > smoking and I don't do either so it has to be the tki. They say you can heal > it with diet so I'll take that step but don't know what the doctor will say. > See him the end of the month. He might want a ERCP. Don't know if I want > that. Blessings to all. My Motto:Faith and PillsWith Love🐠18'sDx 1/2004 CML > LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel > 11/2009Started Ponatinib 1/2015Doctor Balducci Moffitt Cancer Center > On Sep > 6, 2016, at 2:24 PM, Joyce Mesnarich wrote:> > Jeanie,> So sorry to hear of > your pancreas problem. I guess we learn something new every day. I never > knew the pancreas had anything to do with fat. I thought it handled sugar. > Whatever, we have to do what the doctors tell us. As time goes on, I fear > that they will find out that most of the TKIs have bad side effects when used > for a longer amount of time. But we are all thankful for the extra length of > time they give CML warriors “on the right side of the grass”, as they say. I > will keep you in my prayers.> Joyce in IL> > >> On Sep 6, 2016, at > 6:45 AM, 'Jeanie' via CMLHope wrote:>> >> Me either. Think everyone is on > vacation. >> I had my cat scan. Some bad news. My pancreas has atrophied. > Got to cut down on fat. I wonder if that is what is causing my pain. I know > Ponatinib causes pancreatitis. Dr never says anything about it. Everything > else was the same except for a little fatty liver. >> Hope everyone is good. > >> Still no Marty!!!! >> >> My Motto:>> Faith and Pills>> With Love>> 🐠18's>> > Dx 1/2004 CML Leukemia>> Started Gleevec 2/2004>> Started Tasigna 9/2009>> > Started Sprycel 11/2009>> Started Ponatinib 1/2015>> Doctor Balducci Moffitt > Cancer Center >> >>> On Sep 5, 2016, at 7:06 PM, 'LadyRx' via CMLHope > wrote:>>> >>> I haven't received any notifications in my e-mail for the past > 3 weeks or so. Just checking to see if the group is still active. If so, > please leave a comment.>>> >>> Thank you!>>> >>> -- >>> -- >>> [CMLHope]>>> A > support group of http://cmlhope.com>>> > ------------------------------------------------->>> >>> You received this > message because you are subscribed to the Google Groups "CMLHope" group.>>> > To post to this group, send email to [email protected]>>> To > unsubscribe from this group, send email to > [email protected]>>> For more options, visit this group at > http://groups.google.com/group/CMLHope>>> --- >>> You received this message > because you are subscribed to the Google Groups "CMLHope" group.>>> To > unsubscribe from this group and stop receiving emails from it, send an email > to [email protected].>>> For more options, visit > https://groups.google.com/d/optout.>> >> -- >> -- >> [CMLHope]>> A support > group of http://cmlhope.com>> > ------------------------------------------------->> >> You received this > message because you are subscribed to the Google Groups "CMLHope" group.>> To > post to this group, send email to [email protected]>> To unsubscribe > from this group, send email to [email protected]>> For > more options, visit this group at http://groups.google.com/group/CMLHope>> > --- >> You received this message because you are subscribed to the Google > Groups "CMLHope" group.>> To unsubscribe from this group and stop receiving > emails from it, send an email to [email protected].>> For > more options, visit https://groups.google.com/d/optout.> > -- > -- > > [CMLHope]> A support group of http://cmlhope.com> > -------------------------------------------------> > You received this > message because you are subscribed to the Google Groups "CMLHope" group.> To > post to this group, send email to [email protected]> To unsubscribe > from this group, send email to [email protected]> For more > options, visit this group at http://groups.google.com/group/CMLHope> --- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group.> To unsubscribe from this group and stop receiving emails > from it, send an email to [email protected].> For more > options, visit https://groups.google.com/d/optout.-- -- [CMLHope]A support > group of > http://cmlhope.com-------------------------------------------------You > received this message because you are subscribed to the Google Groups > "CMLHope" group.To post to this group, send email to > [email protected] unsubscribe from this group, send email to > [email protected] more options, visit this group at > http://groups.google.com/group/CMLHope--- You received this message because > you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from > this group and stop receiving emails from it, send an email to > [email protected] more options, visit > https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
