Put me on the zero list,
Kathy Cheatwood on Gleevec for 17 years

Sent from my iPad

> On Oct 18, 2016, at 6:15 AM, cmlhope@googlegroups.com wrote:
> 
> 
> cmlhope@googlegroups.com      Google Groups              
> Topic digest 
> View all topics
> Zavie's List - 5 Updates
> Zavie's List           
> Ana Burgos <anab...@hotmail.com>: Oct 17 11:13AM 
> 
> Someone there?
>  
>  
>  
>  
> De: 'Jeanie' via CMLHope<mailto:cmlhope@googlegroups.com>
> Enviado: domingo, 2 de octubre de 2016 16:44
> Para: cmlhope@googlegroups.com<mailto:cmlhope@googlegroups.com>
> Asunto: Re: [CMLHope] Zavie's List
>  
> Wow!!! And thanks. Anyone else?!!!
>  
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center
>  
> On Sep 30, 2016, at 11:06 PM, ANGELYN ESDERS 
> <esd...@rogers.com<mailto:esd...@rogers.com>> wrote:
> This is all I have...
>  
> ZERO CLUB MEMBERS
> No. Name Surname City St Comment
> 1 Marty Gartenberg Staten Island NY BMT from sister. I now live in Florida
> 2 Linda Bartlett Cody WY Gleevec
> 3 Jeanelle Street Nederland TX
> 4 Vinny Carrasco
> 5 Rob Gebauer Roseville CA
> 6 Suzan McNamara Montreal QU Petition originator.
> 7 Cynthia Duty Arlington VA Mother is Kim
> 8 Dorothy Emery Denver NC Helped with album
> 9 Jill Jones Husband is Richard
> 10 Ellen Rubino New York NY Mother has CML Email doesn't work anymore
> 11 Bob Andrews Relapsed. Was in accellerated.
> 12 Margie Bovee Saline MI Sees Dr. Schiffer @ Karmanis in Detroit
> 13 Jane Graham Seattle WA
> 14 Marilyn Phillips Buckhannon WV Son Tim writes.
> 15 Chris Posadas Laurie?
> 16 Wayne Becken Niagra Falls ON Trial in Detroit. Diag. Mar 1989
> 23 Fran Evertsbusch Anchorage Alaska INF, now on Gleevec, name is Maiuri
> 33 Angelo Arizzo Goes to MD Anderson
> 34 Scott Read Kaysville UT
> 44 Cliff Layman Raleigh (from Schenectady NY) NC see Dr. Shea and Dr.Powderly 
> in Chapel Hill.
> 45 Alayna Leppke OK
> 47 Joyce Ward Pickerington OH Early chronic, 0 at 3 mos. Heart attach, 1/20 
> in jun03
> 49 Dave Schulz Detroit MI Had a self transplant.
> 50 Giora Scharf Natanya ISR 0 by Dr. Hochhaus
> 52 Bob Aylesworth St. Petersberg FL Wife Dawn
> 54 Bob Stewart Granger IN Wife Pat
> 58 Judy Orem Portland OR
> 59 Pete Pabon Palm Harbour FL Moved from Bayside NY
> 60 Ken Allen
> 61 Riza Yilmabasar
> 62 Lorraine Rollo
> 64 Dave B. INF only
> 65 Jennifer Gangloff
> 66 Nancy Belcher Alameda CA Liver toxicity
> 67 Thea Rosen Dr. M. Shurafa, Henry Ford
> 69 Kristin Olson Lieberman San Marino CA
> 70 Diane Wiley Coronado CA mom hDaughter is Laura Civilikasas cml
> 71 David Cranmer Shelburne VT BMT relapse, wife is Allison
> 72 Abe Weintraub father in law Barry
> 73 Fposades Fish BMT
> 74 Dianne Ness Mpls MN Husband Paul, INF
> 75 Richard Rockefeller Falmouth ME Dr., was on peg inf, MSKCC
> 76 Angely Esders Brantford ON Canada...Gleevec
> 77 Dana Huddleston
> 78 Richard Schenk Harpers Ferry WV
> 79 David Greenberg Hobart IN
> 80 Sylvia Guenther Toronto ON
> 81 Harmony Jaursch
> 82 Susan Geller Chicago IL INF, daughter Jodi has CML
> 83 Sandra Craine London UK lives in UK
> 84 Victoria Bartling
> 85 Marajou Janse The Hague Netherlands
> 86 Steven Flack San Diego CA
> 87 Mithun Kamath New Orleans LA 15yr, dad is Burde
> 88 Linda Ginn age 44
> 89 Phylecia Wilson
> 90 Peter Capel Walton on Themes Surry From Elizabeth Rees - Hammersmith
> 91 Steve Harvey
> 92 Georgia Coats Dearborn MI age 28
> 93 Ruth Marcon Allentown PA Dr. Shuster, NY Presbyterian
> 94 Tracy van Houwling Leiden NL
> 95 Jack Plummer Aventura FL From ACOR, Dr. Talpaz
> 96 Bruce Weinstock Richfield MN Had a BMT. Relapsed. Gleevec
> 97 Terry Lowell Littleton CO
> 98 Doug Tan Kuala Lumpur Malaysia
> 99 John Rowe Oxon Hill MD Wife Marguaritte, after 12 mos on Gleevec
> 100 John Calderwood Vancouver BC Still waiting. 1% left.
