Robert, I saw that you are dealing with a non-regenerative anemia. Isn't that the only use for epo/aranesp? But I only know of it being used when kidney failure has been considered the cause.
Do you think it would be useful in your situation? Margo -----Original Message----- >From: ROBERT CHAPEL <bcha...@optonline.net> >Sent: Dec 25, 2016 2:32 PM >To: felvtalk@felineleukemia.org >Cc: felvtalk@felineleukemia.org >Subject: Re: [Felvtalk] My Location...should you find an open minded vet... > >Thank you Amani and Ardy for thinking of me.... I am located in a part >of NYS called Southern Orange County... The largest nearby towns are >Middletown, Monroe,Newburgh but I'd be willing to travel a distance for >a chance at a real result ( eg.... The Vet Opthalmologist I am using is >50 miles away)... NYC is 60 miles from me. Problem is that soon my >time availability is going to be compromised by my need to return to >work in order to afford the basics of life..... I know for some a few >thousand dollars is not much but for me in retirement it comprises a >very large portion of my living expenses for a few months.... ( I >do...after all, have a couple of needs of my own as well....such as food >and gas and a mortgage to pay : ) >Any assistance you could lend would be well appreciated.... I've done >more than a bit of asking around but am not well connected enough in >this "other" medical world yet to have confidence that I won't be >wasting still more money to hear crap that I already know 10 times >over..... Kind of the same conundrum as my going to a new MD for a drug >I've been on for 40 years.... He knows nothing about it but I need HIS >sig to get it and until he knows me he's not going to trust that I know >what I'm talking about... or if he's really full of himself may not take >the time to listen to whether I even do.... It's THAT kind of money >wasting I am no longer willing to do.... Please forgive the building >frustration but being held captive by someones prescription pad while >their brain is too closed to allow me a chance at saving my little boy >is REALLY working on me.... Winstrol,Doxy and Pred in combo don't >come near the price of one Bone Marrow aspiration and are a heck of a >lot cheaper than Epopoieten which is of little use in a non regenerative >anemia.... Don't tell me there's nothing tha you CAN do when it's >actually that there is nothing that you WILL do..... Ok... I'll stop > >On Sun, Dec 25, 2016 at 01:00 PM, felvtalk-requ...@felineleukemia.org >wrote: > >> Send Felvtalk mailing list submissions to >> felvtalk@felineleukemia.org >> >> To subscribe or unsubscribe via the World Wide Web, visit >> >> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org >> >> or, via email, send a message with subject or body 'help' to >> felvtalk-requ...@felineleukemia.org >> >> You can reach the person managing the list at >> felvtalk-ow...@felineleukemia.org >> >> When replying, please edit your Subject line so it is more specific >> than "Re: Contents of Felvtalk digest..." >> >> >> Today's Topics: >> >> 1. Re: Felvtalk Digest, Vol 32, Issue 58 (Amani Oakley) >> 2. Re: FelV kitten (Amani Oakley) >> 3. Aloe Acemannan (Tina Terrell) >> 4. Re: FelV kitten (Margo) >> >> >> ---------------------------------------------------------------------- >> >> Message: 1 >> Date: Sun, 25 Dec 2016 05:18:21 +0000 >> From: Amani Oakley To: "felvtalk@felineleukemia.org" Subject: Re: >> [Felvtalk] Felvtalk Digest, Vol 32, Issue 58 >> Message-ID: >> >> Content-Type: text/plain; charset="utf-8" >> >> Bob >> >> At 14 haematocrit, you've got a ways to go before your boy is in >> crisis. I know you have tried everything Bob, and you are struggling >> with costs, but if you could find a vet to prescribe the drug >> combination we have discussed, would you do it? It isn?t all that >> expensive really. If you tell me or Ardy directly , where you are >> located, we can try to find a vet through Diamond Back compounding >> pharmacy. I know how attached you are to your little boy, and frankly, >> if he is still eating, I wouldn?t give up on him yet. >> >> Amani >> >> -----Original Message----- >> From: Felvtalk [mailto:felvtalk-boun...@felineleukemia.org] On Behalf >> Of ROBERT CHAPEL >> Sent: December-24-16 2:54 PM >> To: felvtalk@felineleukemia.org >> Subject: Re: [Felvtalk] Felvtalk Digest, Vol 32, Issue 58 >> >> Amani et al.... >> >> Any idea of the life expectancy of untreated non regenerative anemia >> in a FeLV cat....Got a call on Yogi's? Most Recent Bloodwork and the >> vet states HCT of 14 and non regenerative anemia....? I was taken >> aback and didn't ask nearly enough questions but it was VERY clear >> that she felt it was time to put the little guy down.....?? I am at >> the end of my money at this point and cannot take him to a bunch of >> other vets hoping one will be willing to prescribe the cocktail that >> is showing itself to be effective with others cats...