Thanks Marty Do you take anything for or ointments for rubs? Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center
> On Dec 22, 2017, at 4:47 PM, Marty Gartenberg <[email protected]> wrote: > > Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. > > So Jeanie, you have this pain in you right little finger (we used to call it > our (pinkey) Hum right little finger? Well so do i. But not my legs, hands > and most of my bones BUT my left elbow and my neck really hurt but especially > my left elbow but they have a right to. All of them except my left little > finger. Do you know why? Well the little finger has my friend living inside > of it. His name is Author Right-es But the rest were severely broken when i > broke my neck in three places along with my left elbow and had these metal > plates, screws, nuts and matching bolt put inside of me. Can you imagine that > nuts and bolts? Oh at times i have a pain in my butt but that doesn't really > count. > > So maybe we should consider that we are getting older or you on TKI's or both > of us having Arthritis? > > Who knows, but the fact that we are still alive are all migrating > circumstances, > don't you think...👋 We can see we can pee we can hear, well for the most part > for me anyway. > > We can walk we can talk can do most everything that we can do. Oh yea I > almost forgot we can eat and drink. So let this be a lesson for us, right... > > 18's, > > Marty > > > > > > > > > > > > > 9 > >> On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope >> <[email protected]> wrote: >> Hi all, >> Have you considered Moffitt cancer center. I go there and like it. You go to >> the blood center and get your blood checked and then in about an hour they >> are faxed over to doctor and you see him. I go every three months. >> I was wonder if any of you have your bones aching? My right little finger >> and hand ache and legs hurt sometimes at night. I've been fighting cml for >> almost 14 years and never had this. Blood counts are all good. Thanks all. >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >>> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg <[email protected]> wrote: >>> >>> Listen Greenie, >>> >>> This is what i do because of a promise that i once made to GOD. Let me tell >>> you about this. >>> When i was about to receive my total body radiation almost 30 years ago, >>> >>> just before they were about to close and lock that radiation chamber door >>> i got down on my knees clasped my hands in front of me and prayed to GOD >>> asking HIM if he would spare me i would help people that were in my >>> situation that i would try to help them. So far i have helped 1,286 people >>> in the past 30 years, and wrote my journal about each and every one of >>> them. This will never be published because of confidentiality reasons, but >>> on occasion i will send some of them parts of my book in order to try and >>> help them. >>> >>> Listen i am no saint just a plain human being but someone that once made a >>> promise to GOD and i am still here after many many death defying things >>> that i have gone trough. And that is why i do what i promised to do. I hope >>> that you understand why i do what i do... >>> >>> There is also why i write 18's when ever i end any posts that i make, >>> because that is what i believe. 18's to me represents LIFE. >>> >>> If you care to send me your personal email address i would like to send you >>> something. Mine is wa2yyx@gmail,com >>> >>> 18's, >>> >>> Marty >>> >>>> On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope >>>> <[email protected]> wrote: >>>> Marty, I want to thank you for your fast reply, I hear you. I do have a >>>> Nephrologist and he had me get some blood work last month and he seems to >>>> be O.K. with the results. I do have the paper work and will scan it and >>>> send it out so you can check it out. I want to thank you so much, you >>>> have made me feel so much better and I will listen to what you wrote me. >>>> Again I want to thank you. >>>> >>>> Greenie >>>> >>>> In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, >>>> [email protected] writes: >>>> Hi Greenie, >>>> >>>> First of all, you mention that you are worried. Why may i ask are you so >>>> worried? When people worry about things that they have little or no >>>> control over then it not only effects your mind but also your body. I know >>>> all about this because that is exactly what i used to do and i learned to >>>> direct my mind in more productive ways. Now just try to relax and get >>>> yourself going in the right direction. >>>> >>>> Now you mention about CRI so read this.. >>>> >>>> CRI (color rendering index) is a measure of how accurately a light source >>>> illuminates objects' true colors. Our LED lights have CRI values of up to >>>> 98, indicating that our LED lights are able to produce white light that >>>> approximates halogen or incandescent lighting and natural daylight. >>>> >>>> It however has some effect on your kidneys because if they are having >>>> problems than it is a very simple thing to just go to a Nephrologist and >>>> see what is happening and why. >>>> >>>> As you mentioned the normal Hemoglobin count for women should be from >>>> around 13 to 17 however not necessarily for men because men don't have >>>> their time of the month as woman do, so men require a bit less of >>>> Hemoglobin. >>>> >>>> Now a count of 10.7 shows that you are enemic and that can from a verity >>>> of different things. One being the effects from your TKI being Gleevic >>>> which i think may be the cause, now mind you I am not a doctor