> 101 Susan Carrow Buffalo NY
> 102 Zavie Miller Ottawa ON
> 103 Amy Fischer Boca Raton FL
> 104 Unlucky for Japanese
> 105 Ken Ito Japan
> 106 Darlene Shepherdsville KY
> 107 Charlie Jensen Fort Colins CO Wife is Vicky. Relapsed Mar02
> 108 Ladonna Lopossa Winlock WA 207 E Walnut #22 Winlock WA 98596 FISH 0 
> 360-785-0907
> 109 Steve Robinson Longview WA Wife Jenifer, met at LTN
> 110 Syad Ansari
> 111 Lisa Martinez Tampa FL
> 112 Gale Woliver (Bacon) Dallas TX
> 113 Genie Boutchia Plymouth MA Dana Farber, Dr. De'Angelo
> 114 Chris Duce San Diego CA His mom is Paty
> 115 Bonnie Liebergot Chevy Chase MD 
> harris.liebergot.nist.gov<http://harris.liebergot.nist.gov/>
> 116 Sal
> 117 Anna Powers
> 118 Doris Kentucky KY
> 119 Paula Sapinski dxd 5/4/2001
> 120 Joe Stark Grove OK Wife Mary, going off G May 2004
> 121 = Mulone Astoria NY Frances dx 5/22/2, Gleevec 5/25/01-10/2/01 bma-cyto 
> 0% in 3 mos.
> 122 Beth Petrich From European Site
> 123 Shelley Orenstein Boca Raton FL
> 124 Max Hoefler Germany
> 125 Keith Sharrock
> 126 Sydna&Bob
> 127 Richard Wilday
> 128 Caroline MacDonald Husband, Steve
> 129 Keith Danby
> 130 Ruth Waldhauer La Honda CA
> 131 Eugene Leyvi Gene int then gleevec
> 132 Mark Frazer Australia see website
> 133 Roxianne BMT
> 134 Roberta Troyer Fallston MD From Jerry's list, showing resistence
> 135 Jirapon Chaimongkon Bankok Thailand
> 136 Lloyd Peterson Brother has CML Steve
> 137 Ron Vietti Bakersfield CA Pastor at Valley Bible Fellowship
> 138 Laura McCourt
> 139 Sandy Butler
> 140 Mary
> 141 Donna Dunn Tuscon AZ Cousin Avis Allen writes
> 142 Bob Farmer Bremmerton WA BMT 1993, Zero 1996, pH+ 1997, pH- 2000, see 
> http://oc.itgo.com/
> 143 Judy Levine PA
> 144 Bill Buckberry Hendersonville TN Wife Sue. 300mg Gleevec
> 145 Jehuda Driori Tel Aviv ISR His son Shai writes
> 146 John From Jerry's site
> 147 Al Rhodes Wife Lynda, at VA hospital
> 148 Bob Whitaker South Florida FL Wife Odile
> 149 John Wall Fayetteville AR 1 yr on STI
> 150 Doug Jensen Hood River OR Patient 13, found him in CBC news doc
> 151 April Bowers See Miles
> 151 Miles Bowers Jacksonville FL Daughter April Bowers Davis
> 152 Jamie Malizia Ottawa ON Wife Karen Leggettdoes all the e-mailing
> 153 Holly Baker St. Louis MO
> 154 Peter Miles Southport GB From euro list. BMT
> 155 Sourabh Ghosh Calcutta India
> 156 Shannon Sydney Australia
> 157 Nico Oliver Capetown SA
> 158 Mithun Kamath New Orleans LA Dab Burde is a prof of pharmacology
> 159 Joyce Mondgeau Jacksonville FL
> 160 Fusun Ilkay London UK