( I don't think I >> am going to get a lot of cooperation from the Vet I was using after I >> gave her my opinion of her unwillingness to help me through >> unconventional means).....Nor can I afford Bone Marrow Biopsies and >> more definitive narrowing of the parameters of his drop in blood >> values ( it's Xmas eve and they are all gone from the office)....?? As >> much as I would like to save this little guy... He has so many other >> things wrong with him that I don't know that I a >> m doing him any favors..... Temp is 104...weight has dropped a full >> pound in the last 6 months.... If it weren't for the fact that he is >> still eating heartily I'd put him down.... Without further treatment >> is it kinder to put him down or allow nature to take it's >> course??.....The idea of him suffering from an inability to get enough >> O2 is unacceptable.... >> any suggestions are welcome.... but... please...? no admonitions re: >> what I _ should_ do.....??? I have learned an immense amount from this >> experience and will NOT repeat it...? My other boy is still doing OK >> and I WILL find someone eventually that is willing to work with me.. >> >> >> >> On Sat, Dec 24, 2016 at 01:00 PM, felvtalk-requ...@felineleukemia.org >> wrote: >> >>> Send Felvtalk mailing list submissions to >>> felvtalk@felineleukemia.org >>> >>> To subscribe or unsubscribe via the World Wide Web, visit >>> >>> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org >>> >>> or, via email, send a message with subject or body 'help' to >>> felvtalk-requ...@felineleukemia.org >>> >>> You can reach the person managing the list at >>> felvtalk-ow...@felineleukemia.org >>> >>> When replying, please edit your Subject line so it is more specific >>> than "Re: Contents of Felvtalk digest..." >>> >>> >>> Today's Topics: >>> >>> 1. FW: FW: Questioning FELV diagnosis (Amani Oakley) >>> >>> >>> >>> ---------------------------------------------------------------------- >>> >>> Message: 1 >>> Date: Fri, 23 Dec 2016 18:16:02 +0000 >>> From: Amani Oakley To: "felvtalk@felineleukemia.org" Subject: >>> [Felvtalk] FW: FW: Questioning FELV diagnosis >>> Message-ID: >>> >>> Content-Type: text/plain; charset="utf-8" >>> >>> Randy >>> >>> The news is good. Whatever works. I am a big believer in keeping >>> close tabs on the bloodwork and adjusting the medication, depending >>> on what the lab results show. >>> >>> Given that Curley is eating and you are getting an improvement on the >>> red cells already, I agree that the Winstrol and Doxy should help >>> even more. Keep track of the blood work and adjust accordingly. >>> >>> Amani >>> >>> From: Felvtalk [mailto:felvtalk-boun...@felineleukemia.org] On Behalf >>> Of Randy Henke >>> Sent: December-23-16 11:02 AM >>> To: felvtalk@felineleukemia.org >>> Subject: Re: [Felvtalk] FW: Questioning FELV diagnosis >>> >>> The situation with Curly is getting a bit more complicated but in a >>> good way. Her blood work a week ago showed an RBC of 9 which is >>> critically low. White cell count was 3.1. After one week of >>> Prednisone her white cell count is 3.7 which is the low end of normal >>> and her red blood cell count is up to 13 which is still very low but >>> a very significant increase in just one week. So the Prednisone alone >>> is making a big difference. We've now had two positive ELISA tests, a >>> negative IFA and severe anemia that is responding well to just >>> Prednisone. I am very confused. Even our vet seems surprised by the >>> sudden improvement in her numbers. He thinks we should do a bone >>> marrow biopsy for a definitive FELV diagnosis but I don't really want >>> to put her through that procedure. >>> We did start the Winstrol a day ago so I would think that could only >>> help more. We should be tapering down the Prednisone dose at this >>> time but our vet now wants to continue the full dosage for another >>> two weeks before running another CBC. And the Doxy will be started on >>> Monday. I'm beginning to think she might pull out of this crisis and >>> we might have a little more time with her. >>> >>> On Tue, Dec 20, 2016 at 9:46 PM, Ardy Robertson > wrote: >>> Best of luck to you with Curly ---- just wanted to mention there are >>> appetite stimulant pills available. One that I remember that I used >>> with Tigger was Mirtazapine and I only had to give a small part of a >>> pill every 3 days. Amani knows of another one but I can?t remember >>> the name of it. >>> >>> Ardy >>> -------------- next part -------------- An HTML attachment was >>> scrubbed... >>> URL: >>> ------------------------------ >>> >>> Subject: Digest Footer >>> >>> _______________________________________________ >>> Felvtalk mailing list >>> Felvtalk@felineleukemia.org >>> >>> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org >>> >>> >>> ------------------------------ >>> >>> End of Felvtalk Digest, Vol 32, Issue 58 >>> **************************************** >>> >> >> _______________________________________________ >> Felvtalk mailing list >> Felvtalk@felineleukemia.org >> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org >> >> ------------------------------ >> >> Message: 2 >> Date: Sun, 25 Dec 2016 05:20:28 +0000 >> From: Amani Oakley To: "felineres...