I was diagnosed in 2003, too! Susan Rosenthal Miami, Florida
> On Sep 26, 2019, at 7:43 PM, sherri swanson <[email protected]> > wrote: > > Hi Ken, > > Glad to hear your doing well. I too take Gleevec but take 600mg. Like you I > was DX in 2003 and have been on 600mg since then. My blood is almost > undetectable as well. I guess the CML just wants to let me know it's there. I > just let it know I'm still here too. > > Have a great weekend, > > Sherri > >> On Thu, Sep 26, 2019 at 10:44 AM [email protected] <[email protected]> >> wrote: >> I was diagnosed in 2003. I am still on 400 mg of gleevec and tolerating it >> well. My semi- annual blood test remains almost untraceable, but still >> there. Greetings to all cml'ers. Keep the faith. Nick >> >> >> >> Sent from my LG V40 ThinQ, an AT&T 5G Evolution capable smartphone >> >> ------ Original message------ >> From: [email protected] >> Date: Thu, Sep 26, 2019 5:10 AM >> To: Digest recipients; >> Cc: >> Subject:[CMLHope] Digest for [email protected] - 1 update in 1 topic >> >> [email protected] Google Groups >> Topic digest >> View all topics >> Acaria health - 1 Update >> Acaria health >> icandoallttc >: Sep 25 12:22PM -0400 >> >> Hello everyone >> I had the strangest thing happen to me in reference to my Ponatinib. Is >> anyone on Ponatinib ? >> I got a letter telling me ascaria health would be handling my drug from now >> on. I did t ask for this so decided to wait until biologics called to refill >> my prescription. Well they called and asked me if I was ready for refill. >> Never mentioned as aria and my medicine came As usual. I was so happy. So my >> question is should I notify someone of this as it seems like a fraud to me. >> This medicine is very expenvive. It is 17,000 $ a month. Has anyone ever >> have this happened? I???ve researched google with no answers. >> Norm I remember when you helped me run the tasigna group. I couldn???t take >> it. Talk later all the news. You and your wife love are so up lifting. Yes >> love you so very much. >> ???? >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> ????free >> Christian >> Dx 1/2004 CML Leukemia >> Back to top >> You received this digest because you're subscribed to updates for this >> group. You can change your settings on the group membership page. >> To unsubscribe from this group and stop receiving emails from it send an >> email to [email protected]. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> To view this discussion on the web visit >> https://groups.google.com/d/msgid/cmlhope/qvj3s93ainolkrrp2fj0tunb.1569512280934%40email.lge.com. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > To view this discussion on the web visit > https://groups.google.com/d/msgid/cmlhope/CAFyQvg%2BewiKr7-ba9edUV5kRaoV87RebZzHSEDpiXYbuEK_zTQ%40mail.gmail.com. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/C129D127-8C5B-4548-BB62-6456B69DB651%40aol.com.