> 161 Steve McMillan Katy TX Wife is Nancy. Peg inf, then Gleevec
> 162 Mike Harris Silver Spring MD Wife Kimberly Pendergast Harris, on Gleeevec 
> for 2 years
> 163 Tamara Lam Hertlelia ISR Hydrea only
> 164 Benyamin Reinitz Jerusalem ISR BMT, relapse
> 165 Yehuda Drori Ramat Gan ISR Gleevec
> 166 Marko Cohen Natanya ISR INF 12 years, Gleevec 9 mos
> 167 Ruty Glik Natanya ISR INF, Gleevec
> 168 Uri Cohen Sheva ISR Gleevec
> 169 Yossi Tavor Natanya ISR INF 2 mos, Gleevec 3 mos.
> 170 Ronit Shnider Rishon Lezion ISR BMT, relapse, Gleevec
> 171 Yoram Linman ISR Gleevec
> 172 Kris Ward T. Louis MO INF, CHF, Gleevec
> 173 Niels Hansen-Trip Ottawa ON INF, Gleevec. 106 trial
> 174 Neslihan Tosun Turkey Nesli, study in Germany, 0 after 3 mos.
> 175 Eugene Leonenko Moscow Russia From Liz Rees
> 176 Jim Studeman Davenport Iowa Wife Debby
> 177 Mark Owens Shreveport LA FISH after 6 mos
> 178 Ed Wife has CML. From Jerry's site
> 179 Roger Baker Hammersmith GB From Rees
> 180 Ian Sharpe GB From Rees
> 181 Laura Geelhoed Grand Junction CO INF
> 182 Carol Kalat MI From Gleevec group
> 183 Jeff Shaffer Louisa KY INF 8 yrs, Gleevec 6 mos
> 184 Mae Moyer Plantation FL GIST, from Gleevec list
> 185 Markus Euskirchen Berlin Germany From Gleevec group.
> 186 Ollie Odaka After 6 mos. On Gleevec
> 187 Lynne Andrews
> 188 Cheryl Smith
> 189 Duree Trautwein Houston TX Husband is William, Baylor.
> 190 Cindy Lewis Flower Mound TX Fairfax VA originally
> 191 Dona Dunn Tuscon AZ Posted by Avis Ferguson
> 192 Dorothy Huffstetler Kings Mountain NC Dot from Gleevec group.
> 193 Jim Logan Fox Point WI From STI Gazette
> 194 Charles Pignataro Los Angeles CA
> 195 Jeff Wolf Haymarket VA Gleevec/inerferon combo. Dr. O'Dweyer
> 196 Rachel Workman Mother is Julie, BMT, DLI, then Gleevec
> 197 Mariela Genta Uruguay
> 198 MI
> 199 Doug Kroeger Basking Ridge NJ Wife Gail
> 200 Sandra Parr Austin TX From ACOR, husband David
> 201 Stephanie Boyd Heath OH
> 202 Clyde Furumoto La Palma CA Carol is wife
> 203 Chris Frailey Marion IL
> 204 Susan Hertzog Dillsberg PA
> 205 Margot Menefee Wichita KA Husband Fred
> 206 Zazzy Hanson St. Maries ID Name is Carol
> 207 Jeannie Matthews Medford OR Gave her a # at 99.5 %
> 208 Shawn Beller Sylmar CA Wife is Heather, Holy Cross Cancer Center, Mission 
> Hills
> 209 Benny Rocillo San Andres Manila From Eva
> 210 Jim's friend
> 211 Helene Anderson Oslo Norway Mother is Rune
> 212 Bruce Crabtree Kansas City KA Wife Jeannine
> 213 Sandra McKerman Tuolumne CA Looking at 3 cells.