@frontier.com" , >> "felvtalk@felineleukemia.org" Subject: Re: [Felvtalk] FelV kitten >> Message-ID: >> >> Content-Type: text/plain; charset="iso-8859-1" >> >> Frankly, it is not too late at all for the Winstrol. I have seen it >> pull back cats with a much much lower haematocrit than Robert is >> seeing. >> >> Amani >> >> -----Original Message----- >> From: Felvtalk [mailto:felvtalk-boun...@felineleukemia.org] On Behalf >> Of Lorrie >> Sent: December-24-16 5:49 PM >> To: felvtalk@felineleukemia.org >> Subject: [Felvtalk] FelV kitten >> >> Robert, I am so sorry you are going thru this. I have lost many >> kittens who were born with the virus, which they got from their mother >> who was feral. All these precious kittens died at less than a year. >> At first they were so playful and looked so healthy I thought the two >> tests I'd had were surely wrong, but at 8 months I started to lose >> them one by one. The 4th and last (my favorite) made it to 11 months. >> I was devastated. >> >> On the other hand I have had several older cats at my sanctuary who >> must have contracted the virus when older. One died suddenly at 7 >> years old and the other is now 8 years old, and she has never been >> sick. You never know what will happen. >> If you had started your little guy on Winstrol a few weeks ago it >> might have saved his life, but it is probably too late now. >> I just wanted to tell you I am so sorry, and I know what you are going >> thru. >> >> Lorrie with 13 rescued cats at home and 32 in my sanctuary. >> >> >> On 12-24, ROBERT CHAPEL wrote: >>> Amani et al.... >>> >>> Any idea of the life expectancy of untreated non regenerative anemia >>> in a FeLV cat....Got a call on Yogi's? Most Recent Bloodwork and the >>> vet states HCT of 14 and non regenerative anemia....? I was taken >>> aback and didn't ask nearly enough questions but it was VERY clear >>> that she felt it was time to put the little guy down.....?? I am at >>> the end of my money at this point and cannot take him to a bunch of >>> other vets hoping one will be willing to prescribe the cocktail that >>> is showing itself to be effective with others cats...( I don't think >>> I am going to get a lot of cooperation from the Vet I was using after >>> I gave her my opinion of her unwillingness to help me through >>> unconventional means).....Nor can I afford Bone Marrow Biopsies and >>> more definitive narrowing of the parameters of his drop in blood >>> values ( it's Xmas eve and they are all gone from the office)....?? >>> As much as I would like to save this little guy... He has so many >>> other things wrong with him that I don't know that I am doing him any >>> favors..... Temp is 104...weight has dropped a full pound in the last >>> 6 months.... If it weren't for the fact that he is still eating >>> heartily I'd put him down.... Without further treatment is it kinder >>> to put him down or allow nature to take it's course??.....The idea of >>> him suffering from an inability to get enough O2 is unacceptable.... >>> any suggestions are welcome.... but... please...? no admonitions re: >>> what I _ should_ do.....??? I have learned an immense amount from >>> this experience and will NOT repeat it...? My other boy is still >>> doing OK and I WILL find someone eventually that is willing to work >>> with me.. >>> >> >> _______________________________________________ >> Felvtalk mailing list >> Felvtalk@felineleukemia.org >> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org >> >> >> >> ------------------------------ >> >> Message: 3 >> Date: Sun, 25 Dec 2016 07:14:03 -0600 >> From: Tina Terrell To: felvtalk@felineleukemia.org >> Subject: [Felvtalk] Aloe Acemannan >> Message-ID: >> >> Content-Type: text/plain; charset="utf-8" >> >> Hello and Merry Christmas. I am in need of finding freeze dried >> acemannan. >> They have discontinued and it is helping my Charlie leaps and bounds. >> He >> has been off of it for 2 weeks and now he is sick with uri. Is steroid >> and >> antibiotic typical protocol? Thanks in advance! >> Tina Terrell >> -------------- next part -------------- >> An HTML attachment was scrubbed... >> URL: >> ------------------------------ >> >> Message: 4 >> Date: Sun, 25 Dec 2016 08:23:39 -0500 (EST) >> From: Margo To: felineres...