Hi Beth I didnโt know you had thyroid issues. Maybe you can help me. My tsh was high and the dr gave me Levo meds but they made it worse. How is yours being treated? Thanks Jeanie
My Motto: Faith and Pills With Love Jeanie ๐ free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Dec 27, 2018, at 1:06 PM, rszim0702 via CMLHope <[email protected]> > wrote: > > Thanks Beth for your note to us. As we all are above ground today, it's a > great day as Marty used to say. I hope everyone's holiday time was precious > with family. The noise at our get-together was deafening! With 33 in > attendance it was lots of fun. Our Secret Santa time was fantastic, too. I > got an ab-worker which could help me exercise...if I pick it up. > > All is well if we don't talk about our ills! Be blessed and enjoy the New > Year coming in...with new futures, new prosperity, and new fulfillment > because we are looking to be kind instead of right, and joyous and > light-hearted as we give of ourselves to others. > > And when we need to share about our recent physical problems, that's what we > are here for, too! Beth, hang in there and Jeannie, and Greenie, too. Gotta > go! > > 18's and love and hugs, > Susan Z. > > > On Dec 26, 2018 2:09 PM, bkbarney via CMLHope <[email protected]> > wrote: > Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough > meds to get to PCRU but that's O.K.,Side effects still here, muscle and heart > and my usual thyroid issues, but I stay positive and carry on. On vacation, > made it this year, so enjoying shelling and the beach...windy but great > shelling!! > > Love to all, and please, lets all stay together here this coming year. Zavie > and Marty taught us well, along with Millie and many others....community and > shared experiences mean so much.... > > Love, and 18's to all > > Beth > > > -----Original Message----- > From: 'Jeanie' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Wed, Dec 26, 2018 2:02 pm > Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all > > Thank you so much how are you? > > My Motto: > Faith and Pills > With Love > Jeanie > ๐ free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope <[email protected]> > wrote: > > hi Jeanie and Susan Z, > > Wishing you both a happy and peaceful New Year filled with moments of joy and > sweetness amidst all the healthy struggles. You are both such strong woman > and I admire the courage you both show in navigating multiple health issues > at once. I feel for both you.. > > Stay positive and now that lots of us out here are thinking of you. > > Happy holidays!! > > 18's Beth > > > -----Original Message----- > From: rszim0702 via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Sat, Dec 15, 2018 10:00 am > Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all > > Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia > myself. Along with IBS, I have to make myself go out of the house. All of you > keep warm and have a wonderful Merry Christmas!!! It is what you make it. > 18's and hugs,Susan Z > > > On Dec 15, 2018 9:10 AM, [email protected] wrote: > Wishing the best to you in the New Year. > > Sent from my LG Mobile > > ------ Original message------ > From: 'Icandoallttc' via CMLHope > Date: Sat, Dec 15, 2018 3:15 AM > To: [email protected]; > Cc: > Subject:[CMLHope] Merry Christmas and happy Holidays to all > > Hi allMerry Christmas and Happy Holidays to all. I am ending the year > fighting another disease: thyroid. At least thatโs what they think it is. > Lost about 30 pounds: losing hair-sweating for no reason and more. I canโt > take the meds as they make it worse. No matter what-fight on. ๐๐๐๐๐๐๐๐-- -- > [CMLHope]A support group of > http://cmlhope.com-------------------------------------------------You > received this message because you are subscribed to the Google Groups > "CMLHope" group.To post to this group, send email to > [email protected] unsubscribe from this group, send email to > [email protected] more options, visit this group at > http://groups.google.com/group/CMLHope--- You received this message because > you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from > this group and stop receiving emails from it, send an email to > [email protected] more options, visit > https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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