> 214 Juscelino Brazil From Jerry's site
> 215 Hennie Bosch Netherlands
> 216 Mike Westland Belleville WA Firefighter
> 217 Julie Baumann Elmira NY After 6 mos on Glevec
> 218 Dennis Dricken South Bend WI
> 219 Earl Harford Pequot Lake MN
> 220 Ellen Penrod Winetka IL
> 221 Ken Sierzan Mayville MI On interferon. Wife is Kay. Switch to Gleevec
> 222 Toni Leib
> 223 Suzanne Dreger Escanaba MI
> 224 Melinda Kerner Fairfield CA Died in Aug 04. Comlications from BMT
> 225 Betsy Pitzman Homer AK
> 226 Emily Guerrant Ellensburg WA Age 24
> 227 Susan King South Windsor CT
> 228 Steve Sprague Staten Island NY Umbilical Cord Blood transplant
> 229 Dave Lukaszewski Milwaukee WI From ACOR
> 230 Alice Kjorness Cheyene WY
> 231 Guy Sponaugle Fairfax VA
> 232 Dane Tessler Treasure Is FL Daily photo
> 233 Larry Wickware Oaklahoma City OK Wife Tiffany - Larry had a BMT
> 234 Kevin Kottrel Lawrenceburg IN
> 235 Prescilla Atlanta GA
> 236 Carol Kalrak Dearborn MI
> 237 Joe Pfannenstiel Inman KA
> 238 Mike Emberton Llandudno North Wales, UK From European site
> 239 Jim Lynch Pittsburg MO Wife is Donna
> 240 Daniel Golden Springfield MO Wife is Kelly, going for transplant
> 241 Ellen Somerville Berkeley Heights NJ Friends with Kathy
> 242 Eva Manila Waiting for confirmation
> 243 Colleen Kanieski
> 244 Beau Turner Bateau Bay NSW, AU
> 245 Betsy Fogg Boscawen NH
> 246 Yehuda Drori Tel Aviv ISR Son is Shai
> 247 Rick Pata Oshkosh WI UofW, Madison,WI
> 248 Tony Garrison San Antonio TX
> 249 Michele Johnson Orlando FL
> 250
> 251
> 252 Meg Scata Middleton CT
> 253 Rakesh Doshi Cincinnati OH
> 254 Alex B Chicago IL From euro site, inf first
> 255 Ros and Dave From European group.
> 256 Elizabeth Rees London GB From European group. Goldman,Hammersmith
> 257 Connie Holifield Laurel MI From ACOR, Dr. K. MD Anderson
> 258
> 259 Jennifer Hudspeth Noblesville IN
> 260 Virginia Gardner Claremont CA UCLA trial. After 3 years.
> 261 Sonia Arnedo Mexico City MX
> 262 Jim Cook Chateaugay NY Daughter is Stephanie Leffler
> 263 Bryce Onaran Centreville VA Aunt Leslie Tetreault
> 264 Dwarka Rathi
> 265 Dorothy Goldstein Natanya IL
> 266 Ron Eaton Waiting
> 267 Jim Downs Palm Desert CA Linda's friend
> 268 Kim KR
> 269 Jody Capik
> 270 Matt Ruggiero Relapsed 6/02, cord blood trans 3/03
> 271 Sara Piotrowski Mondovi WI Husband Norbert publishes 'Keep America Dancing
> 272 Don Treated at OHSU
> 273 Bill Teague SC Daughter Jessica
> 274 Carmen Florence Italy On 300 mg
> 275
> 276 Richard Jones Rochester NY Wife Deanna
> 277 Karen Andrews Harvard Mass 5 kids, relapsed in 04, RAD trial
> 278 Maggie Plano TX
> 279 Jane Todd Springfield VA Turtle
> 280 Guy Sponaugle
> 281 Dave Lukaszewski Elizabeth CO Sees Dr. Link in Litleton CO.