but someone >>>> that does a lot of research into things that i have already been through. >>>> >>>> Another thing would be kidney problems which i kind of doubt because your >>>> doctors haven't mentioned it. Do you know what your >>>> >>>> Levels of creatinine in the blood reflect both the amount of muscle a >>>> person has and their amount of kidney function. Most men with normal >>>> kidney function have approximately 0.6 to 1.2 milligrams/deciliters >>>> (mg/dL) of creatinine. Most women with normal kidney function have between >>>> 0.5 to 1.1 mg/dL of creatinine.. >>>> >>>> My Creatinine level was 8.2 before i started on my dialysis and i had to >>>> go onto dialysis which lasted for four years. Then i was able to get a >>>> kidney transplant from a 20 year old deceased man who was anonymous, and >>>> about two weeks later it dropped down to 4.1 and kept dropping to where it >>>> is now at .8 and it now stays there. Remember, i have only one kidney >>>> while most other people have two kidneys so i know that having only one >>>> kidney is doing very well for me, and no more dialysis for me anymore. >>>> >>>> What you did mention is that your counts are now at "My white count is >>>> find at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 >>>> - 450)". Which are quite acceptable and very good for you. >>>> >>>> And speaking about your kidneys let me give you some information. When my >>>> kidneys started to fail i noticed that my Hemoglobin also was dropping >>>> especially after i began to receive dialysis. They were at 14 then would >>>> gradually drop to being 9.9 and that was the magic bullet that triggered >>>> that i would be able to start receiving Procrit or Epogin injections which >>>> brought my Hemoglobin to usually 11 and it would take about a week. Then a >>>> few weeks later another shot and so on. The reason why is that your >>>> kidneys produce a *hormone that is sent to your bone marrow that >>>> stimulates Red Blood cells into your bone marrow. >>>> *Erythropoietin (EPO) is a hormone produced by the kidney that promotes >>>> the formation of red blood cells by the bone marrow. The kidney cells that >>>> make erythropoietin are sensitive to low oxygen levels in the blood that >>>> travels through the kidney. >>>> >>>> This is what happened to me so i know what i am talking about. Ever since >>>> i received my kidney transplant about two and a half years ago my >>>> Hemoglobin has gotten to be around 14 >>>> >>>> Now i am not saying that you have any problems with your kidneys but i am >>>> puzzled why did your doctor mention about CRI? As I mentioned why not go >>>> to see a Nephrologist . Couldn't hurt. >>>> >>>> Another suggestion that you have already mentioned, and because you have a >>>> smart doctor looking after you why spend over $600 to fly to Chicago when >>>> you have loads of very fine doctors in Florida especially in your area? >>>> >>>> Now I have given you a lot of useful information and hopefully it will >>>> help you and do you know why? It's because i was there and had to go >>>> through all of this and i learned what i had to do, and besides your worth >>>> it! Yes you are. Just as was my friend Lottie. She did a lot of research >>>> as well in her time which i never forgot... In fact so did Zavie, >>>> >>>> Now finally, since AOL is going out then you already did the right thing >>>> by switching over to another (FREE, I love that four letter F letter word) >>>> internet provider. You also may want to get another F word like gmail >>>> just in case as a backup. >>>> >>>> Please, please Greenie try to stop worrying, just take it one day at a >>>> time. You know it will all work out. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>>> On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope >>>>> <[email protected]> wrote: >>>>> To all of my CML friends and care givers. >>>>> >>>>> I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood >>>>> work. A week later she called me to tell me that my Hemoglobin was down >>>>> to 10.7 and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the >>>>> norm is 38.0 - 50 %. >>>>> She wants me to get a Bone Marrow test here in Florida because the >>>>> airfare to Chicago would be $601.00. That's not going to happen. I'm >>>>> also taking Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9. >>>>> >>>>> She sent my other cancer Doctor down here a fax as to what she wants. I >>>>> have and appointment set for Jan. 2 and talk to him about what to do. >>>>> (I'm worried). She made a note to him that I also have CRI which may be >>>>> Contributory. >>>>> >>>>> So back in 2010 my counts on these two item were Hemoglobin 13.3 and >>>>> Hematocrit was 39.0. >>>>> >>>>> So back in 2015 my counts on these two items were Hemoglobin 12.0 and >>>>> Hematocrit was 36.1. So the counts are coming down and I think it's from >>>>> the Gleevec. >>>>> >>>>> My white count is find at 5.8). Iron was 88 (50-212), Iron binding >>>>> capacity was 281 (250 - 450). >>>>> >>>>> So anyone that may have some answers that may make me feel better just >>>>> hop right it and I will very happy to hear from you. >>>>> >>>>> ALSO, I don't know now to do it but AOL is no longer going to be as of >>>>> Jan 15. My new email address is ([email protected]) and it's free for >>>>> me and much better. >>>>> >>>>> Any feedback would be deeply appreciated. >>>>> >>>>> Thank you all and have a Very Happy and Safe Holiday. >>>>> >>>>> Greenie for South Fort Myers, FL. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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