@frontier.com, felvtalk@felineleukemia.org >> Subject: Re: [Felvtalk] FelV kitten >> Message-ID: >> <10437073.471.1482672219...@elwamui-muscovy.atl.sa.earthlink.net> >> Content-Type: text/plain; charset=UTF-8 >> >> >> Lorrie wrote "If you had started your little guy on Winstrol a few >> weeks ago it >> might have saved his life, but it is probably too late now." >> >> And it might have done nothing. Th young ones seem to have little in >> reserve to let them fight the disease. No point in second-guessing >> what might have been, it can only be hurtful. If you can't find a Vet >> that will cooperate, there's not much that can be done by a >> lay-person, except to love them and do the best you can with what you >> have available. >> >> Margo >> >> >> -----Original Message----- >>> From: Lorrie Sent: Dec 24, 2016 5:49 PM >>> To: felvtalk@felineleukemia.org >>> Subject: [Felvtalk] FelV kitten >>> >>> Robert, I am so sorry you are going thru this. I have lost many >>> kittens who were born with the virus, which they got from their >>> mother who was feral. All these precious kittens died at less than a >>> year. At first they were so playful and looked so healthy I thought >>> the two tests I'd had were surely wrong, but at 8 months I started to >>> lose them one by one. The 4th and last (my favorite) made it to 11 >>> months. I was devastated. >>> >>> On the other hand I have had several older cats at my sanctuary who >>> must have contracted the virus when older. One died suddenly at 7 >>> years >>> old and the other is now 8 years old, and she has never been sick. >>> You never know what will happen. >>> If you had started your little guy on Winstrol a few weeks ago it >>> might have saved his life, but it is probably too late now. >>> I just wanted to tell you I am so sorry, and I know what you are >>> going thru. >>> >>> Lorrie with 13 rescued cats at home and 32 in my sanctuary. >>> >>> >>> On 12-24, ROBERT CHAPEL wrote: >>>> Amani et al.... >>>> >>>> Any idea of the life expectancy of untreated non regenerative anemia >>>> in a FeLV cat....Got a call on Yogi's? Most Recent Bloodwork and the >>>> vet states HCT of 14 and non regenerative anemia....? I was taken >>>> aback and didn't ask nearly enough questions but it was VERY clear >>>> that she felt it was time to put the little guy down.....?? I am at >>>> the end of my money at this point and cannot take him to a bunch of >>>> other vets hoping one will be willing to prescribe the cocktail that >>>> is showing itself to be effective with others cats...( I don't think >>>> I am going to get a lot of cooperation from the Vet I was using >>>> after I gave her my opinion of her unwillingness to help me through >>>> unconventional means).....Nor can I afford Bone Marrow Biopsies and >>>> more definitive narrowing of the parameters of his drop in blood >>>> values ( it's Xmas eve and they are all gone from the office)....?? >>>> As much as I would like to save this little guy... He has so many >>>> other things wrong with him that I don't know that I am doing him >>>> any favors..... Temp is 104...weight has dropped a full pound in the >>>> last 6 months.... If it weren't for the fact that he is still eating >>>> heartily I'd put him down.... Without further treatment is it kinder >>>> to put him down or allow nature to take it's course??.....The idea >>>> of him suffering from an inability to get enough O2 is >>>> unacceptable.... >>>> any suggestions are welcome.... but... please...? no admonitions re: >>>> what I _ should_ do.....??? I have learned an immense amount from >>>> this experience and will NOT repeat it...? My other boy is still >>>> doing OK and I WILL find someone eventually that is willing to work >>>> with me.. >>>> >>> >>> _______________________________________________ >>> Felvtalk mailing list >>> Felvtalk@felineleukemia.org >>> >>> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org >> >> >> >> ------------------------------ >> >> Subject: Digest Footer >> >> _______________________________________________ >> Felvtalk mailing list >> Felvtalk@felineleukemia.org >> http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org >> >> >> ------------------------------ >> >> End of Felvtalk Digest, Vol 32, Issue 60 >> **************************************** >> > >_______________________________________________ >Felvtalk mailing list >Felvtalk@felineleukemia.org >http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org _______________________________________________ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org