> 282 Bud Huth Guelph ON Lori's dad
> 283 Tina Sierra Prospect CT Husband Rick
> 284 Karen K Maybe
> 285 Joey Brooklyn NY From euro group
> 286 Jesper Kjällquist Sweden Via BMT, from euro group
> 287 Mike Sample IN
> 288 Rev Andrew Climpson UK
> 289 Janet Hansen Ithaca NY Ancient Lurking Turtle
> 290 Barbara Heathcoat Raleigh NC Interferon
> 291 Eugene Leonenko Moscow RU From europen group
> 292 John Wheeler Nacogdoches TX Wife Nancy, 800mg, stopped due to pain
> 293 Susan Armour NJ
> 294 Keith Sharrock UK From petition messages
> 295 Patty Preston Derbyshire UK From petition messages
> 296 Aaliyah Smith UK From petition messages
> 297 Kristin Wolf UK From petition messages
> 298 Nigel Frost UK From petition messages
> 299 Lorrraine Rollo UK From petition messages
> 300 Nancy Cogan Eugene OR Reserved
> 301 Jeannie Douglas UK
> 302 Jan Geissler Bietigheim GER From Anjana
> 303 Stacy Coale Birmingham Alabana Age 28. Teacher
> 304 Carol Miller St. Cloud FL From Gleevec group
> 305 Nadine Vangelisti From ACOR, Dr. K. MD Anderson
> 306 Lisa Boyce Fairmont WV Dr. Coonley, United Hosp Clinic, Clarksburg, Wva
> 307 Bruce McGarth Bryn Mawr PA Age 65
> 308 Linda Greeneberg Palm Springs CA
> 309 Joe Jurkovac
> 310 George Nearchou Melbourne Australia
> 311 Dianne DeCesare Mineral Ridge OH
> 312 Henny Bosch Amsterdam NL Husband Annelies?
> 313 Paul Barsevskis Toronto ON Wife Lyn. Paul died.
> 314 Kathy Brown Somers CT Had Essential Thrombocytosis
> 315 David Smith Wife has CML. From Jerry's site
> 316 Suzanne Decker Gladstone MI
> 317
> 318 Ed Ranier Wife is Rosemary.
> 319 Laquita Neill Carrollton M Rob manages the site
> 320 Ellen Froyd Carpinteria CA
> 321 Jeanne Burns Minneapolis MN BMT, relapse
> 322 Yvonne Heimann NewNew Braunfels TX BMT relapse
> 323 Don't display See Russ
> 324 Ginger Jarnagin Houston TX BMT relapse
> 325 Dan Sponaugle Elmhurst IL Wife is Laura Walsh
> 326 Jeffrey Chan NJ
> 327 Jim Bloomquest Ellijay GA Zero on interferon
> 328 JR Hill Kansas City MU From Gleevec Group
> 329 Joe Nishide Kishiwada,Osaka JP
> 330 Ken Roberson Asheville NC Bad neuropathy
> 331 aelbaw Brother has CML Steve
> 332 Dennis Gasgarth Leland, Lancs UK Failed auto SCT
> 333 Yvonne Poulton Newhaven, Sussex UK
> 334 Gina Demase Chicago IL
> 335 Thomas Brand Minneapolis MN From ACOR group, son has CML.
> 336 Sarah Hulburt Dad is Bob. From ACOR
> 337 Alice Cramden Springfield MO Hsp70 trial
> 338 Geri Sehnert Rochester NY BMT, then relapse.
> 339 Wendell Bailey St. Augustine FL Orig from Minnesota
> 340 Sue Dickerson UK from eur site
> 341 Marcelo Filipe Simoes Cascais PO From Eur. Site.
> 342 Patricia de Almeida Goncalves Lisbon PO From Eur. Site.
> 343 Joan Hume Sydney AU
> 344 Maria Carpenter
> 345 Jody Porter Los Angeles CA
> 346 Rodney Shelly Shingleton MI From ACOR.
