Hi Beth and thanks Yes I started losing hair and weight. Felt tired and sleepy. Dr said tsh was high. But the Levo he gave me made me so nervous I thought I was having a panic attack. Also gave me chest pains. I think I have hyper not hypo. So wrong meds. Going soon to have it rechecked. Thanks again. Jeanie
My Motto: Faith and Pills With Love Jeanie ๐ free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Dec 28, 2018, at 7:18 PM, bkbarney via CMLHope <[email protected]> > wrote: > > I do take the levothyroxine. It puts my numbers in order, at least on paper. > I hope you are seeing an endocrinologist. Yes? A thyroid specialist? I do not > know why it would make your numbers worse? it should not make it worse. It > might not work well...at first, until meds are adjusted if it's the right > medication at the right dose for you. If your numbers are worse and you are > not feeling well...definitely get to a specialist. They can physically check > your neck, perhaps do an ultrasound..other more advanced diagnostic thyroid > blood tests etc...maybe they need to rule out other issues.. > > Hope this is the year that you find some more answers and feel better!!! > Thinking of you... > > 18/s Beth > > > -----Original Message----- > From: 'Jeanie' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Fri, Dec 28, 2018 9:45 am > Subject: [CMLHope] Thyroid issues > > Hi Beth > I didnโt know you had thyroid issues. > Maybe you can help me. My tsh was high and the dr gave me Levo meds but they > made it worse. How is yours being treated? Thanks Jeanie > > My Motto: > Faith and Pills > With Love > Jeanie > ๐ free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Dec 27, 2018, at 1:06 PM, rszim0702 via CMLHope <[email protected]> > wrote: > >> Thanks Beth for your note to us. As we all are above ground today, it's a >> great day as Marty used to say. I hope everyone's holiday time was precious >> with family. The noise at our get-together was deafening! With 33 in >> attendance it was lots of fun. Our Secret Santa time was fantastic, too. I >> got an ab-worker which could help me exercise...if I pick it up. >> >> All is well if we don't talk about our ills! Be blessed and enjoy the New >> Year coming in...with new futures, new prosperity, and new fulfillment >> because we are looking to be kind instead of right, and joyous and >> light-hearted as we give of ourselves to others. >> >> And when we need to share about our recent physical problems, that's what we >> are here for, too! Beth, hang in there and Jeannie, and Greenie, too. Gotta >> go! >> >> 18's and love and hugs, >> Susan Z. >> >> >> On Dec 26, 2018 2:09 PM, bkbarney via CMLHope <[email protected]> >> wrote: >> Hanging in there. Cancer showing ongoing but at low rates. Cannot take >> enough meds to get to PCRU but that's O.K.,Side effects still here, muscle >> and heart and my usual thyroid issues, but I stay positive and carry on. On >> vacation, made it this year, so enjoying shelling and the beach...windy but >> great shelling!! >> >> Love to all, and please, lets all stay together here this coming year. Zavie >> and Marty taught us well, along with Millie and many others....community >> and shared experiences mean so much.... >> >> Love, and 18's to all >> >> Beth >> >> >> -----Original Message----- >> From: 'Jeanie' via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Wed, Dec 26, 2018 2:02 pm >> Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all >> >> Thank you so much how are you? >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> ๐ free >> Christian >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> >> On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope >> <[email protected]> wrote: >> >> hi Jeanie and Susan Z, >> >> Wishing you both a happy and peaceful New Year filled with moments of joy >> and sweetness amidst all the healthy struggles. You are both such strong >> woman and I admire the courage you both show in navigating multiple health >> issues at once. I feel for both you.. >> >> Stay positive and now that lots of us out here are thinking of you. >> >> Happy holidays!! >> >> 18's Beth >> >> >> -----Original Message----- >> From: rszim0702 via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Sat, Dec 15, 2018 10:00 am >> Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all >> >> Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia >> myself. Along with IBS, I have to make myself go out of the house. All of >> you keep warm and have a wonderful Merry Christmas!!! It is what you make >> it. >> 18's and hugs,Susan Z >> >> >> On Dec 15, 2018 9:10 AM, [email protected] wrote: >> Wishing the best to you in the New Year. >> >> Sent from my LG Mobile >> >> ------ Original message------ >> From: 'Icandoallttc' via CMLHope >> Date: Sat, Dec 15, 2018 3:15 AM >> To: [email protected]; >> Cc: >> Subject:[CMLHope] Merry Christmas and happy Holidays to all >> >> Hi allMerry Christmas and Happy Holidays to all. I am ending the year >> fighting another disease: thyroid. At least thatโs what they think it is. >> Lost about 30 pounds: losing hair-sweating for no reason and more. I canโt >> take the meds as they make it worse. No matter what-fight on. ๐๐๐๐๐๐๐๐-- -- >> [CMLHope]A support group of >> http://cmlhope.com-------------------------------------------------You >> received this message because you are subscribed to the Google Groups >> "CMLHope" group.To post to this group, send email to >> [email protected] unsubscribe from this group, send email to >> [email protected] more options, visit this group at >> http://groups.google.com/group/CMLHope--- You received this message because >> you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from >> this group and stop receiving emails from it, send an email to >> [email protected] more options, visit >> https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this 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