#31: data elements for ALS cohort characterization
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Reporter: dconnolly | Owner: jhe
Type: design-issue | Status: assigned
Priority: major | Milestone: data-agg1
Component: data-stds | Resolution:
Keywords: als-cohort methods-core | Blocked By: 63
Blocking: |
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Comment (by jhe):
Oct 10: we had a 2.5 hours meeting discussing variables from Jeff’s list.
Most of items connected with a small number of patients and some of the
items pulled a lot of things out by searching key words. We had
discussions on what should be used for pulling data. Jeff thought many of
the numbers are much lower than what he saw in clinic, for example, only
261 out of 1905 patients took Riluzole that is the only FDA approved
medication for ALS. So, there is a big question of whether Heron have all
the data from O2. If not, then that is a really serious problem for using
Heron for research. If all O2 data is in Heron, then we need to figure out
how we can pull them out.
During the meeting, two key questions came up:
1. Do medications in Heron include physician’s prescription data or
they are KU pharmacy’s fulfilling prescriptions data?
2. Jeff mentioned that there is “problem list” in O2 that is easier
for identifying comorbidities. Are they in Heron? If yes, where they are?
Can anybody from the medicalinformatics team answer these?
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Ticket URL:
<http://informatics.gpcnetwork.org/trac/Project/ticket/31#comment:21>
gpc-informatics <http://informatics.gpcnetwork.org/>
Greater Plains Network - Informatics
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