> 347 Douglas Yost Eden Prarie MN From Gleevec, mom is Laurel, fathered a son
> 348 Ed de la Cruz-Munoz Miami FL Brother is Jorge
> 349 Brian Land Dallas TX
> 350
> 351 Tracey In Canada Ottawa ON Good friend
> 352 Lynne Andrews MA Trisomy 8
> 353 Travis McArthur WI Father is Kent. JW
> 354 Anita Rowland Orangeville ON Came to my hearing
> 355 Mike Liston Pittsburg CA Wife is Jeanie
> 356 Jacki Holcomb Austin TX
> 357
> 358 Felice Bombaci Torino IT 106 on inf.
> 359 Jeannie Ingalls Greenville SC Husband Paul
> 360 Erico TW
> 361 Sharon Morris Running London Marathon GB Sees Hochhaus
> 362 Peter Lim Yeng Chuan Singapore
> 363 Judy Martyn Niagara Fall Ball. Ken is husband
> 364 Johan Drotskie Johannesburgh SA
> 365 Janice Amason Lineville AL
> 366 Dilar Vermeulen Mom is Dorita NL
> 367 Joan Ann Via mini BMT
> 368 Davina Magill From European site
> 369 Joseph From European site
> 370 Kate Debrovnik CR
> 371 Deana Brenner Staten Island NY Marty's friend
> 372 Peter Jaeggin Oakville ON T.O. Pete
> 373 Susan Buchman Springbrook WI From Jerry's site
> 374 Pramila Khanna Daughter is Vivek
> 375 Viviane Quadri RUDOLFSTETTEN Switzerland From European site
> 376 Pamela From Jerry's site
> 377 Shelly Pate Joplin MO From Jerry's site
> 378 Bob Fox From Jerry's site
> 379 Richard Elledge Hope AR Wife, Dani
> 380 John Owen Solana Beach CA From Jerry's site. On 300mg
> 381 Travis Northcote San Diego CA Wife is Kate Blease
> 382 Juan OVALLE Long Beach CA
> 383 Dave Milton From European site
> 384 Jean Yoko Craft Fruitvale BC Husband Donald
> 385 Walt Seldon Severna Park MD
> 386 Keno Elsen Frankfurt DL
> 387 Alfredo Campos BR
> 388 Ralph Robertson
> 389
> 390 Bev Belsha Milwaulie WI
> 391 Tamara Norton
> 392 Cheryl Simoneau Pointe Claire QC Born in Santa Monica
> 393 Rebecca Schneider
> 394 Steve Bowser Leicestershire GB Partner Lisa
> 395 Marge Valdmann ES
> 396 Danny Qin Manilla From Eve
> 397 Phil Long Plymouth Meeting PA
> 398 Shonoa Ruddick Santa Cruz CA
> 399 Judy Gingrich Lancaster PA
> 400 Judy Wilson Bronxville NY Husband James
> 401 Barbara Stanley Mesa AZ
> Jeanie <icandoall...@aol.com>: Oct 17 05:20PM -0400 
> 
> Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get up 
> in the middle if night to walk out leg cramps. I too was put on Sprycel. And 
> yes I would look in mirror and not recognize myself. Just keep on fighting 
> warriors. Blessings 
>  
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center 
>  
> Marty Gartenberg <wa2...@gmail.com>: Oct 17 06:17PM -0400 
> 
> Hi,
> Sorry you went through so much. However take a good look at yourself it
> really shows you and me and a whole lot of other people that are fighting
> their battles.
>  
> It's called a butterfly's lesson. If you like it then be sure to pass it
> along.
>  
> 18's,
>  
> Marty
>  
> On Mon, Oct 17, 2016 at 5:20 PM, 'Jeanie' via CMLHope <
> Marty Gartenberg <wa2...@gmail.com>: Oct 17 06:28PM -0400 
> 
> I forgot to mention that you have to download this You will see a little
> icon to the right of open with. There are three of four icons and just
> slide your mose over them until you see download then click on it.
>  
> sherri swanson <swanson.sherri...@gmail.com>: Oct 17 06:42PM -0500 
> 
> I too have had terrible muscle cramps on Gleevec. I have also had every
> side effect that Gleevec lists in its product sheet. I've been on this
> medication for 14 years now and can not change do to other health issues.
> At this point all of the side effects just become part of my everyday life
> as I've had them for so long. They are awful, but they keep me humble.
>  
> L'chaim
>  
> Sherri
>  
> Back to top
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